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22 months NED thanks to Yervoy

Forums General Melanoma Community 22 months NED thanks to Yervoy

  • Post
    Vermont_Donna
    Participant

      Hi everyone,

      I havent checked in here in a long while…I am 22 months NED after 4 doses of 3mg/kg Yervoy in a clinical trial. I feel so blessed after many treatments and many side effects endured over the last six years. I am however dealing with some cardiac issues (unrelated to melanoma) after having an acute stress (takot subo cardiomyopathy) heart attack in April of this year. i am no longer working and cardiologist's orders are to take better care of me!

       I hope to have time now to check in here on a more regular basis!

      Happy Holidays!

      Hi everyone,

      I havent checked in here in a long while…I am 22 months NED after 4 doses of 3mg/kg Yervoy in a clinical trial. I feel so blessed after many treatments and many side effects endured over the last six years. I am however dealing with some cardiac issues (unrelated to melanoma) after having an acute stress (takot subo cardiomyopathy) heart attack in April of this year. i am no longer working and cardiologist's orders are to take better care of me!

       I hope to have time now to check in here on a more regular basis!

      Happy Holidays!

      Vermont_Donna, stage sa

    Viewing 29 reply threads
    • Replies
        audgator
        Participant

          Very nice to hear, Donna. On this board we maybe hear too often from Yervoy non-responders like me.  I, and I assume "we", are heppy for your success.  Have a happy & healthy new year.   Dan

          audgator
          Participant

            Very nice to hear, Donna. On this board we maybe hear too often from Yervoy non-responders like me.  I, and I assume "we", are heppy for your success.  Have a happy & healthy new year.   Dan

            audgator
            Participant

              Very nice to hear, Donna. On this board we maybe hear too often from Yervoy non-responders like me.  I, and I assume "we", are heppy for your success.  Have a happy & healthy new year.   Dan

              Tina D
              Participant

                Donna,

                Thank you for posting this good news about your continued NED status! I am getting ready to start ipi next week and find this so encouraging. I hope your cardiac issues settle down now that you are not working, and better able to get the care and rest you need.

                Wishing you a very long lifetime with your buddy, NED ๐Ÿ™‚

                Tina

                Tina D
                Participant

                  Donna,

                  Thank you for posting this good news about your continued NED status! I am getting ready to start ipi next week and find this so encouraging. I hope your cardiac issues settle down now that you are not working, and better able to get the care and rest you need.

                  Wishing you a very long lifetime with your buddy, NED ๐Ÿ™‚

                  Tina

                  Tina D
                  Participant

                    Donna,

                    Thank you for posting this good news about your continued NED status! I am getting ready to start ipi next week and find this so encouraging. I hope your cardiac issues settle down now that you are not working, and better able to get the care and rest you need.

                    Wishing you a very long lifetime with your buddy, NED ๐Ÿ™‚

                    Tina

                    JakeinNY
                    Participant

                      Congratulations Donna!!!

                      JakeinNY
                      Participant

                        Congratulations Donna!!!

                        JakeinNY
                        Participant

                          Congratulations Donna!!!

                          jim Breitfeller
                          Participant

                            Congratulations Donna!! I hope to hear from in three years from now,  5 yrs, NED .

                             

                            Best regards,

                             

                            Jimmy B

                            jim Breitfeller
                            Participant

                              Congratulations Donna!! I hope to hear from in three years from now,  5 yrs, NED .

                               

                              Best regards,

                               

                              Jimmy B

                                NYKaren
                                Participant
                                  I’ve been wondering how you’re doing, Donna.
                                  Congratulations on your great news, and I’m glad you’ll be able to take better care now.
                                  Stay well,
                                  Karen
                                  NYKaren
                                  Participant
                                    I’ve been wondering how you’re doing, Donna.
                                    Congratulations on your great news, and I’m glad you’ll be able to take better care now.
                                    Stay well,
                                    Karen
                                    NYKaren
                                    Participant
                                      I’ve been wondering how you’re doing, Donna.
                                      Congratulations on your great news, and I’m glad you’ll be able to take better care now.
                                      Stay well,
                                      Karen
                                    jim Breitfeller
                                    Participant

                                      Congratulations Donna!! I hope to hear from in three years from now,  5 yrs, NED .

                                       

                                      Best regards,

                                       

                                      Jimmy B

                                      Linny
                                      Participant

                                        Hi Donna, thank you for sharing your good news. It's nice to hear positive Yervoy stories. Sorry to hear about your cardiac issues. I hope that whatever was behind the latter has been resolved never to show up again. Ditto for the melanoma.

                                        Linny
                                        Participant

                                          Hi Donna, thank you for sharing your good news. It's nice to hear positive Yervoy stories. Sorry to hear about your cardiac issues. I hope that whatever was behind the latter has been resolved never to show up again. Ditto for the melanoma.

                                          Linny
                                          Participant

                                            Hi Donna, thank you for sharing your good news. It's nice to hear positive Yervoy stories. Sorry to hear about your cardiac issues. I hope that whatever was behind the latter has been resolved never to show up again. Ditto for the melanoma.

                                            Ali
                                            Participant

                                              Awesome!  Thanks for the update, good to hear positive IPI results!

                                              Ali
                                              Participant

                                                Awesome!  Thanks for the update, good to hear positive IPI results!

                                                Ali
                                                Participant

                                                  Awesome!  Thanks for the update, good to hear positive IPI results!

                                                  awillett1991
                                                  Participant
                                                    Congrats Donna and thanks for posting this encouraging status! I needed to hear this, just finished Yervoy 2 weeks ago and the last week has been a rough one.
                                                    awillett1991
                                                    Participant
                                                      Congrats Donna and thanks for posting this encouraging status! I needed to hear this, just finished Yervoy 2 weeks ago and the last week has been a rough one.
                                                      awillett1991
                                                      Participant
                                                        Congrats Donna and thanks for posting this encouraging status! I needed to hear this, just finished Yervoy 2 weeks ago and the last week has been a rough one.
                                                        Rocco
                                                        Participant

                                                          Happy Holidays Donna!

                                                          Glad to hear that you too are still NED thanks to Yervoy!  Sorry to hear of your cardiac issues.  Get  some rest – you've certainly earned it!

                                                          -Rocco

                                                          Ned since 2009 thanks to MDX-010 (Yervoy) trial.

                                                          Rocco
                                                          Participant

                                                            Happy Holidays Donna!

                                                            Glad to hear that you too are still NED thanks to Yervoy!  Sorry to hear of your cardiac issues.  Get  some rest – you've certainly earned it!

                                                            -Rocco

                                                            Ned since 2009 thanks to MDX-010 (Yervoy) trial.

                                                            Rocco
                                                            Participant

                                                              Happy Holidays Donna!

                                                              Glad to hear that you too are still NED thanks to Yervoy!  Sorry to hear of your cardiac issues.  Get  some rest – you've certainly earned it!

                                                              -Rocco

                                                              Ned since 2009 thanks to MDX-010 (Yervoy) trial.

                                                              Rocco
                                                              Participant

                                                                Happy Holidays Donna!

                                                                Glad to hear that you too are still NED thanks to Yervoy!  Sorry to hear of your cardiac issues.  Get  some rest – you've certainly earned it!

                                                                -Rocco

                                                                Ned since 2009 thanks to MDX-010 (Yervoy) trial.

                                                                  Snickers60
                                                                  Participant

                                                                    Way to go, DONNA !!!!   This is encouaging to all of us, anytime we read someone is NED on any treatment.   KEEP ON KEEPING ON !   Such good news – thanks for sharing.

                                                                    (P.S.   My Wayne has been NED for 7 months and had cardiac issues too.   Had one artery 95% blocked and they just put in a stent a few weeks ago.   Just goes to show you that other things CAN still happen.   HOPING you get great help and complete healing in that area too).   

                                                                    Nancy (devoted wife of 3 X Warrior Wayne)  <><

                                                                    Snickers60
                                                                    Participant

                                                                      Way to go, DONNA !!!!   This is encouaging to all of us, anytime we read someone is NED on any treatment.   KEEP ON KEEPING ON !   Such good news – thanks for sharing.

                                                                      (P.S.   My Wayne has been NED for 7 months and had cardiac issues too.   Had one artery 95% blocked and they just put in a stent a few weeks ago.   Just goes to show you that other things CAN still happen.   HOPING you get great help and complete healing in that area too).   

                                                                      Nancy (devoted wife of 3 X Warrior Wayne)  <><

                                                                      Vermont_Donna
                                                                      Participant

                                                                        Thanks everyone……I go for my next oncology checkup on January 16th and hope the news will still be good! I just got put on my 4th heart medication and am taking it easy at home now that I am not working. I have my second grandchild due in April so I definitely want to be here to be "Grammy"!

                                                                        Happy Holidays to all,

                                                                        Vermont_Donna, stage 3a

                                                                        NED since 2/11 since Yervoy

                                                                        Vermont_Donna
                                                                        Participant

                                                                          Thanks everyone……I go for my next oncology checkup on January 16th and hope the news will still be good! I just got put on my 4th heart medication and am taking it easy at home now that I am not working. I have my second grandchild due in April so I definitely want to be here to be "Grammy"!

                                                                          Happy Holidays to all,

                                                                          Vermont_Donna, stage 3a

                                                                          NED since 2/11 since Yervoy

                                                                          Vermont_Donna
                                                                          Participant

                                                                            Thanks everyone……I go for my next oncology checkup on January 16th and hope the news will still be good! I just got put on my 4th heart medication and am taking it easy at home now that I am not working. I have my second grandchild due in April so I definitely want to be here to be "Grammy"!

                                                                            Happy Holidays to all,

                                                                            Vermont_Donna, stage 3a

                                                                            NED since 2/11 since Yervoy

                                                                            Snickers60
                                                                            Participant

                                                                              Way to go, DONNA !!!!   This is encouaging to all of us, anytime we read someone is NED on any treatment.   KEEP ON KEEPING ON !   Such good news – thanks for sharing.

                                                                              (P.S.   My Wayne has been NED for 7 months and had cardiac issues too.   Had one artery 95% blocked and they just put in a stent a few weeks ago.   Just goes to show you that other things CAN still happen.   HOPING you get great help and complete healing in that area too).   

                                                                              Nancy (devoted wife of 3 X Warrior Wayne)  <><

                                                                            Rocco
                                                                            Participant

                                                                              Happy Holidays Donna!

                                                                              Glad to hear that you too are still NED thanks to Yervoy!  Sorry to hear of your cardiac issues.  Get  some rest – you've certainly earned it!

                                                                              -Rocco

                                                                              Ned since 2009 thanks to MDX-010 (Yervoy) trial.

                                                                              Rocco
                                                                              Participant

                                                                                Happy Holidays Donna!

                                                                                Glad to hear that you too are still NED thanks to Yervoy!  Sorry to hear of your cardiac issues.  Get  some rest – you've certainly earned it!

                                                                                -Rocco

                                                                                Ned since 2009 thanks to MDX-010 (Yervoy) trial.

                                                                                Daughterwhocares
                                                                                Participant
                                                                                  Donna- can you tell us more about your story? Where did the melanoma first appear? What stage were you at? Did you have any chemo? We’re you ever hospitalized?

                                                                                  I’d appreciate any info anyone can give that has had success with the drug

                                                                                  Daughterwhocares
                                                                                  Participant
                                                                                    Donna- can you tell us more about your story? Where did the melanoma first appear? What stage were you at? Did you have any chemo? We’re you ever hospitalized?

                                                                                    I’d appreciate any info anyone can give that has had success with the drug

                                                                                    Daughterwhocares
                                                                                    Participant
                                                                                      Donna- can you tell us more about your story? Where did the melanoma first appear? What stage were you at? Did you have any chemo? We’re you ever hospitalized?

                                                                                      I’d appreciate any info anyone can give that has had success with the drug

                                                                                        Linny
                                                                                        Participant

                                                                                          Donna has completed a profile. To read about her history, just click on her user name. smiley

                                                                                          Linny
                                                                                          Participant

                                                                                            Donna has completed a profile. To read about her history, just click on her user name. smiley

                                                                                            Linny
                                                                                            Participant

                                                                                              Donna has completed a profile. To read about her history, just click on her user name. smiley

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