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14 months NED due to Yervoy
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14 months NED due to Yervoy

› Forums › General Melanoma Community › 14 months NED due to Yervoy

  • Post
    • April 28, 2012 at 10:52 pm
    Vermont_Donna
    Participant

      Hi,

      Hi,

       I have been busy working and not on this board at all over the last few months. My recent oncology checkup (4/25) (PET/CT, labs, clinical exam and discussion) revealed no new melanoma anywhere so I am now 14 months NED! On a separate health note I did have a heart attack 4/2/2012 and was also diagnosed with "takot subo" cardiomyopathy. It is completely reversible. I will start 6 weeks of cardiac rehab on Monday. I was back to work the following week after my heart attack. My oncologist stated it has no connection to my history of melanoma. I am relieved to have no signs of melanoma as my oncologist said he would not be able to treat me so soon after a heart attack. I would need a few months to recover. I was sooooo happy to be NED for sure!

      I wish all you fellow melanoma warriors success with your treatments like I have had with my treatment (yervoy). I am considered a complete responder with very few side effects. I have had numerous treatments before the yervoy without long lasting NED status.

      On a somber note, I am saddened greatly to learn of our friend Boots passing away from this wretched disease.

      From snowy Northern Vermont,

      Vermont_Donna, stage 3a, NED, diagnosed in September 2006

    Viewing 8 reply threads
    • Replies
        • April 28, 2012 at 11:21 pm
        jim Breitfeller
        Participant

          Donna , I am glad that you are responding well. I remember way back when you first started Yervoy. You had inflamation around the tumors on your leg. I jumped for joy knowing that your immune system was sending out the "DANGER SIGNAL'.  If you can make it to 36 months with no relapse, you in my opinion will be (CURED). I just passed my 5 year mark as a stage IV survivor. What we have in common is that we both developed the "Danger Signal" needed for our immune system  to jump-start the immune response.

          Congrats!!!!!!

           

          Jimmy b

          • April 28, 2012 at 11:21 pm
          jim Breitfeller
          Participant

            Donna , I am glad that you are responding well. I remember way back when you first started Yervoy. You had inflamation around the tumors on your leg. I jumped for joy knowing that your immune system was sending out the "DANGER SIGNAL'.  If you can make it to 36 months with no relapse, you in my opinion will be (CURED). I just passed my 5 year mark as a stage IV survivor. What we have in common is that we both developed the "Danger Signal" needed for our immune system  to jump-start the immune response.

            Congrats!!!!!!

             

            Jimmy b

            • April 28, 2012 at 11:21 pm
            jim Breitfeller
            Participant

              Donna , I am glad that you are responding well. I remember way back when you first started Yervoy. You had inflamation around the tumors on your leg. I jumped for joy knowing that your immune system was sending out the "DANGER SIGNAL'.  If you can make it to 36 months with no relapse, you in my opinion will be (CURED). I just passed my 5 year mark as a stage IV survivor. What we have in common is that we both developed the "Danger Signal" needed for our immune system  to jump-start the immune response.

              Congrats!!!!!!

               

              Jimmy b

                • April 28, 2012 at 11:43 pm
                Vermont_Donna
                Participant

                  Thanks Jimmy B…you give me HOPE!!!

                  Hugs,

                  Vermont_Donna

                  • April 29, 2012 at 12:27 am
                  Linny
                  Participant

                    Hey Donna, you're giving the rest of us hope! Congrats on reaching 14 months!

                    • April 29, 2012 at 12:27 am
                    Linny
                    Participant

                      Hey Donna, you're giving the rest of us hope! Congrats on reaching 14 months!

                      • April 29, 2012 at 12:27 am
                      Linny
                      Participant

                        Hey Donna, you're giving the rest of us hope! Congrats on reaching 14 months!

                        • April 28, 2012 at 11:43 pm
                        Vermont_Donna
                        Participant

                          Thanks Jimmy B…you give me HOPE!!!

                          Hugs,

                          Vermont_Donna

                          • April 28, 2012 at 11:43 pm
                          Vermont_Donna
                          Participant

                            Thanks Jimmy B…you give me HOPE!!!

                            Hugs,

                            Vermont_Donna

                            • April 29, 2012 at 1:27 am
                            yoopergirl
                            Participant

                              jimmy b what is the danger signal?? I have had so many side effects to the Yervoy that i can not take my last infusion. I am so happy for Donna…hoping for the same response myself.

                              • April 29, 2012 at 1:52 am
                              jim Breitfeller
                              Participant

                                 What is the danger signal??  

                                Sectetion of inflammatory Cytokines from Dendritic Cells, Macrophages and other Immune Cells. These cytokines cause inflammation and recruitement  of T-cells to the tumor's microenviroment to eradicate the tumor.

                                http://melanomamissionary.blogspot.com/2011/10/identifying-and-over-coming-immune.html 

                                • April 29, 2012 at 1:52 am
                                jim Breitfeller
                                Participant

                                   What is the danger signal??  

                                  Sectetion of inflammatory Cytokines from Dendritic Cells, Macrophages and other Immune Cells. These cytokines cause inflammation and recruitement  of T-cells to the tumor's microenviroment to eradicate the tumor.

                                  http://melanomamissionary.blogspot.com/2011/10/identifying-and-over-coming-immune.html 

                                  • April 29, 2012 at 1:52 am
                                  jim Breitfeller
                                  Participant

                                     What is the danger signal??  

                                    Sectetion of inflammatory Cytokines from Dendritic Cells, Macrophages and other Immune Cells. These cytokines cause inflammation and recruitement  of T-cells to the tumor's microenviroment to eradicate the tumor.

                                    http://melanomamissionary.blogspot.com/2011/10/identifying-and-over-coming-immune.html 

                                    • April 29, 2012 at 1:27 am
                                    yoopergirl
                                    Participant

                                      jimmy b what is the danger signal?? I have had so many side effects to the Yervoy that i can not take my last infusion. I am so happy for Donna…hoping for the same response myself.

                                      • April 29, 2012 at 1:27 am
                                      yoopergirl
                                      Participant

                                        jimmy b what is the danger signal?? I have had so many side effects to the Yervoy that i can not take my last infusion. I am so happy for Donna…hoping for the same response myself.

                                      • April 29, 2012 at 2:07 am
                                      King
                                      Participant

                                        Donna,

                                         

                                        This is wonderful news!  Congratulations!  I'm sure this post will give hope to many.  Sorry to hear of your recent cardiac problems but I'm happy to hear that there is no connection to melanoma.  Yeah for you!

                                         

                                        Stay Strong

                                        King

                                        Stage IV  7/05  Liver mets

                                        • April 29, 2012 at 2:07 am
                                        King
                                        Participant

                                          Donna,

                                           

                                          This is wonderful news!  Congratulations!  I'm sure this post will give hope to many.  Sorry to hear of your recent cardiac problems but I'm happy to hear that there is no connection to melanoma.  Yeah for you!

                                           

                                          Stay Strong

                                          King

                                          Stage IV  7/05  Liver mets

                                            • April 29, 2012 at 2:32 am
                                            NYKaren
                                            Participant
                                              Congratulations, Donna. I’ve been thinking about you and am thrilled for you. So happy too that your heart is ok.
                                              {{:}}
                                              karen
                                              • April 29, 2012 at 2:32 am
                                              NYKaren
                                              Participant
                                                Congratulations, Donna. I’ve been thinking about you and am thrilled for you. So happy too that your heart is ok.
                                                {{:}}
                                                karen
                                                • April 29, 2012 at 6:10 pm
                                                Snickers60
                                                Participant

                                                  YOU GO GIRL………..I'm new AGAIN to the board, (hubby has mets to lungs, liver, spine, etc) after 13 1/2 years NED…from a melly behind his right ear lobe.   

                                                   

                                                  I am jumping for joy with you………oh how wonderful and what a blessing for you and an ENCOURAGEMENT for us !

                                                   

                                                  I pray that you will never see this beast again and that all goes well with your heart.

                                                   

                                                  Nancy (wife of Warrior Wayne)

                                                  Wayne reads, but doesn't post….I read and post = right brain, left brain ???   LOL

                                                  • April 29, 2012 at 6:10 pm
                                                  Snickers60
                                                  Participant

                                                    YOU GO GIRL………..I'm new AGAIN to the board, (hubby has mets to lungs, liver, spine, etc) after 13 1/2 years NED…from a melly behind his right ear lobe.   

                                                     

                                                    I am jumping for joy with you………oh how wonderful and what a blessing for you and an ENCOURAGEMENT for us !

                                                     

                                                    I pray that you will never see this beast again and that all goes well with your heart.

                                                     

                                                    Nancy (wife of Warrior Wayne)

                                                    Wayne reads, but doesn't post….I read and post = right brain, left brain ???   LOL

                                                    • April 29, 2012 at 6:10 pm
                                                    Snickers60
                                                    Participant

                                                      YOU GO GIRL………..I'm new AGAIN to the board, (hubby has mets to lungs, liver, spine, etc) after 13 1/2 years NED…from a melly behind his right ear lobe.   

                                                       

                                                      I am jumping for joy with you………oh how wonderful and what a blessing for you and an ENCOURAGEMENT for us !

                                                       

                                                      I pray that you will never see this beast again and that all goes well with your heart.

                                                       

                                                      Nancy (wife of Warrior Wayne)

                                                      Wayne reads, but doesn't post….I read and post = right brain, left brain ???   LOL

                                                      • April 29, 2012 at 2:32 am
                                                      NYKaren
                                                      Participant
                                                        Congratulations, Donna. I’ve been thinking about you and am thrilled for you. So happy too that your heart is ok.
                                                        {{:}}
                                                        karen
                                                      • April 29, 2012 at 2:07 am
                                                      King
                                                      Participant

                                                        Donna,

                                                         

                                                        This is wonderful news!  Congratulations!  I'm sure this post will give hope to many.  Sorry to hear of your recent cardiac problems but I'm happy to hear that there is no connection to melanoma.  Yeah for you!

                                                         

                                                        Stay Strong

                                                        King

                                                        Stage IV  7/05  Liver mets

                                                        • May 1, 2012 at 3:08 am
                                                        gabsound
                                                        Participant
                                                          Donna,

                                                          I got a big smile when I saw your post. I’m sorry you are having cardiac issues, but so glad to hear melanoma is nowhere to be found. I ope Jimmy B is right–a cure,

                                                          I told my oncologist that I hoed to live long enough to get heart disease. Be careful what you wish for right?

                                                          So happy for you,

                                                          Julie in Las Vegas

                                                          • May 1, 2012 at 3:08 am
                                                          gabsound
                                                          Participant
                                                            Donna,

                                                            I got a big smile when I saw your post. I’m sorry you are having cardiac issues, but so glad to hear melanoma is nowhere to be found. I ope Jimmy B is right–a cure,

                                                            I told my oncologist that I hoed to live long enough to get heart disease. Be careful what you wish for right?

                                                            So happy for you,

                                                            Julie in Las Vegas

                                                            • May 1, 2012 at 3:08 am
                                                            gabsound
                                                            Participant
                                                              Donna,

                                                              I got a big smile when I saw your post. I’m sorry you are having cardiac issues, but so glad to hear melanoma is nowhere to be found. I ope Jimmy B is right–a cure,

                                                              I told my oncologist that I hoed to live long enough to get heart disease. Be careful what you wish for right?

                                                              So happy for you,

                                                              Julie in Las Vegas

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