› Forums › General Melanoma Community › Anonymous posting needs to be changed
- This topic has 38 replies, 9 voices, and was last updated 12 years, 7 months ago by jag.
- Post
-
- August 14, 2011 at 10:13 pm
I don't believe writers should have the choice of posting anonymously, as many times it is only to write rude and controversial comments. Please join me in writing to the MRF to ask them to require everyone to use a profile to post.
I wrote them at the following link:
http://www.melanoma.org/learn-more/contact-us?sid=1404
I will not be responding to any posts on this link. Yes, that's to you, Mr. Anonymous.
I don't believe writers should have the choice of posting anonymously, as many times it is only to write rude and controversial comments. Please join me in writing to the MRF to ask them to require everyone to use a profile to post.
I wrote them at the following link:
http://www.melanoma.org/learn-more/contact-us?sid=1404
I will not be responding to any posts on this link. Yes, that's to you, Mr. Anonymous.
- Replies
-
-
- August 14, 2011 at 10:52 pm
It is called Freedom of Speech.
Prohibiting people from expressing their views and opinions is called censorship and it's being practised in communistic dictatorships like China and North Korea.
This is a democratic country where people are FREE to express their view and opinions.You can start reading the US constitution as a begining.
The fact that you personally do not like them does not make them "offensive" or "controversial".
Good Luck,
-
- August 14, 2011 at 11:07 pm
Funny you feel this way since you are trying to get the posts removed from the forum that you find "offensive" or "controversial". Seems to me you are being a little hypocritcal.
And by the way, your opinion on interferon is valid, but when someone makes a choice to do it we should be supportive of that decision. It is a tough decision to make and no one needs to be reminded about the statistics once they decide on treatment. I'm pretty sure we have all looked at the research and some of us feel doing something even if it's a long shot is better than doing nothing.
Amy S. in Michigan
-
- August 14, 2011 at 11:20 pm
I am not sure what "removal" you are implying about.
I made a point that specific postings should be posted to the appropriate already created for that purpose section.
This is not exactly "removal".
You can be supportive of Interferon.It is your right.
I am not.
So where did you say the problem is?
-
- August 14, 2011 at 11:20 pm
I am not sure what "removal" you are implying about.
I made a point that specific postings should be posted to the appropriate already created for that purpose section.
This is not exactly "removal".
You can be supportive of Interferon.It is your right.
I am not.
So where did you say the problem is?
-
- August 14, 2011 at 11:26 pm
Once again:
You have no inherent right to "freedom of speech" on an internet forum. The First Amendment does not mean you can say anything you want, anywhere you want, with no consequences whatsoever.
It means that the government can't tell you to shut up and that you can expound upon your political beliefs all the live-long day without fear of government reprisal.
It does not mean that no one else can tell you to shut up. So shut up!
-
- August 14, 2011 at 11:34 pm
-
- August 15, 2011 at 12:19 am
I hope this isn't a personal attack on me assuming that I'm the anonymous who posted the comment after mine. I have only posted anonymously once when I had a personal question to ask not because I wanted to personally attack people on this board which, by the way, you have done many times.
I am happily married 21 years thank you. When I have something to say I have the guts to post using my account.
I understand how upsetting it is to read about the losses on this site. I'll admit there are times I have to stop myself from coming here because it's so hard to face the reality of this disease. When I get feeling like that I stay away. If I can't read another post about somone losing their fight, I don't read it. It's a choice we make to come here. We read what we want and if it gets to be too much, we stop reading. Pretty simple really.
Amy S. in Michigan
-
- August 15, 2011 at 12:19 am
I hope this isn't a personal attack on me assuming that I'm the anonymous who posted the comment after mine. I have only posted anonymously once when I had a personal question to ask not because I wanted to personally attack people on this board which, by the way, you have done many times.
I am happily married 21 years thank you. When I have something to say I have the guts to post using my account.
I understand how upsetting it is to read about the losses on this site. I'll admit there are times I have to stop myself from coming here because it's so hard to face the reality of this disease. When I get feeling like that I stay away. If I can't read another post about somone losing their fight, I don't read it. It's a choice we make to come here. We read what we want and if it gets to be too much, we stop reading. Pretty simple really.
Amy S. in Michigan
-
- August 15, 2011 at 12:31 am
Amy,
I am just saying a time comes when enough is enough in terms of the quantity of the publicised grieving and multiple postings over the same event and /some/relatives maybe should try to make an attemp to move on for their own sake and the sake of the melanoma patients on this website.Do not mean to be cruel but it is a fine balancing act where every aspect should be carefully considered,including the sentiments of the still surviving melanoma patients.I hope you agree-or somewhat.
-
- August 15, 2011 at 12:31 am
Amy,
I am just saying a time comes when enough is enough in terms of the quantity of the publicised grieving and multiple postings over the same event and /some/relatives maybe should try to make an attemp to move on for their own sake and the sake of the melanoma patients on this website.Do not mean to be cruel but it is a fine balancing act where every aspect should be carefully considered,including the sentiments of the still surviving melanoma patients.I hope you agree-or somewhat.
-
- August 14, 2011 at 11:34 pm
-
- August 14, 2011 at 11:26 pm
Once again:
You have no inherent right to "freedom of speech" on an internet forum. The First Amendment does not mean you can say anything you want, anywhere you want, with no consequences whatsoever.
It means that the government can't tell you to shut up and that you can expound upon your political beliefs all the live-long day without fear of government reprisal.
It does not mean that no one else can tell you to shut up. So shut up!
-
- August 14, 2011 at 11:07 pm
Funny you feel this way since you are trying to get the posts removed from the forum that you find "offensive" or "controversial". Seems to me you are being a little hypocritcal.
And by the way, your opinion on interferon is valid, but when someone makes a choice to do it we should be supportive of that decision. It is a tough decision to make and no one needs to be reminded about the statistics once they decide on treatment. I'm pretty sure we have all looked at the research and some of us feel doing something even if it's a long shot is better than doing nothing.
Amy S. in Michigan
-
- August 14, 2011 at 11:22 pm
You have no inherent right to "freedom of speech" on an internet forum. The First Amendment does not mean you can say anything you want, anywhere you want, with no consequences whatsoever.
It means that the government can't tell you to shut up and that you can expound upon your political beliefs all the live-long day without fear of government reprisal.
MRF Bulletin Board Policies
No personal attacks of any kind will be tolerated
Slanderous posts impugning the character or ability of any health care provider are not allowed.
Slanderous posts impugning the care received or service provided by any health care institution are not allowed.
No abusive or obscene language will be tolerated.
No commercial posts of any kind are allowed.
Posts in violation of the above will be removed.
You need to be removed as you do not follow the rules of the forum and respect the other group members.
-
- August 14, 2011 at 11:22 pm
You have no inherent right to "freedom of speech" on an internet forum. The First Amendment does not mean you can say anything you want, anywhere you want, with no consequences whatsoever.
It means that the government can't tell you to shut up and that you can expound upon your political beliefs all the live-long day without fear of government reprisal.
MRF Bulletin Board Policies
No personal attacks of any kind will be tolerated
Slanderous posts impugning the character or ability of any health care provider are not allowed.
Slanderous posts impugning the care received or service provided by any health care institution are not allowed.
No abusive or obscene language will be tolerated.
No commercial posts of any kind are allowed.
Posts in violation of the above will be removed.
You need to be removed as you do not follow the rules of the forum and respect the other group members.
-
- August 14, 2011 at 11:29 pm
"No personal attacks of any kind will be tolerated
Slanderous posts impugning the character or ability of any health care provider are not allowed.
Slanderous posts impugning the care received or service provided by any health care institution are not allowed.
No abusive or obscene language will be tolerated.
No commercial posts of any kind are allowed.
Posts in violation of the above will be removed.
You need to be removed as you do not follow the rules of the forum and respect the other group members. ""
Well apparently none of those infringements were identified since all anonymous postings were allowed .Even the ones about "booze" and "hit the road ".
Don't you agree?
-
- August 14, 2011 at 11:29 pm
"No personal attacks of any kind will be tolerated
Slanderous posts impugning the character or ability of any health care provider are not allowed.
Slanderous posts impugning the care received or service provided by any health care institution are not allowed.
No abusive or obscene language will be tolerated.
No commercial posts of any kind are allowed.
Posts in violation of the above will be removed.
You need to be removed as you do not follow the rules of the forum and respect the other group members. ""
Well apparently none of those infringements were identified since all anonymous postings were allowed .Even the ones about "booze" and "hit the road ".
Don't you agree?
-
- August 15, 2011 at 3:16 am
-
- August 15, 2011 at 3:16 am
-
- August 14, 2011 at 10:52 pm
It is called Freedom of Speech.
Prohibiting people from expressing their views and opinions is called censorship and it's being practised in communistic dictatorships like China and North Korea.
This is a democratic country where people are FREE to express their view and opinions.You can start reading the US constitution as a begining.
The fact that you personally do not like them does not make them "offensive" or "controversial".
Good Luck,
-
- August 14, 2011 at 11:37 pm
Thank you MelanomaMom for the suggestion and the link, which I have followed and made the same request. This is not against Freedom of Speech – on the contrary, it is requesting that people stand behind the posts that they make to encourage more interesting, informative, supportive and understanding messages.
Elisa
-
- August 14, 2011 at 11:48 pm
Elisa,
It is a good request ,I fully support you.
So next time hopefully we will all know which people are behind personal attacks of the sort of "get off the booze","hit the road" and "shut up"…..totally unacceptable.
I made a similar request together with the request all the obituaries/tributes to be directed to the proper section of the website.
-
- August 14, 2011 at 11:48 pm
Elisa,
It is a good request ,I fully support you.
So next time hopefully we will all know which people are behind personal attacks of the sort of "get off the booze","hit the road" and "shut up"…..totally unacceptable.
I made a similar request together with the request all the obituaries/tributes to be directed to the proper section of the website.
-
- August 14, 2011 at 11:37 pm
Thank you MelanomaMom for the suggestion and the link, which I have followed and made the same request. This is not against Freedom of Speech – on the contrary, it is requesting that people stand behind the posts that they make to encourage more interesting, informative, supportive and understanding messages.
Elisa
-
- August 15, 2011 at 12:26 am
Anonymous posting was put there for a reason. There are times when anonymous is exactly what is needed. If you want to post a sensitive question but you know your caregiver also reads… if the question is embarrasing and you'd prefer not to use your "regular" name. There are many very valid reasons for posting anonymously. Since everyone registers to use this board, the MRF knows WHO each anonymous is posting – even if their name doesn't show. The anonymous posting was discussed by many prior to including it, and the pros outweighed the cons. I haven't ready any of the supposed offensive posts, but the MRF does know who everyone is and can ban or remove any inappropriate posts.
Janner
-
- August 15, 2011 at 12:26 am
Anonymous posting was put there for a reason. There are times when anonymous is exactly what is needed. If you want to post a sensitive question but you know your caregiver also reads… if the question is embarrasing and you'd prefer not to use your "regular" name. There are many very valid reasons for posting anonymously. Since everyone registers to use this board, the MRF knows WHO each anonymous is posting – even if their name doesn't show. The anonymous posting was discussed by many prior to including it, and the pros outweighed the cons. I haven't ready any of the supposed offensive posts, but the MRF does know who everyone is and can ban or remove any inappropriate posts.
Janner
-
- August 15, 2011 at 12:40 am
Only, Janner, you conveniently omitted to mention that there were quite a bit offensive postings by quite a few DIFFERRENT Anon's……not only one……and yes, MRF will know who exactly these people are and hopefully ban them from posting here in the future.
Which is not a big deal, really as it is not the end of the world.There are more important things in life that a website you are banned from.
Have a Good night.
-
- August 15, 2011 at 12:40 am
Only, Janner, you conveniently omitted to mention that there were quite a bit offensive postings by quite a few DIFFERRENT Anon's……not only one……and yes, MRF will know who exactly these people are and hopefully ban them from posting here in the future.
Which is not a big deal, really as it is not the end of the world.There are more important things in life that a website you are banned from.
Have a Good night.
-
- August 15, 2011 at 1:00 am
Give it a rest. This is not some social networking site for writers, nor is it a site that people overshare mindless and insignificant details of their life…………………..this is, always has been, and I do hope will always be, an online melanoma cancer support site where the good, the bad and the ugly of dealing with melanoma are openly shared for the benefit and knowledge of all who come here.
Trust me when I tell you I am abrupt, opinionated and unyielding in certain aspects of melanoma……………..but I have earned that. Trust me also that I have taken many public spankings here because of that over the years; not only from posters, but to the Boardroom of the MRF. Some spankings were well deserved, some were honestly just a difference of opinion, style, passion and substance. But I nor anyone else was ever denied a voice.
Melanoma, and the reaction to it is often ugly, but it is a path unknown where we each try to leave our own trail as a possible guidepost on the map for others to find some direction.
I've been to many melanoma suppot groups in real life and have seen many people who chose not to give their name, but there was no mistaking their story
So, get over it, if you use the internet as an outlet, you will, sooner or later, get flamed for your words; that is hardly a reason to behave like a child, throw out your lip in a big pout and refuse to participate in a group activity simply because you can't have your way and strike out for some devine intervention that supports your hurt feelings.
It is just not about you, so deal with it.
Again, take what you want and leave the rest.
Charlie S
-
- August 15, 2011 at 1:00 am
Give it a rest. This is not some social networking site for writers, nor is it a site that people overshare mindless and insignificant details of their life…………………..this is, always has been, and I do hope will always be, an online melanoma cancer support site where the good, the bad and the ugly of dealing with melanoma are openly shared for the benefit and knowledge of all who come here.
Trust me when I tell you I am abrupt, opinionated and unyielding in certain aspects of melanoma……………..but I have earned that. Trust me also that I have taken many public spankings here because of that over the years; not only from posters, but to the Boardroom of the MRF. Some spankings were well deserved, some were honestly just a difference of opinion, style, passion and substance. But I nor anyone else was ever denied a voice.
Melanoma, and the reaction to it is often ugly, but it is a path unknown where we each try to leave our own trail as a possible guidepost on the map for others to find some direction.
I've been to many melanoma suppot groups in real life and have seen many people who chose not to give their name, but there was no mistaking their story
So, get over it, if you use the internet as an outlet, you will, sooner or later, get flamed for your words; that is hardly a reason to behave like a child, throw out your lip in a big pout and refuse to participate in a group activity simply because you can't have your way and strike out for some devine intervention that supports your hurt feelings.
It is just not about you, so deal with it.
Again, take what you want and leave the rest.
Charlie S
-
- August 15, 2011 at 3:13 pm
Melanoma Mom,
You may not like the anon option, but it is on this board for a reason.
While you have not experienced the pain or embarrasment of certain melanoma issues yourself, you whould try for a moment to put yourself in the shoes of another.
Perhaps that is a patient who has odd thing happening in their private parts, or perhaps it is to simply get advice on something concerning melanoma that you do not want others to know is you.
I have posted anon many times to ask questions and get advice, simply because I do not want my melanoma friends to know it is me asking.
I understand that many times the anon option is used in not so positive ways, but you can rest assured, the MRF will not take that option away.
I sincerely hope that you have the heart to realize not everyone who posts as anon is attempting to verbally hurt another melanoma patient.
-
- August 15, 2011 at 3:13 pm
Melanoma Mom,
You may not like the anon option, but it is on this board for a reason.
While you have not experienced the pain or embarrasment of certain melanoma issues yourself, you whould try for a moment to put yourself in the shoes of another.
Perhaps that is a patient who has odd thing happening in their private parts, or perhaps it is to simply get advice on something concerning melanoma that you do not want others to know is you.
I have posted anon many times to ask questions and get advice, simply because I do not want my melanoma friends to know it is me asking.
I understand that many times the anon option is used in not so positive ways, but you can rest assured, the MRF will not take that option away.
I sincerely hope that you have the heart to realize not everyone who posts as anon is attempting to verbally hurt another melanoma patient.
-
- August 15, 2011 at 4:08 pm
Melanoma Mom, I am very sorry that I am losing my mind right now and have a pyschological disorder. I will seek counseling immediately for this treatment. I am also very sorry to all of the other board members who I have upset. I am about to have a meltdown because my partner just left me and I have no friends. Please forgive me for being so nasty like this. Please, Please, Please.
-
- August 15, 2011 at 4:08 pm
Melanoma Mom, I am very sorry that I am losing my mind right now and have a pyschological disorder. I will seek counseling immediately for this treatment. I am also very sorry to all of the other board members who I have upset. I am about to have a meltdown because my partner just left me and I have no friends. Please forgive me for being so nasty like this. Please, Please, Please.
-
- You must be logged in to reply to this topic.