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Brain Met on Keytruda

Forums General Melanoma Community Brain Met on Keytruda

  • Post
    Mat
    Participant

      Met with my neurosurgeon on Monday morning and was directly admitted for surgery.  Surgery will be followed by Cyberknife and I'll also be scanned for other progression.  Will report back.

    Viewing 50 reply threads
    • Replies
        Jubes
        Participant

          Good luck mat! We are all hoping for a positive outcome.

          anne-Louise 

          Jubes
          Participant

            Good luck mat! We are all hoping for a positive outcome.

            anne-Louise 

            Jubes
            Participant

              Good luck mat! We are all hoping for a positive outcome.

              anne-Louise 

              dfeng
              Participant

                Best wishes, Mat.

                dfeng
                Participant

                  Best wishes, Mat.

                  dfeng
                  Participant

                    Best wishes, Mat.

                    jamieth29
                    Participant
                      Wishing you the best mat.
                      jamieth29
                      Participant
                        Wishing you the best mat.
                        jamieth29
                        Participant
                          Wishing you the best mat.
                          DZnDef
                          Participant

                            Best of luck to you Matt!  Just remember you have the easy part.  Relax and let these highly competent professionals take care of you.

                              Brendan
                              Participant

                                Hey Mat.  I've had two cranis at Penn.  You're in good hands.  Good luck, brother.

                                Brendan

                                Brendan
                                Participant

                                  Hey Mat.  I've had two cranis at Penn.  You're in good hands.  Good luck, brother.

                                  Brendan

                                  Brendan
                                  Participant

                                    Hey Mat.  I've had two cranis at Penn.  You're in good hands.  Good luck, brother.

                                    Brendan

                                  DZnDef
                                  Participant

                                    Best of luck to you Matt!  Just remember you have the easy part.  Relax and let these highly competent professionals take care of you.

                                    DZnDef
                                    Participant

                                      Best of luck to you Matt!  Just remember you have the easy part.  Relax and let these highly competent professionals take care of you.

                                      Bubbles
                                      Participant

                                        Oh, Mat!  All fingers crossed and holding you in my heart.  c

                                        Bubbles
                                        Participant

                                          Oh, Mat!  All fingers crossed and holding you in my heart.  c

                                          Bubbles
                                          Participant

                                            Oh, Mat!  All fingers crossed and holding you in my heart.  c

                                            stars
                                            Participant
                                              Wow, that is quick. You sound like you are in good hands. all the best, Mat.
                                              stars
                                              Participant
                                                Wow, that is quick. You sound like you are in good hands. all the best, Mat.
                                                stars
                                                Participant
                                                  Wow, that is quick. You sound like you are in good hands. all the best, Mat.
                                                  arthurjedi007
                                                  Participant

                                                    Good luck mat. Sounds like they are moving on it fast with a good normal plan.

                                                    Artie

                                                    arthurjedi007
                                                    Participant

                                                      Good luck mat. Sounds like they are moving on it fast with a good normal plan.

                                                      Artie

                                                      arthurjedi007
                                                      Participant

                                                        Good luck mat. Sounds like they are moving on it fast with a good normal plan.

                                                        Artie

                                                        Gwen in Maine
                                                        Participant

                                                          Best wishes and good luck, Mat!

                                                          Gwen

                                                          Gwen in Maine
                                                          Participant

                                                            Best wishes and good luck, Mat!

                                                            Gwen

                                                            Gwen in Maine
                                                            Participant

                                                              Best wishes and good luck, Mat!

                                                              Gwen

                                                              BrianP
                                                              Participant

                                                                Hope everything went well Mat.  Anxiously awaiting your next report.

                                                                BrianP
                                                                Participant

                                                                  Hope everything went well Mat.  Anxiously awaiting your next report.

                                                                    Mat
                                                                    Participant

                                                                      Thanks Brian (and everyone).  I guess I always considered myself to be a bit of a melanoma wimp having not had any major surgeries.  A crani followed by a week in the hospital surely moves me out of that category.  I've recovered some, but not all, of the vision in my left eye.  My neurosurgeon estimates that I would've been blind by now without treatment.  I anticipate being discharged today and will then work on Cyberknife.  Still not sure whether they can save my left eye.  Then I need to have the rest of me scanned to see whether I'm still benefiting from Keytruda.

                                                                      arthurjedi007
                                                                      Participant

                                                                        Wow. Good thing you have good docs that you were able to get them on it right away. Hopefully everything turns out good.

                                                                        Artie

                                                                        arthurjedi007
                                                                        Participant

                                                                          Wow. Good thing you have good docs that you were able to get them on it right away. Hopefully everything turns out good.

                                                                          Artie

                                                                          arthurjedi007
                                                                          Participant

                                                                            Wow. Good thing you have good docs that you were able to get them on it right away. Hopefully everything turns out good.

                                                                            Artie

                                                                            khubes
                                                                            Participant

                                                                              Mat, it is great to hear that you're post-op now and on the road to recovery!  I'm glad your docs were able to get you into surgery swiftly.  Praying that your vision will return 100%.  You and yours are in my thoughts and prayers!! 

                                                                              khubes
                                                                              Participant

                                                                                Mat, it is great to hear that you're post-op now and on the road to recovery!  I'm glad your docs were able to get you into surgery swiftly.  Praying that your vision will return 100%.  You and yours are in my thoughts and prayers!! 

                                                                                khubes
                                                                                Participant

                                                                                  Mat, it is great to hear that you're post-op now and on the road to recovery!  I'm glad your docs were able to get you into surgery swiftly.  Praying that your vision will return 100%.  You and yours are in my thoughts and prayers!! 

                                                                                  Mat
                                                                                  Participant

                                                                                    Thanks Brian (and everyone).  I guess I always considered myself to be a bit of a melanoma wimp having not had any major surgeries.  A crani followed by a week in the hospital surely moves me out of that category.  I've recovered some, but not all, of the vision in my left eye.  My neurosurgeon estimates that I would've been blind by now without treatment.  I anticipate being discharged today and will then work on Cyberknife.  Still not sure whether they can save my left eye.  Then I need to have the rest of me scanned to see whether I'm still benefiting from Keytruda.

                                                                                    Mat
                                                                                    Participant

                                                                                      Thanks Brian (and everyone).  I guess I always considered myself to be a bit of a melanoma wimp having not had any major surgeries.  A crani followed by a week in the hospital surely moves me out of that category.  I've recovered some, but not all, of the vision in my left eye.  My neurosurgeon estimates that I would've been blind by now without treatment.  I anticipate being discharged today and will then work on Cyberknife.  Still not sure whether they can save my left eye.  Then I need to have the rest of me scanned to see whether I'm still benefiting from Keytruda.

                                                                                    BrianP
                                                                                    Participant

                                                                                      Hope everything went well Mat.  Anxiously awaiting your next report.

                                                                                      JoshF
                                                                                      Participant

                                                                                        Rushing you the best and speedy recovery!!!

                                                                                        JoshF
                                                                                        Participant

                                                                                          Rushing you the best and speedy recovery!!!

                                                                                            Mat
                                                                                            Participant

                                                                                              Thanks Josh.  Glad to hear your good report.

                                                                                              Mat
                                                                                              Participant

                                                                                                Thanks Josh.  Glad to hear your good report.

                                                                                                Mat
                                                                                                Participant

                                                                                                  Thanks Josh.  Glad to hear your good report.

                                                                                                JoshF
                                                                                                Participant

                                                                                                  Rushing you the best and speedy recovery!!!

                                                                                                  Bubbles
                                                                                                  Participant

                                                                                                    Goodness, Mat!  Glad you got things taken care of as quickly as you did!!!  Fingers crossed for more improvement in your vision.  Hang in there!!  C

                                                                                                    Bubbles
                                                                                                    Participant

                                                                                                      Goodness, Mat!  Glad you got things taken care of as quickly as you did!!!  Fingers crossed for more improvement in your vision.  Hang in there!!  C

                                                                                                      Bubbles
                                                                                                      Participant

                                                                                                        Goodness, Mat!  Glad you got things taken care of as quickly as you did!!!  Fingers crossed for more improvement in your vision.  Hang in there!!  C

                                                                                                        kpcollins31
                                                                                                        Participant

                                                                                                          Good luck Matt! Hang in there.

                                                                                                          Kevin

                                                                                                          kpcollins31
                                                                                                          Participant

                                                                                                            Good luck Matt! Hang in there.

                                                                                                            Kevin

                                                                                                            kpcollins31
                                                                                                            Participant

                                                                                                              Good luck Matt! Hang in there.

                                                                                                              Kevin

                                                                                                              casagrayson
                                                                                                              Participant

                                                                                                                Thankful you got in so quickly!

                                                                                                                casagrayson
                                                                                                                Participant

                                                                                                                  Thankful you got in so quickly!

                                                                                                                  casagrayson
                                                                                                                  Participant

                                                                                                                    Thankful you got in so quickly!

                                                                                                                    stars
                                                                                                                    Participant

                                                                                                                      Surgery – done. Cyberknife/scans – planned. You're all over this! All the best for a great recovery – it's amazing what can return once the trauma of surgery settles down. Thanks for the update, Mat.

                                                                                                                      stars
                                                                                                                      Participant

                                                                                                                        Surgery – done. Cyberknife/scans – planned. You're all over this! All the best for a great recovery – it's amazing what can return once the trauma of surgery settles down. Thanks for the update, Mat.

                                                                                                                        stars
                                                                                                                        Participant

                                                                                                                          Surgery – done. Cyberknife/scans – planned. You're all over this! All the best for a great recovery – it's amazing what can return once the trauma of surgery settles down. Thanks for the update, Mat.

                                                                                                                          Mat
                                                                                                                          Participant

                                                                                                                            Thanks everyone.  So at discharge yesterday, the nurse asked me about a runny nose.  I'd actually had it since the surgery but it was so minor that I neglected to mention it.  I went from discharge to MRI to BA ck to the ICU.  ICU is a great place post-surgery–not so much pre-surgery.  Anyway, they aren't sure if my leaky nose is related to the surgery or not.  Thus, I'm stuck in the hospital and they will likely open me up again to be safe.  On another note, I also had a CT scan yesterday.  (Amazingly, the pigs at our insurance company rejected a PET!). I haven't seen the report or spoken with my onc, but it sounds like I have other progression.

                                                                                                                            Mat
                                                                                                                            Participant

                                                                                                                              Thanks everyone.  So at discharge yesterday, the nurse asked me about a runny nose.  I'd actually had it since the surgery but it was so minor that I neglected to mention it.  I went from discharge to MRI to BA ck to the ICU.  ICU is a great place post-surgery–not so much pre-surgery.  Anyway, they aren't sure if my leaky nose is related to the surgery or not.  Thus, I'm stuck in the hospital and they will likely open me up again to be safe.  On another note, I also had a CT scan yesterday.  (Amazingly, the pigs at our insurance company rejected a PET!). I haven't seen the report or spoken with my onc, but it sounds like I have other progression.

                                                                                                                                BrianP
                                                                                                                                Participant

                                                                                                                                  Prayers, Prayers, Prayers.  Hang in there Mat.  Thinking about you and your family.  Sounds like you have a great team of Docs in your corner. 

                                                                                                                                  BrianP
                                                                                                                                  Participant

                                                                                                                                    Prayers, Prayers, Prayers.  Hang in there Mat.  Thinking about you and your family.  Sounds like you have a great team of Docs in your corner. 

                                                                                                                                    BrianP
                                                                                                                                    Participant

                                                                                                                                      Prayers, Prayers, Prayers.  Hang in there Mat.  Thinking about you and your family.  Sounds like you have a great team of Docs in your corner. 

                                                                                                                                      dfeng
                                                                                                                                      Participant

                                                                                                                                        You will be fine!!! 

                                                                                                                                        dfeng
                                                                                                                                        Participant

                                                                                                                                          You will be fine!!! 

                                                                                                                                          Brendan
                                                                                                                                          Participant

                                                                                                                                            Hey Mat.  Glad they are checking it now as opposed to later.  Good luck to you.  Hang in there.  

                                                                                                                                            Brendan

                                                                                                                                            Brendan
                                                                                                                                            Participant

                                                                                                                                              Hey Mat.  Glad they are checking it now as opposed to later.  Good luck to you.  Hang in there.  

                                                                                                                                              Brendan

                                                                                                                                              Brendan
                                                                                                                                              Participant

                                                                                                                                                Hey Mat.  Glad they are checking it now as opposed to later.  Good luck to you.  Hang in there.  

                                                                                                                                                Brendan

                                                                                                                                                dfeng
                                                                                                                                                Participant

                                                                                                                                                  You will be fine!!! 

                                                                                                                                                  arthurjedi007
                                                                                                                                                  Participant

                                                                                                                                                    Sheesh you are really going through a lot Mat. Hang in there.

                                                                                                                                                    Artie

                                                                                                                                                    arthurjedi007
                                                                                                                                                    Participant

                                                                                                                                                      Sheesh you are really going through a lot Mat. Hang in there.

                                                                                                                                                      Artie

                                                                                                                                                      arthurjedi007
                                                                                                                                                      Participant

                                                                                                                                                        Sheesh you are really going through a lot Mat. Hang in there.

                                                                                                                                                        Artie

                                                                                                                                                        stars
                                                                                                                                                        Participant
                                                                                                                                                          Oh man,it just goes from one thing to another. I never would’ve thought a runny nose would be anything to do with surgery… I guess its good that the nurse was switched on to this link. Hopefully it resolves before any more surgery is considered. Can’t believe your PET was refused, hopefully CT brings you some clarity. I’m in Australia and we just don’t have this struggle about insurance – we probably have other struggles, but convincing insurers is not one (not for me, anyway, as I don’t have private insurance). Keep fighting my friend, one hurdle at a time.
                                                                                                                                                          stars
                                                                                                                                                          Participant
                                                                                                                                                            Oh man,it just goes from one thing to another. I never would’ve thought a runny nose would be anything to do with surgery… I guess its good that the nurse was switched on to this link. Hopefully it resolves before any more surgery is considered. Can’t believe your PET was refused, hopefully CT brings you some clarity. I’m in Australia and we just don’t have this struggle about insurance – we probably have other struggles, but convincing insurers is not one (not for me, anyway, as I don’t have private insurance). Keep fighting my friend, one hurdle at a time.
                                                                                                                                                            stars
                                                                                                                                                            Participant
                                                                                                                                                              Oh man,it just goes from one thing to another. I never would’ve thought a runny nose would be anything to do with surgery… I guess its good that the nurse was switched on to this link. Hopefully it resolves before any more surgery is considered. Can’t believe your PET was refused, hopefully CT brings you some clarity. I’m in Australia and we just don’t have this struggle about insurance – we probably have other struggles, but convincing insurers is not one (not for me, anyway, as I don’t have private insurance). Keep fighting my friend, one hurdle at a time.
                                                                                                                                                              _Paul_
                                                                                                                                                              Participant

                                                                                                                                                                Hopy crap Mat, you are a warrior for sure. I'm glad you got some relief in your left eye and hope you don't have any progression and that you won't have any more issues with your sight other than continued improvement. And no, you definately are not in the wimp category in my books!

                                                                                                                                                                Praying for you.

                                                                                                                                                                _Paul_
                                                                                                                                                                Participant

                                                                                                                                                                  Hopy crap Mat, you are a warrior for sure. I'm glad you got some relief in your left eye and hope you don't have any progression and that you won't have any more issues with your sight other than continued improvement. And no, you definately are not in the wimp category in my books!

                                                                                                                                                                  Praying for you.

                                                                                                                                                                  _Paul_
                                                                                                                                                                  Participant

                                                                                                                                                                    Hopy crap Mat, you are a warrior for sure. I'm glad you got some relief in your left eye and hope you don't have any progression and that you won't have any more issues with your sight other than continued improvement. And no, you definately are not in the wimp category in my books!

                                                                                                                                                                    Praying for you.

                                                                                                                                                                  Mat
                                                                                                                                                                  Participant

                                                                                                                                                                    Thanks everyone.  So at discharge yesterday, the nurse asked me about a runny nose.  I'd actually had it since the surgery but it was so minor that I neglected to mention it.  I went from discharge to MRI to BA ck to the ICU.  ICU is a great place post-surgery–not so much pre-surgery.  Anyway, they aren't sure if my leaky nose is related to the surgery or not.  Thus, I'm stuck in the hospital and they will likely open me up again to be safe.  On another note, I also had a CT scan yesterday.  (Amazingly, the pigs at our insurance company rejected a PET!). I haven't seen the report or spoken with my onc, but it sounds like I have other progression.

                                                                                                                                                                    Mat
                                                                                                                                                                    Participant

                                                                                                                                                                      Hi everyone.  A quick update.  Expecting to be discharged tomorrow.  Two cranis in 8 days–really not fun.  Next week I'll start Cyberknife to clean up my remaining sinus tumor and also a new adrenal gland tumor.  I'll likely stay on Keytruda but will continue to evaluate additional options.  Thanks.

                                                                                                                                                                      Mat
                                                                                                                                                                      Participant

                                                                                                                                                                        Hi everyone.  A quick update.  Expecting to be discharged tomorrow.  Two cranis in 8 days–really not fun.  Next week I'll start Cyberknife to clean up my remaining sinus tumor and also a new adrenal gland tumor.  I'll likely stay on Keytruda but will continue to evaluate additional options.  Thanks.

                                                                                                                                                                        Mat
                                                                                                                                                                        Participant

                                                                                                                                                                          Hi everyone.  A quick update.  Expecting to be discharged tomorrow.  Two cranis in 8 days–really not fun.  Next week I'll start Cyberknife to clean up my remaining sinus tumor and also a new adrenal gland tumor.  I'll likely stay on Keytruda but will continue to evaluate additional options.  Thanks.

                                                                                                                                                                            BrianP
                                                                                                                                                                            Participant

                                                                                                                                                                              Glad to hear you will be heading home Mat. Two cranis in 8 days doesn't sound like much fun.  Hoping Keytruda will get a second wind for you.

                                                                                                                                                                              Brian

                                                                                                                                                                              BrianP
                                                                                                                                                                              Participant

                                                                                                                                                                                Glad to hear you will be heading home Mat. Two cranis in 8 days doesn't sound like much fun.  Hoping Keytruda will get a second wind for you.

                                                                                                                                                                                Brian

                                                                                                                                                                                BrianP
                                                                                                                                                                                Participant

                                                                                                                                                                                  Glad to hear you will be heading home Mat. Two cranis in 8 days doesn't sound like much fun.  Hoping Keytruda will get a second wind for you.

                                                                                                                                                                                  Brian

                                                                                                                                                                                  _Paul_
                                                                                                                                                                                  Participant

                                                                                                                                                                                    So the runny nose was nothing to be alarmed about? What about the CT? Did it reveal a new met?

                                                                                                                                                                                    Hoping the answer to these is yes and no in that order!

                                                                                                                                                                                    _Paul_
                                                                                                                                                                                    Participant

                                                                                                                                                                                      So the runny nose was nothing to be alarmed about? What about the CT? Did it reveal a new met?

                                                                                                                                                                                      Hoping the answer to these is yes and no in that order!

                                                                                                                                                                                      Mat
                                                                                                                                                                                      Participant

                                                                                                                                                                                        Runny nose was leaking cerebral spinal fluid.  So, second crani was more like a repair of the end of the first.  The CT showed a new tumor on my adrenal gland, but otherwise showed stability.  At a minimum, I will be getting Keytruda plus SRS (Cyberknife) given the minimal (though poorly located) progression, but I will look at all options.

                                                                                                                                                                                        Mat
                                                                                                                                                                                        Participant

                                                                                                                                                                                          Runny nose was leaking cerebral spinal fluid.  So, second crani was more like a repair of the end of the first.  The CT showed a new tumor on my adrenal gland, but otherwise showed stability.  At a minimum, I will be getting Keytruda plus SRS (Cyberknife) given the minimal (though poorly located) progression, but I will look at all options.

                                                                                                                                                                                          Mat
                                                                                                                                                                                          Participant

                                                                                                                                                                                            Runny nose was leaking cerebral spinal fluid.  So, second crani was more like a repair of the end of the first.  The CT showed a new tumor on my adrenal gland, but otherwise showed stability.  At a minimum, I will be getting Keytruda plus SRS (Cyberknife) given the minimal (though poorly located) progression, but I will look at all options.

                                                                                                                                                                                            _Paul_
                                                                                                                                                                                            Participant

                                                                                                                                                                                              So the runny nose was nothing to be alarmed about? What about the CT? Did it reveal a new met?

                                                                                                                                                                                              Hoping the answer to these is yes and no in that order!

                                                                                                                                                                                              stars
                                                                                                                                                                                              Participant

                                                                                                                                                                                                At last, home sweet home.Hope the cyberknife stuff all goes well and Keytruda kicks in, too. All the best, Mat!

                                                                                                                                                                                                stars
                                                                                                                                                                                                Participant

                                                                                                                                                                                                  At last, home sweet home.Hope the cyberknife stuff all goes well and Keytruda kicks in, too. All the best, Mat!

                                                                                                                                                                                                  stars
                                                                                                                                                                                                  Participant

                                                                                                                                                                                                    At last, home sweet home.Hope the cyberknife stuff all goes well and Keytruda kicks in, too. All the best, Mat!

                                                                                                                                                                                                  ed williams
                                                                                                                                                                                                  Participant

                                                                                                                                                                                                    I would be giving that Nurse a big hug the next time you see her!!! I hope you recover quickly from the surgery.Ed

                                                                                                                                                                                                    ed williams
                                                                                                                                                                                                    Participant

                                                                                                                                                                                                      I would be giving that Nurse a big hug the next time you see her!!! I hope you recover quickly from the surgery.Ed

                                                                                                                                                                                                        dfeng
                                                                                                                                                                                                        Participant

                                                                                                                                                                                                          Yeah. A running nose is kind of alarm under that situation. You are in good hands Mat!

                                                                                                                                                                                                          dfeng
                                                                                                                                                                                                          Participant

                                                                                                                                                                                                            Yeah. A running nose is kind of alarm under that situation. You are in good hands Mat!

                                                                                                                                                                                                            dfeng
                                                                                                                                                                                                            Participant

                                                                                                                                                                                                              Yeah. A running nose is kind of alarm under that situation. You are in good hands Mat!

                                                                                                                                                                                                            ed williams
                                                                                                                                                                                                            Participant

                                                                                                                                                                                                              I would be giving that Nurse a big hug the next time you see her!!! I hope you recover quickly from the surgery.Ed

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