14 months NED due to Yervoy
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14 months NED due to Yervoy

› Forums › General Melanoma Community › 14 months NED due to Yervoy

  • Post
    • April 28, 2012 at 10:52 pm
    Vermont_Donna
    Participant

    Hi,

    Hi,

     I have been busy working and not on this board at all over the last few months. My recent oncology checkup (4/25) (PET/CT, labs, clinical exam and discussion) revealed no new melanoma anywhere so I am now 14 months NED! On a separate health note I did have a heart attack 4/2/2012 and was also diagnosed with "takot subo" cardiomyopathy. It is completely reversible. I will start 6 weeks of cardiac rehab on Monday. I was back to work the following week after my heart attack. My oncologist stated it has no connection to my history of melanoma. I am relieved to have no signs of melanoma as my oncologist said he would not be able to treat me so soon after a heart attack. I would need a few months to recover. I was sooooo happy to be NED for sure!

    I wish all you fellow melanoma warriors success with your treatments like I have had with my treatment (yervoy). I am considered a complete responder with very few side effects. I have had numerous treatments before the yervoy without long lasting NED status.

    On a somber note, I am saddened greatly to learn of our friend Boots passing away from this wretched disease.

    From snowy Northern Vermont,

    Vermont_Donna, stage 3a, NED, diagnosed in September 2006

Viewing 8 reply threads
  • Replies
      • April 28, 2012 at 11:21 pm
      jim Breitfeller
      Participant

      Donna , I am glad that you are responding well. I remember way back when you first started Yervoy. You had inflamation around the tumors on your leg. I jumped for joy knowing that your immune system was sending out the "DANGER SIGNAL'.  If you can make it to 36 months with no relapse, you in my opinion will be (CURED). I just passed my 5 year mark as a stage IV survivor. What we have in common is that we both developed the "Danger Signal" needed for our immune system  to jump-start the immune response.

      Congrats!!!!!!

       

      Jimmy b

        • April 28, 2012 at 11:43 pm
        Vermont_Donna
        Participant

        Thanks Jimmy B…you give me HOPE!!!

        Hugs,

        Vermont_Donna

        • April 29, 2012 at 12:27 am
        Linny
        Participant

        Hey Donna, you're giving the rest of us hope! Congrats on reaching 14 months!

        • April 29, 2012 at 12:27 am
        Linny
        Participant

        Hey Donna, you're giving the rest of us hope! Congrats on reaching 14 months!

        • April 29, 2012 at 12:27 am
        Linny
        Participant

        Hey Donna, you're giving the rest of us hope! Congrats on reaching 14 months!

        • April 28, 2012 at 11:43 pm
        Vermont_Donna
        Participant

        Thanks Jimmy B…you give me HOPE!!!

        Hugs,

        Vermont_Donna

        • April 28, 2012 at 11:43 pm
        Vermont_Donna
        Participant

        Thanks Jimmy B…you give me HOPE!!!

        Hugs,

        Vermont_Donna

        • April 29, 2012 at 1:27 am
        yoopergirl
        Participant

        jimmy b what is the danger signal?? I have had so many side effects to the Yervoy that i can not take my last infusion. I am so happy for Donna…hoping for the same response myself.

        • April 29, 2012 at 1:52 am
        jim Breitfeller
        Participant

         What is the danger signal??  

        Sectetion of inflammatory Cytokines from Dendritic Cells, Macrophages and other Immune Cells. These cytokines cause inflammation and recruitement  of T-cells to the tumor's microenviroment to eradicate the tumor.

        http://melanomamissionary.blogspot.com/2011/10/identifying-and-over-coming-immune.html 

        • April 29, 2012 at 1:52 am
        jim Breitfeller
        Participant

         What is the danger signal??  

        Sectetion of inflammatory Cytokines from Dendritic Cells, Macrophages and other Immune Cells. These cytokines cause inflammation and recruitement  of T-cells to the tumor's microenviroment to eradicate the tumor.

        http://melanomamissionary.blogspot.com/2011/10/identifying-and-over-coming-immune.html 

        • April 29, 2012 at 1:52 am
        jim Breitfeller
        Participant

         What is the danger signal??  

        Sectetion of inflammatory Cytokines from Dendritic Cells, Macrophages and other Immune Cells. These cytokines cause inflammation and recruitement  of T-cells to the tumor's microenviroment to eradicate the tumor.

        http://melanomamissionary.blogspot.com/2011/10/identifying-and-over-coming-immune.html 

        • April 29, 2012 at 1:27 am
        yoopergirl
        Participant

        jimmy b what is the danger signal?? I have had so many side effects to the Yervoy that i can not take my last infusion. I am so happy for Donna…hoping for the same response myself.

        • April 29, 2012 at 1:27 am
        yoopergirl
        Participant

        jimmy b what is the danger signal?? I have had so many side effects to the Yervoy that i can not take my last infusion. I am so happy for Donna…hoping for the same response myself.

      • April 28, 2012 at 11:21 pm
      jim Breitfeller
      Participant

      Donna , I am glad that you are responding well. I remember way back when you first started Yervoy. You had inflamation around the tumors on your leg. I jumped for joy knowing that your immune system was sending out the "DANGER SIGNAL'.  If you can make it to 36 months with no relapse, you in my opinion will be (CURED). I just passed my 5 year mark as a stage IV survivor. What we have in common is that we both developed the "Danger Signal" needed for our immune system  to jump-start the immune response.

      Congrats!!!!!!

       

      Jimmy b

      • April 28, 2012 at 11:21 pm
      jim Breitfeller
      Participant

      Donna , I am glad that you are responding well. I remember way back when you first started Yervoy. You had inflamation around the tumors on your leg. I jumped for joy knowing that your immune system was sending out the "DANGER SIGNAL'.  If you can make it to 36 months with no relapse, you in my opinion will be (CURED). I just passed my 5 year mark as a stage IV survivor. What we have in common is that we both developed the "Danger Signal" needed for our immune system  to jump-start the immune response.

      Congrats!!!!!!

       

      Jimmy b

      • April 29, 2012 at 2:07 am
      King
      Participant

      Donna,

       

      This is wonderful news!  Congratulations!  I'm sure this post will give hope to many.  Sorry to hear of your recent cardiac problems but I'm happy to hear that there is no connection to melanoma.  Yeah for you!

       

      Stay Strong

      King

      Stage IV  7/05  Liver mets

        • April 29, 2012 at 2:32 am
        NYKaren
        Participant
        Congratulations, Donna. I’ve been thinking about you and am thrilled for you. So happy too that your heart is ok.
        {{:}}
        karen
        • April 29, 2012 at 6:10 pm
        Snickers60
        Participant

        YOU GO GIRL………..I'm new AGAIN to the board, (hubby has mets to lungs, liver, spine, etc) after 13 1/2 years NED…from a melly behind his right ear lobe.   

         

        I am jumping for joy with you………oh how wonderful and what a blessing for you and an ENCOURAGEMENT for us !

         

        I pray that you will never see this beast again and that all goes well with your heart.

         

        Nancy (wife of Warrior Wayne)

        Wayne reads, but doesn't post….I read and post = right brain, left brain ???   LOL

        • April 29, 2012 at 6:10 pm
        Snickers60
        Participant

        YOU GO GIRL………..I'm new AGAIN to the board, (hubby has mets to lungs, liver, spine, etc) after 13 1/2 years NED…from a melly behind his right ear lobe.   

         

        I am jumping for joy with you………oh how wonderful and what a blessing for you and an ENCOURAGEMENT for us !

         

        I pray that you will never see this beast again and that all goes well with your heart.

         

        Nancy (wife of Warrior Wayne)

        Wayne reads, but doesn't post….I read and post = right brain, left brain ???   LOL

        • April 29, 2012 at 6:10 pm
        Snickers60
        Participant

        YOU GO GIRL………..I'm new AGAIN to the board, (hubby has mets to lungs, liver, spine, etc) after 13 1/2 years NED…from a melly behind his right ear lobe.   

         

        I am jumping for joy with you………oh how wonderful and what a blessing for you and an ENCOURAGEMENT for us !

         

        I pray that you will never see this beast again and that all goes well with your heart.

         

        Nancy (wife of Warrior Wayne)

        Wayne reads, but doesn't post….I read and post = right brain, left brain ???   LOL

        • April 29, 2012 at 2:32 am
        NYKaren
        Participant
        Congratulations, Donna. I’ve been thinking about you and am thrilled for you. So happy too that your heart is ok.
        {{:}}
        karen
        • April 29, 2012 at 2:32 am
        NYKaren
        Participant
        Congratulations, Donna. I’ve been thinking about you and am thrilled for you. So happy too that your heart is ok.
        {{:}}
        karen
      • April 29, 2012 at 2:07 am
      King
      Participant

      Donna,

       

      This is wonderful news!  Congratulations!  I'm sure this post will give hope to many.  Sorry to hear of your recent cardiac problems but I'm happy to hear that there is no connection to melanoma.  Yeah for you!

       

      Stay Strong

      King

      Stage IV  7/05  Liver mets

      • April 29, 2012 at 2:07 am
      King
      Participant

      Donna,

       

      This is wonderful news!  Congratulations!  I'm sure this post will give hope to many.  Sorry to hear of your recent cardiac problems but I'm happy to hear that there is no connection to melanoma.  Yeah for you!

       

      Stay Strong

      King

      Stage IV  7/05  Liver mets

      • May 1, 2012 at 3:08 am
      gabsound
      Participant
      Donna,

      I got a big smile when I saw your post. I’m sorry you are having cardiac issues, but so glad to hear melanoma is nowhere to be found. I ope Jimmy B is right–a cure,

      I told my oncologist that I hoed to live long enough to get heart disease. Be careful what you wish for right?

      So happy for you,

      Julie in Las Vegas

      • May 1, 2012 at 3:08 am
      gabsound
      Participant
      Donna,

      I got a big smile when I saw your post. I’m sorry you are having cardiac issues, but so glad to hear melanoma is nowhere to be found. I ope Jimmy B is right–a cure,

      I told my oncologist that I hoed to live long enough to get heart disease. Be careful what you wish for right?

      So happy for you,

      Julie in Las Vegas

      • May 1, 2012 at 3:08 am
      gabsound
      Participant
      Donna,

      I got a big smile when I saw your post. I’m sorry you are having cardiac issues, but so glad to hear melanoma is nowhere to be found. I ope Jimmy B is right–a cure,

      I told my oncologist that I hoed to live long enough to get heart disease. Be careful what you wish for right?

      So happy for you,

      Julie in Las Vegas

Viewing 8 reply threads
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