22 months NED thanks to Yervoy
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22 months NED thanks to Yervoy

› Forums › General Melanoma Community › 22 months NED thanks to Yervoy

  • Post
    • December 15, 2012 at 11:38 am
    Vermont_Donna
    Participant

    Hi everyone,

    I havent checked in here in a long while…I am 22 months NED after 4 doses of 3mg/kg Yervoy in a clinical trial. I feel so blessed after many treatments and many side effects endured over the last six years. I am however dealing with some cardiac issues (unrelated to melanoma) after having an acute stress (takot subo cardiomyopathy) heart attack in April of this year. i am no longer working and cardiologist's orders are to take better care of me!

     I hope to have time now to check in here on a more regular basis!

    Happy Holidays!

    Hi everyone,

    I havent checked in here in a long while…I am 22 months NED after 4 doses of 3mg/kg Yervoy in a clinical trial. I feel so blessed after many treatments and many side effects endured over the last six years. I am however dealing with some cardiac issues (unrelated to melanoma) after having an acute stress (takot subo cardiomyopathy) heart attack in April of this year. i am no longer working and cardiologist's orders are to take better care of me!

     I hope to have time now to check in here on a more regular basis!

    Happy Holidays!

    Vermont_Donna, stage sa

Viewing 29 reply threads
  • Replies
      • December 15, 2012 at 2:48 pm
      audgator
      Participant

      Very nice to hear, Donna. On this board we maybe hear too often from Yervoy non-responders like me.  I, and I assume "we", are heppy for your success.  Have a happy & healthy new year.   Dan

      • December 15, 2012 at 2:48 pm
      audgator
      Participant

      Very nice to hear, Donna. On this board we maybe hear too often from Yervoy non-responders like me.  I, and I assume "we", are heppy for your success.  Have a happy & healthy new year.   Dan

      • December 15, 2012 at 2:48 pm
      audgator
      Participant

      Very nice to hear, Donna. On this board we maybe hear too often from Yervoy non-responders like me.  I, and I assume "we", are heppy for your success.  Have a happy & healthy new year.   Dan

      • December 15, 2012 at 3:43 pm
      Tina D
      Participant

      Donna,

      Thank you for posting this good news about your continued NED status! I am getting ready to start ipi next week and find this so encouraging. I hope your cardiac issues settle down now that you are not working, and better able to get the care and rest you need.

      Wishing you a very long lifetime with your buddy, NED 🙂

      Tina

      • December 15, 2012 at 3:43 pm
      Tina D
      Participant

      Donna,

      Thank you for posting this good news about your continued NED status! I am getting ready to start ipi next week and find this so encouraging. I hope your cardiac issues settle down now that you are not working, and better able to get the care and rest you need.

      Wishing you a very long lifetime with your buddy, NED 🙂

      Tina

      • December 15, 2012 at 3:43 pm
      Tina D
      Participant

      Donna,

      Thank you for posting this good news about your continued NED status! I am getting ready to start ipi next week and find this so encouraging. I hope your cardiac issues settle down now that you are not working, and better able to get the care and rest you need.

      Wishing you a very long lifetime with your buddy, NED 🙂

      Tina

      • December 15, 2012 at 6:55 pm
      JakeinNY
      Participant

      Congratulations Donna!!!

      • December 15, 2012 at 6:55 pm
      JakeinNY
      Participant

      Congratulations Donna!!!

      • December 15, 2012 at 6:55 pm
      JakeinNY
      Participant

      Congratulations Donna!!!

      • December 15, 2012 at 7:13 pm
      jim Breitfeller
      Participant

      Congratulations Donna!! I hope to hear from in three years from now,  5 yrs, NED .

       

      Best regards,

       

      Jimmy B

      • December 15, 2012 at 7:13 pm
      jim Breitfeller
      Participant

      Congratulations Donna!! I hope to hear from in three years from now,  5 yrs, NED .

       

      Best regards,

       

      Jimmy B

        • December 15, 2012 at 11:19 pm
        NYKaren
        Participant
        I’ve been wondering how you’re doing, Donna.
        Congratulations on your great news, and I’m glad you’ll be able to take better care now.
        Stay well,
        Karen
        • December 15, 2012 at 11:19 pm
        NYKaren
        Participant
        I’ve been wondering how you’re doing, Donna.
        Congratulations on your great news, and I’m glad you’ll be able to take better care now.
        Stay well,
        Karen
        • December 15, 2012 at 11:19 pm
        NYKaren
        Participant
        I’ve been wondering how you’re doing, Donna.
        Congratulations on your great news, and I’m glad you’ll be able to take better care now.
        Stay well,
        Karen
      • December 15, 2012 at 7:13 pm
      jim Breitfeller
      Participant

      Congratulations Donna!! I hope to hear from in three years from now,  5 yrs, NED .

       

      Best regards,

       

      Jimmy B

      • December 16, 2012 at 1:51 pm
      Linny
      Participant

      Hi Donna, thank you for sharing your good news. It's nice to hear positive Yervoy stories. Sorry to hear about your cardiac issues. I hope that whatever was behind the latter has been resolved never to show up again. Ditto for the melanoma.

      • December 16, 2012 at 1:51 pm
      Linny
      Participant

      Hi Donna, thank you for sharing your good news. It's nice to hear positive Yervoy stories. Sorry to hear about your cardiac issues. I hope that whatever was behind the latter has been resolved never to show up again. Ditto for the melanoma.

      • December 16, 2012 at 1:51 pm
      Linny
      Participant

      Hi Donna, thank you for sharing your good news. It's nice to hear positive Yervoy stories. Sorry to hear about your cardiac issues. I hope that whatever was behind the latter has been resolved never to show up again. Ditto for the melanoma.

      • December 17, 2012 at 6:00 am
      Ali
      Participant

      Awesome!  Thanks for the update, good to hear positive IPI results!

      • December 17, 2012 at 6:00 am
      Ali
      Participant

      Awesome!  Thanks for the update, good to hear positive IPI results!

      • December 17, 2012 at 6:00 am
      Ali
      Participant

      Awesome!  Thanks for the update, good to hear positive IPI results!

      • December 17, 2012 at 7:34 pm
      awillett1991
      Participant
      Congrats Donna and thanks for posting this encouraging status! I needed to hear this, just finished Yervoy 2 weeks ago and the last week has been a rough one.
      • December 17, 2012 at 7:34 pm
      awillett1991
      Participant
      Congrats Donna and thanks for posting this encouraging status! I needed to hear this, just finished Yervoy 2 weeks ago and the last week has been a rough one.
      • December 17, 2012 at 7:34 pm
      awillett1991
      Participant
      Congrats Donna and thanks for posting this encouraging status! I needed to hear this, just finished Yervoy 2 weeks ago and the last week has been a rough one.
      • December 18, 2012 at 11:39 pm
      Rocco
      Participant

      Happy Holidays Donna!

      Glad to hear that you too are still NED thanks to Yervoy!  Sorry to hear of your cardiac issues.  Get  some rest – you've certainly earned it!

      -Rocco

      Ned since 2009 thanks to MDX-010 (Yervoy) trial.

      • December 18, 2012 at 11:39 pm
      Rocco
      Participant

      Happy Holidays Donna!

      Glad to hear that you too are still NED thanks to Yervoy!  Sorry to hear of your cardiac issues.  Get  some rest – you've certainly earned it!

      -Rocco

      Ned since 2009 thanks to MDX-010 (Yervoy) trial.

      • December 18, 2012 at 11:39 pm
      Rocco
      Participant

      Happy Holidays Donna!

      Glad to hear that you too are still NED thanks to Yervoy!  Sorry to hear of your cardiac issues.  Get  some rest – you've certainly earned it!

      -Rocco

      Ned since 2009 thanks to MDX-010 (Yervoy) trial.

      • December 18, 2012 at 11:40 pm
      Rocco
      Participant

      Happy Holidays Donna!

      Glad to hear that you too are still NED thanks to Yervoy!  Sorry to hear of your cardiac issues.  Get  some rest – you've certainly earned it!

      -Rocco

      Ned since 2009 thanks to MDX-010 (Yervoy) trial.

        • December 20, 2012 at 5:13 pm
        Snickers60
        Participant

        Way to go, DONNA !!!!   This is encouaging to all of us, anytime we read someone is NED on any treatment.   KEEP ON KEEPING ON !   Such good news – thanks for sharing.

        (P.S.   My Wayne has been NED for 7 months and had cardiac issues too.   Had one artery 95% blocked and they just put in a stent a few weeks ago.   Just goes to show you that other things CAN still happen.   HOPING you get great help and complete healing in that area too).   

        Nancy (devoted wife of 3 X Warrior Wayne)  <><

        • December 20, 2012 at 5:13 pm
        Snickers60
        Participant

        Way to go, DONNA !!!!   This is encouaging to all of us, anytime we read someone is NED on any treatment.   KEEP ON KEEPING ON !   Such good news – thanks for sharing.

        (P.S.   My Wayne has been NED for 7 months and had cardiac issues too.   Had one artery 95% blocked and they just put in a stent a few weeks ago.   Just goes to show you that other things CAN still happen.   HOPING you get great help and complete healing in that area too).   

        Nancy (devoted wife of 3 X Warrior Wayne)  <><

        • December 27, 2012 at 12:06 am
        Vermont_Donna
        Participant

        Thanks everyone……I go for my next oncology checkup on January 16th and hope the news will still be good! I just got put on my 4th heart medication and am taking it easy at home now that I am not working. I have my second grandchild due in April so I definitely want to be here to be "Grammy"!

        Happy Holidays to all,

        Vermont_Donna, stage 3a

        NED since 2/11 since Yervoy

        • December 27, 2012 at 12:06 am
        Vermont_Donna
        Participant

        Thanks everyone……I go for my next oncology checkup on January 16th and hope the news will still be good! I just got put on my 4th heart medication and am taking it easy at home now that I am not working. I have my second grandchild due in April so I definitely want to be here to be "Grammy"!

        Happy Holidays to all,

        Vermont_Donna, stage 3a

        NED since 2/11 since Yervoy

        • December 27, 2012 at 12:06 am
        Vermont_Donna
        Participant

        Thanks everyone……I go for my next oncology checkup on January 16th and hope the news will still be good! I just got put on my 4th heart medication and am taking it easy at home now that I am not working. I have my second grandchild due in April so I definitely want to be here to be "Grammy"!

        Happy Holidays to all,

        Vermont_Donna, stage 3a

        NED since 2/11 since Yervoy

        • December 20, 2012 at 5:13 pm
        Snickers60
        Participant

        Way to go, DONNA !!!!   This is encouaging to all of us, anytime we read someone is NED on any treatment.   KEEP ON KEEPING ON !   Such good news – thanks for sharing.

        (P.S.   My Wayne has been NED for 7 months and had cardiac issues too.   Had one artery 95% blocked and they just put in a stent a few weeks ago.   Just goes to show you that other things CAN still happen.   HOPING you get great help and complete healing in that area too).   

        Nancy (devoted wife of 3 X Warrior Wayne)  <><

      • December 18, 2012 at 11:40 pm
      Rocco
      Participant

      Happy Holidays Donna!

      Glad to hear that you too are still NED thanks to Yervoy!  Sorry to hear of your cardiac issues.  Get  some rest – you've certainly earned it!

      -Rocco

      Ned since 2009 thanks to MDX-010 (Yervoy) trial.

      • December 18, 2012 at 11:40 pm
      Rocco
      Participant

      Happy Holidays Donna!

      Glad to hear that you too are still NED thanks to Yervoy!  Sorry to hear of your cardiac issues.  Get  some rest – you've certainly earned it!

      -Rocco

      Ned since 2009 thanks to MDX-010 (Yervoy) trial.

      • April 20, 2013 at 2:29 am
      Daughterwhocares
      Participant
      Donna- can you tell us more about your story? Where did the melanoma first appear? What stage were you at? Did you have any chemo? We’re you ever hospitalized?

      I’d appreciate any info anyone can give that has had success with the drug

      • April 20, 2013 at 2:29 am
      Daughterwhocares
      Participant
      Donna- can you tell us more about your story? Where did the melanoma first appear? What stage were you at? Did you have any chemo? We’re you ever hospitalized?

      I’d appreciate any info anyone can give that has had success with the drug

      • April 20, 2013 at 2:29 am
      Daughterwhocares
      Participant
      Donna- can you tell us more about your story? Where did the melanoma first appear? What stage were you at? Did you have any chemo? We’re you ever hospitalized?

      I’d appreciate any info anyone can give that has had success with the drug

        • April 20, 2013 at 2:23 pm
        Linny
        Participant

        Donna has completed a profile. To read about her history, just click on her user name. smiley

        • April 20, 2013 at 2:23 pm
        Linny
        Participant

        Donna has completed a profile. To read about her history, just click on her user name. smiley

        • April 20, 2013 at 2:23 pm
        Linny
        Participant

        Donna has completed a profile. To read about her history, just click on her user name. smiley

Viewing 29 reply threads
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