› Forums › General Melanoma Community › Sharing NED good news – 4,5 years stage IV mel survival
- This topic has 18 replies, 6 voices, and was last updated 10 years, 6 months ago by DebbieH.
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- October 10, 2013 at 9:42 pm
Hello everyone,
Although very sad to hear the news about Dian from Spokane, I just want to share some good ones, knowing how the good stories of other people have been important to me at crisis points (bad scans) of this long journey :
I am on Zelboraf since March 2012, at half dose since May 2012. This is my 7th line of treatment. Zel worked well but I had surgery in May 2013 to remove three resisting mel nodules hidden in tummy fat. NED afterwards.
PET-scan and brain MRI last week : totally NED.
Even though, oncs won't allow to stop the medication. Apparently the risk of recurrence is still there.Zel side effects go on, but are bearable ….no choice, I guess!Beatrice, stage IV diagnosed Feb 2009.
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- October 10, 2013 at 9:57 pm
Being a young man 42 years of age and recently diagnosed Stage 4….this is great news! I’m happy to hear things are going well…I wish you continued NED!! Thanks for sharing!PS- I didn’t know Diane from Spokane but I know she was and still is an inspiration! Bless her!
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- October 10, 2013 at 9:57 pm
Being a young man 42 years of age and recently diagnosed Stage 4….this is great news! I’m happy to hear things are going well…I wish you continued NED!! Thanks for sharing!PS- I didn’t know Diane from Spokane but I know she was and still is an inspiration! Bless her!
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- October 10, 2013 at 9:57 pm
Being a young man 42 years of age and recently diagnosed Stage 4….this is great news! I’m happy to hear things are going well…I wish you continued NED!! Thanks for sharing!PS- I didn’t know Diane from Spokane but I know she was and still is an inspiration! Bless her!
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- October 12, 2013 at 3:24 pm
Congratulations! Wonderful to hear Beatrice! -
- October 12, 2013 at 3:24 pm
Congratulations! Wonderful to hear Beatrice! -
- October 12, 2013 at 3:24 pm
Congratulations! Wonderful to hear Beatrice! -
- October 14, 2013 at 7:43 pm
Dear Beatrice,
thank you for sharing these good news. So happy for you that everything looks so good. My husband is completing his 10th month on Zel this week. Scans two weeks ago went very well, nothing has changed, they are not sure whether existing nodules are still MM.
Wish that things continue to be so good for everyone here on this board!
All the best, Jenny
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- October 14, 2013 at 7:43 pm
Dear Beatrice,
thank you for sharing these good news. So happy for you that everything looks so good. My husband is completing his 10th month on Zel this week. Scans two weeks ago went very well, nothing has changed, they are not sure whether existing nodules are still MM.
Wish that things continue to be so good for everyone here on this board!
All the best, Jenny
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- October 14, 2013 at 7:43 pm
Dear Beatrice,
thank you for sharing these good news. So happy for you that everything looks so good. My husband is completing his 10th month on Zel this week. Scans two weeks ago went very well, nothing has changed, they are not sure whether existing nodules are still MM.
Wish that things continue to be so good for everyone here on this board!
All the best, Jenny
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