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BRAF/MEK GREAT SCANS YEA:)!!!!!
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BRAF/MEK GREAT SCANS YEA:)!!!!!

› Forums › General Melanoma Community › BRAF/MEK GREAT SCANS YEA:)!!!!!

  • Post
    • April 30, 2011 at 9:47 am
    dawn dion
    Participant

      So after a very loooong day at Moffitt ( I know I don't have to tell anyone how that goes)  and a day and a half of just flat out to busy to think, I finally have time to sit down and post about my scans on Thursday.   I had my first set of scans since starting the GSK BRAF/MEK trial –  while I am not NED yet 🙁  there was a 20+% shrinkage 🙂 !   I WILL TAKE IT!   It made me very happy.    Thank you to all of you who posted your thoughts about my scanxiety, said prayers and gave me a patron saint to pray to (Mike

      So after a very loooong day at Moffitt ( I know I don't have to tell anyone how that goes)  and a day and a half of just flat out to busy to think, I finally have time to sit down and post about my scans on Thursday.   I had my first set of scans since starting the GSK BRAF/MEK trial –  while I am not NED yet 🙁  there was a 20+% shrinkage 🙂 !   I WILL TAKE IT!   It made me very happy.    Thank you to all of you who posted your thoughts about my scanxiety, said prayers and gave me a patron saint to pray to (Mike 🙂 ) – It helped me tremendously – especially when I was  sitting and waiting for her to come in and discuss the results.  Felt like I was two seconds from a massive heart attack – and she wonders why I have days when I need a anxiety pill.  Just wanted to share the news and again Thanks to everyone. 

    Viewing 15 reply threads
    • Replies
        • April 30, 2011 at 10:33 am
        FormerCaregiver
        Participant

          Congratulations on the great news! I am very happy for you!

          Frank from Australia

          • April 30, 2011 at 10:33 am
          FormerCaregiver
          Participant

            Congratulations on the great news! I am very happy for you!

            Frank from Australia

            • April 30, 2011 at 12:21 pm
            Carol Taylor
            Participant

              Wonderful Hallelujah moment Dawn!  Happy dance!

              Lord, thank you. Amen.

              • April 30, 2011 at 12:21 pm
              Carol Taylor
              Participant

                Wonderful Hallelujah moment Dawn!  Happy dance!

                Lord, thank you. Amen.

                • April 30, 2011 at 12:53 pm
                Carmon in NM
                Participant

                  That's wonderful news and I'm praying that it just keeps getting better and better!

                  • April 30, 2011 at 12:53 pm
                  Carmon in NM
                  Participant

                    That's wonderful news and I'm praying that it just keeps getting better and better!

                    • May 1, 2011 at 6:28 pm
                    deffk1105
                    Participant

                      Absolutely WONDERFUL news, Dawn!  Every time i'm at Moffitt i wonder if i'm passing you in the hall 🙂  I too received great news last week.  Total tumor masses shrunk by 50% with previous smaller nodules around my lungs completely disappeared!  YIPPEE for both of us – and continued success on this trial!!!

                      -Kate (Wisconsin)

                      • May 1, 2011 at 6:28 pm
                      deffk1105
                      Participant

                        Absolutely WONDERFUL news, Dawn!  Every time i'm at Moffitt i wonder if i'm passing you in the hall 🙂  I too received great news last week.  Total tumor masses shrunk by 50% with previous smaller nodules around my lungs completely disappeared!  YIPPEE for both of us – and continued success on this trial!!!

                        -Kate (Wisconsin)

                          • May 1, 2011 at 11:05 pm
                          dawn dion
                          Participant

                            Kate  that is absolutely wonderful!!!! I am soooooo happy for you!   I always wonder  the same thing – am  I passing Kate somewhere?- I even asked Trish if you where around when I was there!   I almost asked Lettie if you where a happy camper this week but I figured she couldn't tell me.  We are definetly going to have to try and coordinate!

                            • May 1, 2011 at 11:05 pm
                            dawn dion
                            Participant

                              Kate  that is absolutely wonderful!!!! I am soooooo happy for you!   I always wonder  the same thing – am  I passing Kate somewhere?- I even asked Trish if you where around when I was there!   I almost asked Lettie if you where a happy camper this week but I figured she couldn't tell me.  We are definetly going to have to try and coordinate!

                            • May 3, 2011 at 2:23 am
                            mike_nj
                            Participant

                              Dawn

                              Great news and I hope all continues in your favor.  See you in chat sometime again.

                              Mike from NJ

                              • May 3, 2011 at 2:23 am
                              mike_nj
                              Participant

                                Dawn

                                Great news and I hope all continues in your favor.  See you in chat sometime again.

                                Mike from NJ

                                • May 3, 2011 at 10:30 am
                                mrsmarilyn
                                Participant

                                  Hey Dawn!  That is grrrreat news!  I will let my brother Gary know!  Although he had a great reduction as well – he is not feeling good at all. Very fatiqued and high fever.  How are you feeling?

                                  Glad you made it through "scanxiety"!!!!!

                                   

                                  Congrats again!

                                  MrsMarilyn

                                  Sister of gary (stage Iv)

                                    • May 3, 2011 at 11:06 am
                                    dawn dion
                                    Participant

                                      Hello MrsMarilyn

                                      I am feeling well- Gary needs to discuss the fevers further with his drs.  They have told me that they are very common if it gets to be to much for him let them know.   As far as the fatigue goes I have my  moments – I REFUSE to let it get the better of me.  I still go non-stop with my kids.  I will say that I do get joint pain and muscle fatigue in my legs.  We have gone different places the last 3 or 4 weekends where I am walking quite a bit and I tend to feel it for the next 2 or 3 days.   I did relay the info to my Dr. and she asked me if it was interfering with my life – I said no but I am considering asking for something the next time I go to see her – I know on Sunday when we where out and about it was becoming difficult to walk.   In fact I would like to know if any of my BRAF/MEK friends are having the same problems?

                                      Lots of Luck to you

                                      Hugs and Smiles

                                      Dawn

                                      • May 3, 2011 at 12:04 pm
                                      Vermont_Donna
                                      Participant

                                        Great news Dawn! Scanxiety is very common around here, so glad you got through it without any panic attacks, etc. How old are your kids??

                                        Keep up the good work!

                                        Vermont_Donna, stage 3a

                                        • May 3, 2011 at 1:15 pm
                                        dawn dion
                                        Participant

                                          Hi Donna

                                          Thanks for the response – My girls are 6 and 8 and the light of my life.

                                          • May 3, 2011 at 1:15 pm
                                          dawn dion
                                          Participant

                                            Hi Donna

                                            Thanks for the response – My girls are 6 and 8 and the light of my life.

                                            • May 3, 2011 at 12:04 pm
                                            Vermont_Donna
                                            Participant

                                              Great news Dawn! Scanxiety is very common around here, so glad you got through it without any panic attacks, etc. How old are your kids??

                                              Keep up the good work!

                                              Vermont_Donna, stage 3a

                                              • May 3, 2011 at 11:06 am
                                              dawn dion
                                              Participant

                                                Hello MrsMarilyn

                                                I am feeling well- Gary needs to discuss the fevers further with his drs.  They have told me that they are very common if it gets to be to much for him let them know.   As far as the fatigue goes I have my  moments – I REFUSE to let it get the better of me.  I still go non-stop with my kids.  I will say that I do get joint pain and muscle fatigue in my legs.  We have gone different places the last 3 or 4 weekends where I am walking quite a bit and I tend to feel it for the next 2 or 3 days.   I did relay the info to my Dr. and she asked me if it was interfering with my life – I said no but I am considering asking for something the next time I go to see her – I know on Sunday when we where out and about it was becoming difficult to walk.   In fact I would like to know if any of my BRAF/MEK friends are having the same problems?

                                                Lots of Luck to you

                                                Hugs and Smiles

                                                Dawn

                                              • May 3, 2011 at 10:30 am
                                              mrsmarilyn
                                              Participant

                                                Hey Dawn!  That is grrrreat news!  I will let my brother Gary know!  Although he had a great reduction as well – he is not feeling good at all. Very fatiqued and high fever.  How are you feeling?

                                                Glad you made it through "scanxiety"!!!!!

                                                 

                                                Congrats again!

                                                MrsMarilyn

                                                Sister of gary (stage Iv)

                                                • May 3, 2011 at 10:16 pm
                                                CLPrice31
                                                Participant

                                                  Dawn,

                                                  I am SO excited to hear your great news! I am still rootin' for ya! 🙂

                                                  • May 3, 2011 at 10:16 pm
                                                  CLPrice31
                                                  Participant

                                                    Dawn,

                                                    I am SO excited to hear your great news! I am still rootin' for ya! 🙂

                                                    • May 3, 2011 at 11:01 pm
                                                    LynnLuc
                                                    Participant

                                                      Its wonderful news!

                                                      • May 3, 2011 at 11:01 pm
                                                      LynnLuc
                                                      Participant

                                                        Its wonderful news!

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