Hi everyone,
On June 4, 2000, I became officially Stage IV with a lung met. It was resected, and I was blissfully NED until this February, when I was diagnosed with multiple bone mets, a couple of sub-q's, and a nodule in the lung.
I won't kid you, the news was a bummer – after all those years I was thinking MM was in the past, and that something else was going to be the end of me.
Hi everyone,
On June 4, 2000, I became officially Stage IV with a lung met. It was resected, and I was blissfully NED until this February, when I was diagnosed with multiple bone mets, a couple of sub-q's, and a nodule in the lung.
I won't kid you, the news was a bummer – after all those years I was thinking MM was in the past, and that something else was going to be the end of me.
But I got my act together, and contacted my old guru Dr. O'Day (now at the Angeles Clinic in LA). After a lot of poking and hoop jumping, I qualified for the BRAF/MEK combo trial. I'm now starting my 4th week, with very few side effects. The funny thing is that my bone met symptoms, as well as my sub-q's, have disappeared – even before I started the trial. I'm taking this as good news – I'll get scans in 4 weeks, hopefully these will confirm the disease is in retreat.
I used to post annually on my anniversary date, not to brag, just to tell people that this is surviveable. I'm doing the same this year, and hope to keep on doing it year after year!
Best wishes to all,
Harry
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