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22 months NED thanks to Yervoy
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22 months NED thanks to Yervoy

› Forums › General Melanoma Community › 22 months NED thanks to Yervoy

  • Post
    • December 15, 2012 at 11:38 am
    Vermont_Donna
    Participant

      Hi everyone,

      I havent checked in here in a long while…I am 22 months NED after 4 doses of 3mg/kg Yervoy in a clinical trial. I feel so blessed after many treatments and many side effects endured over the last six years. I am however dealing with some cardiac issues (unrelated to melanoma) after having an acute stress (takot subo cardiomyopathy) heart attack in April of this year. i am no longer working and cardiologist's orders are to take better care of me!

       I hope to have time now to check in here on a more regular basis!

      Happy Holidays!

      Hi everyone,

      I havent checked in here in a long while…I am 22 months NED after 4 doses of 3mg/kg Yervoy in a clinical trial. I feel so blessed after many treatments and many side effects endured over the last six years. I am however dealing with some cardiac issues (unrelated to melanoma) after having an acute stress (takot subo cardiomyopathy) heart attack in April of this year. i am no longer working and cardiologist's orders are to take better care of me!

       I hope to have time now to check in here on a more regular basis!

      Happy Holidays!

      Vermont_Donna, stage sa

    Viewing 29 reply threads
    • Replies
        • December 15, 2012 at 2:48 pm
        audgator
        Participant

          Very nice to hear, Donna. On this board we maybe hear too often from Yervoy non-responders like me.  I, and I assume "we", are heppy for your success.  Have a happy & healthy new year.   Dan

          • December 15, 2012 at 2:48 pm
          audgator
          Participant

            Very nice to hear, Donna. On this board we maybe hear too often from Yervoy non-responders like me.  I, and I assume "we", are heppy for your success.  Have a happy & healthy new year.   Dan

            • December 15, 2012 at 2:48 pm
            audgator
            Participant

              Very nice to hear, Donna. On this board we maybe hear too often from Yervoy non-responders like me.  I, and I assume "we", are heppy for your success.  Have a happy & healthy new year.   Dan

              • December 15, 2012 at 3:43 pm
              Tina D
              Participant

                Donna,

                Thank you for posting this good news about your continued NED status! I am getting ready to start ipi next week and find this so encouraging. I hope your cardiac issues settle down now that you are not working, and better able to get the care and rest you need.

                Wishing you a very long lifetime with your buddy, NED 🙂

                Tina

                • December 15, 2012 at 3:43 pm
                Tina D
                Participant

                  Donna,

                  Thank you for posting this good news about your continued NED status! I am getting ready to start ipi next week and find this so encouraging. I hope your cardiac issues settle down now that you are not working, and better able to get the care and rest you need.

                  Wishing you a very long lifetime with your buddy, NED 🙂

                  Tina

                  • December 15, 2012 at 3:43 pm
                  Tina D
                  Participant

                    Donna,

                    Thank you for posting this good news about your continued NED status! I am getting ready to start ipi next week and find this so encouraging. I hope your cardiac issues settle down now that you are not working, and better able to get the care and rest you need.

                    Wishing you a very long lifetime with your buddy, NED 🙂

                    Tina

                    • December 15, 2012 at 6:55 pm
                    JakeinNY
                    Participant

                      Congratulations Donna!!!

                      • December 15, 2012 at 6:55 pm
                      JakeinNY
                      Participant

                        Congratulations Donna!!!

                        • December 15, 2012 at 6:55 pm
                        JakeinNY
                        Participant

                          Congratulations Donna!!!

                          • December 15, 2012 at 7:13 pm
                          jim Breitfeller
                          Participant

                            Congratulations Donna!! I hope to hear from in three years from now,  5 yrs, NED .

                             

                            Best regards,

                             

                            Jimmy B

                            • December 15, 2012 at 7:13 pm
                            jim Breitfeller
                            Participant

                              Congratulations Donna!! I hope to hear from in three years from now,  5 yrs, NED .

                               

                              Best regards,

                               

                              Jimmy B

                              • December 15, 2012 at 7:13 pm
                              jim Breitfeller
                              Participant

                                Congratulations Donna!! I hope to hear from in three years from now,  5 yrs, NED .

                                 

                                Best regards,

                                 

                                Jimmy B

                                  • December 15, 2012 at 11:19 pm
                                  NYKaren
                                  Participant
                                    I’ve been wondering how you’re doing, Donna.
                                    Congratulations on your great news, and I’m glad you’ll be able to take better care now.
                                    Stay well,
                                    Karen
                                    • December 15, 2012 at 11:19 pm
                                    NYKaren
                                    Participant
                                      I’ve been wondering how you’re doing, Donna.
                                      Congratulations on your great news, and I’m glad you’ll be able to take better care now.
                                      Stay well,
                                      Karen
                                      • December 15, 2012 at 11:19 pm
                                      NYKaren
                                      Participant
                                        I’ve been wondering how you’re doing, Donna.
                                        Congratulations on your great news, and I’m glad you’ll be able to take better care now.
                                        Stay well,
                                        Karen
                                      • December 16, 2012 at 1:51 pm
                                      Linny
                                      Participant

                                        Hi Donna, thank you for sharing your good news. It's nice to hear positive Yervoy stories. Sorry to hear about your cardiac issues. I hope that whatever was behind the latter has been resolved never to show up again. Ditto for the melanoma.

                                        • December 16, 2012 at 1:51 pm
                                        Linny
                                        Participant

                                          Hi Donna, thank you for sharing your good news. It's nice to hear positive Yervoy stories. Sorry to hear about your cardiac issues. I hope that whatever was behind the latter has been resolved never to show up again. Ditto for the melanoma.

                                          • December 16, 2012 at 1:51 pm
                                          Linny
                                          Participant

                                            Hi Donna, thank you for sharing your good news. It's nice to hear positive Yervoy stories. Sorry to hear about your cardiac issues. I hope that whatever was behind the latter has been resolved never to show up again. Ditto for the melanoma.

                                            • December 17, 2012 at 6:00 am
                                            Ali
                                            Participant

                                              Awesome!  Thanks for the update, good to hear positive IPI results!

                                              • December 17, 2012 at 6:00 am
                                              Ali
                                              Participant

                                                Awesome!  Thanks for the update, good to hear positive IPI results!

                                                • December 17, 2012 at 6:00 am
                                                Ali
                                                Participant

                                                  Awesome!  Thanks for the update, good to hear positive IPI results!

                                                  • December 17, 2012 at 7:34 pm
                                                  awillett1991
                                                  Participant
                                                    Congrats Donna and thanks for posting this encouraging status! I needed to hear this, just finished Yervoy 2 weeks ago and the last week has been a rough one.
                                                    • December 17, 2012 at 7:34 pm
                                                    awillett1991
                                                    Participant
                                                      Congrats Donna and thanks for posting this encouraging status! I needed to hear this, just finished Yervoy 2 weeks ago and the last week has been a rough one.
                                                      • December 17, 2012 at 7:34 pm
                                                      awillett1991
                                                      Participant
                                                        Congrats Donna and thanks for posting this encouraging status! I needed to hear this, just finished Yervoy 2 weeks ago and the last week has been a rough one.
                                                        • December 18, 2012 at 11:39 pm
                                                        Rocco
                                                        Participant

                                                          Happy Holidays Donna!

                                                          Glad to hear that you too are still NED thanks to Yervoy!  Sorry to hear of your cardiac issues.  Get  some rest – you've certainly earned it!

                                                          -Rocco

                                                          Ned since 2009 thanks to MDX-010 (Yervoy) trial.

                                                          • December 18, 2012 at 11:39 pm
                                                          Rocco
                                                          Participant

                                                            Happy Holidays Donna!

                                                            Glad to hear that you too are still NED thanks to Yervoy!  Sorry to hear of your cardiac issues.  Get  some rest – you've certainly earned it!

                                                            -Rocco

                                                            Ned since 2009 thanks to MDX-010 (Yervoy) trial.

                                                            • December 18, 2012 at 11:39 pm
                                                            Rocco
                                                            Participant

                                                              Happy Holidays Donna!

                                                              Glad to hear that you too are still NED thanks to Yervoy!  Sorry to hear of your cardiac issues.  Get  some rest – you've certainly earned it!

                                                              -Rocco

                                                              Ned since 2009 thanks to MDX-010 (Yervoy) trial.

                                                              • December 18, 2012 at 11:40 pm
                                                              Rocco
                                                              Participant

                                                                Happy Holidays Donna!

                                                                Glad to hear that you too are still NED thanks to Yervoy!  Sorry to hear of your cardiac issues.  Get  some rest – you've certainly earned it!

                                                                -Rocco

                                                                Ned since 2009 thanks to MDX-010 (Yervoy) trial.

                                                                • December 18, 2012 at 11:40 pm
                                                                Rocco
                                                                Participant

                                                                  Happy Holidays Donna!

                                                                  Glad to hear that you too are still NED thanks to Yervoy!  Sorry to hear of your cardiac issues.  Get  some rest – you've certainly earned it!

                                                                  -Rocco

                                                                  Ned since 2009 thanks to MDX-010 (Yervoy) trial.

                                                                  • December 18, 2012 at 11:40 pm
                                                                  Rocco
                                                                  Participant

                                                                    Happy Holidays Donna!

                                                                    Glad to hear that you too are still NED thanks to Yervoy!  Sorry to hear of your cardiac issues.  Get  some rest – you've certainly earned it!

                                                                    -Rocco

                                                                    Ned since 2009 thanks to MDX-010 (Yervoy) trial.

                                                                      • December 20, 2012 at 5:13 pm
                                                                      Snickers60
                                                                      Participant

                                                                        Way to go, DONNA !!!!   This is encouaging to all of us, anytime we read someone is NED on any treatment.   KEEP ON KEEPING ON !   Such good news – thanks for sharing.

                                                                        (P.S.   My Wayne has been NED for 7 months and had cardiac issues too.   Had one artery 95% blocked and they just put in a stent a few weeks ago.   Just goes to show you that other things CAN still happen.   HOPING you get great help and complete healing in that area too).   

                                                                        Nancy (devoted wife of 3 X Warrior Wayne)  <><

                                                                        • December 20, 2012 at 5:13 pm
                                                                        Snickers60
                                                                        Participant

                                                                          Way to go, DONNA !!!!   This is encouaging to all of us, anytime we read someone is NED on any treatment.   KEEP ON KEEPING ON !   Such good news – thanks for sharing.

                                                                          (P.S.   My Wayne has been NED for 7 months and had cardiac issues too.   Had one artery 95% blocked and they just put in a stent a few weeks ago.   Just goes to show you that other things CAN still happen.   HOPING you get great help and complete healing in that area too).   

                                                                          Nancy (devoted wife of 3 X Warrior Wayne)  <><

                                                                          • December 27, 2012 at 12:06 am
                                                                          Vermont_Donna
                                                                          Participant

                                                                            Thanks everyone……I go for my next oncology checkup on January 16th and hope the news will still be good! I just got put on my 4th heart medication and am taking it easy at home now that I am not working. I have my second grandchild due in April so I definitely want to be here to be "Grammy"!

                                                                            Happy Holidays to all,

                                                                            Vermont_Donna, stage 3a

                                                                            NED since 2/11 since Yervoy

                                                                            • December 27, 2012 at 12:06 am
                                                                            Vermont_Donna
                                                                            Participant

                                                                              Thanks everyone……I go for my next oncology checkup on January 16th and hope the news will still be good! I just got put on my 4th heart medication and am taking it easy at home now that I am not working. I have my second grandchild due in April so I definitely want to be here to be "Grammy"!

                                                                              Happy Holidays to all,

                                                                              Vermont_Donna, stage 3a

                                                                              NED since 2/11 since Yervoy

                                                                              • December 27, 2012 at 12:06 am
                                                                              Vermont_Donna
                                                                              Participant

                                                                                Thanks everyone……I go for my next oncology checkup on January 16th and hope the news will still be good! I just got put on my 4th heart medication and am taking it easy at home now that I am not working. I have my second grandchild due in April so I definitely want to be here to be "Grammy"!

                                                                                Happy Holidays to all,

                                                                                Vermont_Donna, stage 3a

                                                                                NED since 2/11 since Yervoy

                                                                                • December 20, 2012 at 5:13 pm
                                                                                Snickers60
                                                                                Participant

                                                                                  Way to go, DONNA !!!!   This is encouaging to all of us, anytime we read someone is NED on any treatment.   KEEP ON KEEPING ON !   Such good news – thanks for sharing.

                                                                                  (P.S.   My Wayne has been NED for 7 months and had cardiac issues too.   Had one artery 95% blocked and they just put in a stent a few weeks ago.   Just goes to show you that other things CAN still happen.   HOPING you get great help and complete healing in that area too).   

                                                                                  Nancy (devoted wife of 3 X Warrior Wayne)  <><

                                                                                • April 20, 2013 at 2:29 am
                                                                                Daughterwhocares
                                                                                Participant
                                                                                  Donna- can you tell us more about your story? Where did the melanoma first appear? What stage were you at? Did you have any chemo? We’re you ever hospitalized?

                                                                                  I’d appreciate any info anyone can give that has had success with the drug

                                                                                    • April 20, 2013 at 2:23 pm
                                                                                    Linny
                                                                                    Participant

                                                                                      Donna has completed a profile. To read about her history, just click on her user name. smiley

                                                                                      • April 20, 2013 at 2:23 pm
                                                                                      Linny
                                                                                      Participant

                                                                                        Donna has completed a profile. To read about her history, just click on her user name. smiley

                                                                                        • April 20, 2013 at 2:23 pm
                                                                                        Linny
                                                                                        Participant

                                                                                          Donna has completed a profile. To read about her history, just click on her user name. smiley

                                                                                        • April 20, 2013 at 2:29 am
                                                                                        Daughterwhocares
                                                                                        Participant
                                                                                          Donna- can you tell us more about your story? Where did the melanoma first appear? What stage were you at? Did you have any chemo? We’re you ever hospitalized?

                                                                                          I’d appreciate any info anyone can give that has had success with the drug

                                                                                          • April 20, 2013 at 2:29 am
                                                                                          Daughterwhocares
                                                                                          Participant
                                                                                            Donna- can you tell us more about your story? Where did the melanoma first appear? What stage were you at? Did you have any chemo? We’re you ever hospitalized?

                                                                                            I’d appreciate any info anyone can give that has had success with the drug

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