Any insight?

I haven't stopped yet, going to get more information on stopping tomorrow. I suppose I could keep taking it, but I think since the tumors are progressing, the Zelboraf is no longer working. And if it's not working theres no need to be taking it and having to deal with toxicity/side effects, as seldom as they are. I was told to hold onto the pills as I may start to take them again.

I haven't stopped yet, going to get more information on stopping tomorrow. I suppose I could keep taking it, but I think since the tumors are progressing, the Zelboraf is no longer working. And if it's not working theres no need to be taking it and having to deal with toxicity/side effects, as seldom as they are. I was told to hold onto the pills as I may start to take them again.

I haven't stopped yet, going to get more information on stopping tomorrow. I suppose I could keep taking it, but I think since the tumors are progressing, the Zelboraf is no longer working. And if it's not working theres no need to be taking it and having to deal with toxicity/side effects, as seldom as they are. I was told to hold onto the pills as I may start to take them again.

I've heard about  this and a couple other trials, for a bit is was the steroid i was on that was making me ineligible. but now, it's the brain, can't find many trials that take people with head issues and the ones that do, usually have a limit. Commonly one or three. I had 10 SRSed in February and now a few more are showing. :/

I've heard about  this and a couple other trials, for a bit is was the steroid i was on that was making me ineligible. but now, it's the brain, can't find many trials that take people with head issues and the ones that do, usually have a limit. Commonly one or three. I had 10 SRSed in February and now a few more are showing. :/

I've heard about  this and a couple other trials, for a bit is was the steroid i was on that was making me ineligible. but now, it's the brain, can't find many trials that take people with head issues and the ones that do, usually have a limit. Commonly one or three. I had 10 SRSed in February and now a few more are showing. :/

Thanks for the info, I can't say I've fully dedicated myself to any of these diets, but I have and do continue to eat pretty healthy, I actually work in an all Organic Vegetarian Marketplace here in San Diego, that Charlotte Gerson frequents. Two of my coworkers worked for her personally. I've been a cook in our deli/resturant area for almost seven years. I agree that the food we eat plays a huge role in our healing capabilities. I've tried this and that, Gerson, macrobiotic, vegetarian, paleo… some left me feeling better than others, but it can be a little stressful. Over the years I've kind of developed my own diet now that I feel works best for me. Adding or subtracting certain elements as I learn and listen to my body, eating what leaves me feeling happy and healthy.

Hi Mike, I called imaging about the PETCT but apparently they going to call me and maybe waiting for the Drs order? Maybe the docs wanted to see the MRI first and now since they're focusing on the Brain they're waiting on the PETCT? Not sure, but I am seeing the radiation oncologist first thing in the morning, in person. Hopefully she'll tell me the new ones are SRS-able and have some more answers. She works in the same building as the oncologist who has me on Zelboraf and should be ordering the PETCT. Dr Daniels' my main guy, I did IL2 and Yervoy with him, we've exchanged a few emails this past day and he should be in contact with me and the other doc. Hopefully a new "plan" will fall into place over the next few days. But if possible, SRSing my head and trying IL2 again under Dr Daniels, with or without being on Z sounds good. At this point just about any "plan" sounds good if you know what I mean.

Hi Mike, I called imaging about the PETCT but apparently they going to call me and maybe waiting for the Drs order? Maybe the docs wanted to see the MRI first and now since they're focusing on the Brain they're waiting on the PETCT? Not sure, but I am seeing the radiation oncologist first thing in the morning, in person. Hopefully she'll tell me the new ones are SRS-able and have some more answers. She works in the same building as the oncologist who has me on Zelboraf and should be ordering the PETCT. Dr Daniels' my main guy, I did IL2 and Yervoy with him, we've exchanged a few emails this past day and he should be in contact with me and the other doc. Hopefully a new "plan" will fall into place over the next few days. But if possible, SRSing my head and trying IL2 again under Dr Daniels, with or without being on Z sounds good. At this point just about any "plan" sounds good if you know what I mean.

Hi Mike, I called imaging about the PETCT but apparently they going to call me and maybe waiting for the Drs order? Maybe the docs wanted to see the MRI first and now since they're focusing on the Brain they're waiting on the PETCT? Not sure, but I am seeing the radiation oncologist first thing in the morning, in person. Hopefully she'll tell me the new ones are SRS-able and have some more answers. She works in the same building as the oncologist who has me on Zelboraf and should be ordering the PETCT. Dr Daniels' my main guy, I did IL2 and Yervoy with him, we've exchanged a few emails this past day and he should be in contact with me and the other doc. Hopefully a new "plan" will fall into place over the next few days. But if possible, SRSing my head and trying IL2 again under Dr Daniels, with or without being on Z sounds good. At this point just about any "plan" sounds good if you know what I mean.

Hi Gene, thanks for your concern. I agree there's is an over abundance of carcinogens and chemicals in processed foods and lifestyles. I understand all the debates between diets, and doctors, and conspiracies, and big pharm, and financial interest. These were the majority of conversations I listened to everyday between multiple coworkers in the kitchen I work at, mainly because I work in a vegetarian health food co-op, so they're hot topics of our store and customers. Since this medical situation started, the information was coming at me from everyone. So I paid attention, to understand, and I do, more than ever I think. But personally I don't think any side is completely right or wrong. So I continue to just go with my gut, on all aspects. I eat extremely healthy, but sometimes I eat pizza, or have a doughnut. I've met doctors who agree with the importance of diet and some who don't. I've met doctor's that I felt good about and some I felt skeptical about. I think all side's intentions are great, but some have flaws and could maybe learn from each other if they'd take the time. I've feel I've benefited sooo much from doctor's care and also my diet and lifestyle. I think that's where potential cures may lie. Some of this and some of that. But I can't say for sure, it's just my theory, right in the middle of the grey area.   

I do agree with you that I don't think "the sun" caused my melanoma. Luckily none of my doctors do either. They all seem to agree it was "the burn". Being born and growing up in Tucson AZ, I spent my whole life in the sun, I was always fine because when my skin felt hot, I'd get in the shade. But in the summer of 2005, while helping a friend with his grandmothers yard work, I foolishly thought it would be safe to get a bit burnt, work without a shirt on for 6 hours, and get my brown arms to match my white torso. Come the next day I had what was described as a second degree sunburn all over my upper back. Indescribable pain, dozens of dripping blisters, inability to move either arm in any direction for days. Then in 2007 I felt an new/odd mole right in the middle of where the burn was. I read up and realized with my fair skin, blond hair, blue eyes and that burn incident. This could be bad, sure enough it was. It makes undeniable sense. Sun's great for you, but too much of anything, even good things, can be terrible for you. I brought it on myself. I just didn't know, didn't know what skin cancer was or how people got it. Was never taught and was completely naive. "Had I known than what I know now…" is something I commonly think, but try not to dwell on it too much. Best I can do is keep moving forward, try to educate and help get awareness out there, using myself as an example. And encourage people to not make my mistake. I say eat well, feel good, take care of yourself, listen to your body, love the sun, take it in, it nourishes most every living thing on this planet. Just be careful, because like any living thing, too much or too little of it, can be… can't think of the right word.. just "not good".

From what I've been told over the years, is that Melanoma seems to specifically come from extremely high doses of UV rays that cause burns and reddening of the skin. Such as laying at the beach for too long midday or going to tanning booths, and carcinomas seem to come from too much sun in general but not necessarily burns. But I don't actually know, it's just what I've been told.

From what I've been told over the years, is that Melanoma seems to specifically come from extremely high doses of UV rays that cause burns and reddening of the skin. Such as laying at the beach for too long midday or going to tanning booths, and carcinomas seem to come from too much sun in general but not necessarily burns. But I don't actually know, it's just what I've been told.

From what I've been told over the years, is that Melanoma seems to specifically come from extremely high doses of UV rays that cause burns and reddening of the skin. Such as laying at the beach for too long midday or going to tanning booths, and carcinomas seem to come from too much sun in general but not necessarily burns. But I don't actually know, it's just what I've been told.

Hi Gene, thanks for your concern. I agree there's is an over abundance of carcinogens and chemicals in processed foods and lifestyles. I understand all the debates between diets, and doctors, and conspiracies, and big pharm, and financial interest. These were the majority of conversations I listened to everyday between multiple coworkers in the kitchen I work at, mainly because I work in a vegetarian health food co-op, so they're hot topics of our store and customers. Since this medical situation started, the information was coming at me from everyone. So I paid attention, to understand, and I do, more than ever I think. But personally I don't think any side is completely right or wrong. So I continue to just go with my gut, on all aspects. I eat extremely healthy, but sometimes I eat pizza, or have a doughnut. I've met doctors who agree with the importance of diet and some who don't. I've met doctor's that I felt good about and some I felt skeptical about. I think all side's intentions are great, but some have flaws and could maybe learn from each other if they'd take the time. I've feel I've benefited sooo much from doctor's care and also my diet and lifestyle. I think that's where potential cures may lie. Some of this and some of that. But I can't say for sure, it's just my theory, right in the middle of the grey area.   

I do agree with you that I don't think "the sun" caused my melanoma. Luckily none of my doctors do either. They all seem to agree it was "the burn". Being born and growing up in Tucson AZ, I spent my whole life in the sun, I was always fine because when my skin felt hot, I'd get in the shade. But in the summer of 2005, while helping a friend with his grandmothers yard work, I foolishly thought it would be safe to get a bit burnt, work without a shirt on for 6 hours, and get my brown arms to match my white torso. Come the next day I had what was described as a second degree sunburn all over my upper back. Indescribable pain, dozens of dripping blisters, inability to move either arm in any direction for days. Then in 2007 I felt an new/odd mole right in the middle of where the burn was. I read up and realized with my fair skin, blond hair, blue eyes and that burn incident. This could be bad, sure enough it was. It makes undeniable sense. Sun's great for you, but too much of anything, even good things, can be terrible for you. I brought it on myself. I just didn't know, didn't know what skin cancer was or how people got it. Was never taught and was completely naive. "Had I known than what I know now…" is something I commonly think, but try not to dwell on it too much. Best I can do is keep moving forward, try to educate and help get awareness out there, using myself as an example. And encourage people to not make my mistake. I say eat well, feel good, take care of yourself, listen to your body, love the sun, take it in, it nourishes most every living thing on this planet. Just be careful, because like any living thing, too much or too little of it, can be… can't think of the right word.. just "not good".

Hi Gene, thanks for your concern. I agree there's is an over abundance of carcinogens and chemicals in processed foods and lifestyles. I understand all the debates between diets, and doctors, and conspiracies, and big pharm, and financial interest. These were the majority of conversations I listened to everyday between multiple coworkers in the kitchen I work at, mainly because I work in a vegetarian health food co-op, so they're hot topics of our store and customers. Since this medical situation started, the information was coming at me from everyone. So I paid attention, to understand, and I do, more than ever I think. But personally I don't think any side is completely right or wrong. So I continue to just go with my gut, on all aspects. I eat extremely healthy, but sometimes I eat pizza, or have a doughnut. I've met doctors who agree with the importance of diet and some who don't. I've met doctor's that I felt good about and some I felt skeptical about. I think all side's intentions are great, but some have flaws and could maybe learn from each other if they'd take the time. I've feel I've benefited sooo much from doctor's care and also my diet and lifestyle. I think that's where potential cures may lie. Some of this and some of that. But I can't say for sure, it's just my theory, right in the middle of the grey area.   

I do agree with you that I don't think "the sun" caused my melanoma. Luckily none of my doctors do either. They all seem to agree it was "the burn". Being born and growing up in Tucson AZ, I spent my whole life in the sun, I was always fine because when my skin felt hot, I'd get in the shade. But in the summer of 2005, while helping a friend with his grandmothers yard work, I foolishly thought it would be safe to get a bit burnt, work without a shirt on for 6 hours, and get my brown arms to match my white torso. Come the next day I had what was described as a second degree sunburn all over my upper back. Indescribable pain, dozens of dripping blisters, inability to move either arm in any direction for days. Then in 2007 I felt an new/odd mole right in the middle of where the burn was. I read up and realized with my fair skin, blond hair, blue eyes and that burn incident. This could be bad, sure enough it was. It makes undeniable sense. Sun's great for you, but too much of anything, even good things, can be terrible for you. I brought it on myself. I just didn't know, didn't know what skin cancer was or how people got it. Was never taught and was completely naive. "Had I known than what I know now…" is something I commonly think, but try not to dwell on it too much. Best I can do is keep moving forward, try to educate and help get awareness out there, using myself as an example. And encourage people to not make my mistake. I say eat well, feel good, take care of yourself, listen to your body, love the sun, take it in, it nourishes most every living thing on this planet. Just be careful, because like any living thing, too much or too little of it, can be… can't think of the right word.. just "not good".

Thanks for the info, I can't say I've fully dedicated myself to any of these diets, but I have and do continue to eat pretty healthy, I actually work in an all Organic Vegetarian Marketplace here in San Diego, that Charlotte Gerson frequents. Two of my coworkers worked for her personally. I've been a cook in our deli/resturant area for almost seven years. I agree that the food we eat plays a huge role in our healing capabilities. I've tried this and that, Gerson, macrobiotic, vegetarian, paleo… some left me feeling better than others, but it can be a little stressful. Over the years I've kind of developed my own diet now that I feel works best for me. Adding or subtracting certain elements as I learn and listen to my body, eating what leaves me feeling happy and healthy.

Thanks for the info, I can't say I've fully dedicated myself to any of these diets, but I have and do continue to eat pretty healthy, I actually work in an all Organic Vegetarian Marketplace here in San Diego, that Charlotte Gerson frequents. Two of my coworkers worked for her personally. I've been a cook in our deli/resturant area for almost seven years. I agree that the food we eat plays a huge role in our healing capabilities. I've tried this and that, Gerson, macrobiotic, vegetarian, paleo… some left me feeling better than others, but it can be a little stressful. Over the years I've kind of developed my own diet now that I feel works best for me. Adding or subtracting certain elements as I learn and listen to my body, eating what leaves me feeling happy and healthy.