Just celebrated 11 years of NED at stage IIIB
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Just celebrated 11 years of NED at stage IIIB

› Forums › General Melanoma Community › Just celebrated 11 years of NED at stage IIIB

  • Post
    • November 19, 2012 at 5:08 am
    AlisonC
    Participant

    Hi all,

    I got such a lot of support from this board some years back and feel bad that I am not here more often to "pay it forward"…..each year it's my mantra to try and give more back.

    Hi all,

    I got such a lot of support from this board some years back and feel bad that I am not here more often to "pay it forward"…..each year it's my mantra to try and give more back.

    Just stopping by to say though, that I just marked 11 years NED since my lymph node dissection and clinical trial.  I've been the uber-compliant patient from complementary treatment perspectives – meditate, juice, exercise etc etc (thank goodness even complementary treatment protocols include wine and chocolate !!) as well as all my mainstream medical stuff (excisions, clinical trials, scans etc) and so far so good.  Maybe an indolent mel but I'll never forget how it felt to walk down the corridor labelled "oncology" for my first meeting with my (wonderful) doc.

    And thanks to the MRF and this board in it's various incarnations over the years.  It's been a lifesaver every bit as much as my medical team was…..(so far).

    Taking nothing for granted but very pleased to have beaten the 10 year mark….

    thinking of you all

    AlisonC

    Stage IIIB

    NED since 2001

Viewing 26 reply threads
  • Replies
      • November 19, 2012 at 1:38 pm
      JoshF
      Participant
      Awesome!!!!! Congratulations and thank you for sharing. It’s nice to hear and offers hope!!!

      Josh

      • November 19, 2012 at 1:38 pm
      JoshF
      Participant
      Awesome!!!!! Congratulations and thank you for sharing. It’s nice to hear and offers hope!!!

      Josh

      • November 19, 2012 at 1:38 pm
      JoshF
      Participant
      Awesome!!!!! Congratulations and thank you for sharing. It’s nice to hear and offers hope!!!

      Josh

      • November 19, 2012 at 2:58 pm
      Linny
      Participant

      That's fantastic news, Alison! Here's to 11 more! yes

      It's uplifting to read stories such as yours.

      • November 19, 2012 at 2:58 pm
      Linny
      Participant

      That's fantastic news, Alison! Here's to 11 more! yes

      It's uplifting to read stories such as yours.

      • November 19, 2012 at 2:58 pm
      Linny
      Participant

      That's fantastic news, Alison! Here's to 11 more! yes

      It's uplifting to read stories such as yours.

      • November 19, 2012 at 4:12 pm
      CherylL
      Participant

      Oh Allison, HOW WONDERFUL! We are hoping my man's December PET scan shows nary a hot spot and that we join you in NED-land soon!

      Keep up the great work….and CELEBRATE!

      CherylL
      Wife of Scott, Stage 4 and SQUASHING it!

      • November 19, 2012 at 4:12 pm
      CherylL
      Participant

      Oh Allison, HOW WONDERFUL! We are hoping my man's December PET scan shows nary a hot spot and that we join you in NED-land soon!

      Keep up the great work….and CELEBRATE!

      CherylL
      Wife of Scott, Stage 4 and SQUASHING it!

      • November 19, 2012 at 4:12 pm
      CherylL
      Participant

      Oh Allison, HOW WONDERFUL! We are hoping my man's December PET scan shows nary a hot spot and that we join you in NED-land soon!

      Keep up the great work….and CELEBRATE!

      CherylL
      Wife of Scott, Stage 4 and SQUASHING it!

      • November 19, 2012 at 8:45 pm
      mel123
      Participant

      From a Stage IIIb sister, I have to say congratulations and I sure hope in 11 years I can say the same thing! I love to hear stories like this 🙂 I know you will have a lot to be thankful for this Thanksgiving, thank you for coming back and sharing your awesome news!

      • November 19, 2012 at 8:45 pm
      mel123
      Participant

      From a Stage IIIb sister, I have to say congratulations and I sure hope in 11 years I can say the same thing! I love to hear stories like this 🙂 I know you will have a lot to be thankful for this Thanksgiving, thank you for coming back and sharing your awesome news!

      • November 19, 2012 at 8:45 pm
      mel123
      Participant

      From a Stage IIIb sister, I have to say congratulations and I sure hope in 11 years I can say the same thing! I love to hear stories like this 🙂 I know you will have a lot to be thankful for this Thanksgiving, thank you for coming back and sharing your awesome news!

      • November 19, 2012 at 9:13 pm
      Swanee
      Participant

      Thank you so much for this gift of encouragement and hope for an NED status.  Your thoughtfulness to drop us a line and give us a little window into your journey after melanoma, goes a long way and provides  us with real time life.  I know there are so many others out there with similar stories and are on their way now, melanoma in their past, hopefully beaten and never to return, so it is very kind for you to think of us and send  a message of hope and inspiration.  

      It would be such a great gift to all of us here to have this website flooded with stories of past warriors who fought this battle and won.  

      Congratulations to you Alison and many prayers of strength and recovery to those yet out on the front battle lines.

      Swanee

      • November 19, 2012 at 9:13 pm
      Swanee
      Participant

      Thank you so much for this gift of encouragement and hope for an NED status.  Your thoughtfulness to drop us a line and give us a little window into your journey after melanoma, goes a long way and provides  us with real time life.  I know there are so many others out there with similar stories and are on their way now, melanoma in their past, hopefully beaten and never to return, so it is very kind for you to think of us and send  a message of hope and inspiration.  

      It would be such a great gift to all of us here to have this website flooded with stories of past warriors who fought this battle and won.  

      Congratulations to you Alison and many prayers of strength and recovery to those yet out on the front battle lines.

      Swanee

      • November 19, 2012 at 9:13 pm
      Swanee
      Participant

      Thank you so much for this gift of encouragement and hope for an NED status.  Your thoughtfulness to drop us a line and give us a little window into your journey after melanoma, goes a long way and provides  us with real time life.  I know there are so many others out there with similar stories and are on their way now, melanoma in their past, hopefully beaten and never to return, so it is very kind for you to think of us and send  a message of hope and inspiration.  

      It would be such a great gift to all of us here to have this website flooded with stories of past warriors who fought this battle and won.  

      Congratulations to you Alison and many prayers of strength and recovery to those yet out on the front battle lines.

      Swanee

      • November 19, 2012 at 10:43 pm
      triciad
      Participant

      Alison,

      What a wonderful way to start Thanksgiving week!  Thank you for sharing this wonderful news and may you be melanoma-free for the rest of your life!

      Happy holiday!

      Tricia

      • November 19, 2012 at 10:43 pm
      triciad
      Participant

      Alison,

      What a wonderful way to start Thanksgiving week!  Thank you for sharing this wonderful news and may you be melanoma-free for the rest of your life!

      Happy holiday!

      Tricia

      • November 19, 2012 at 10:43 pm
      triciad
      Participant

      Alison,

      What a wonderful way to start Thanksgiving week!  Thank you for sharing this wonderful news and may you be melanoma-free for the rest of your life!

      Happy holiday!

      Tricia

      • November 20, 2012 at 12:54 am
      BethA in VA
      Participant

      Good job.  I'm happy for you.  Nice to see an upbeat post filled with hope.    Beth 3/B

      • November 20, 2012 at 12:54 am
      BethA in VA
      Participant

      Good job.  I'm happy for you.  Nice to see an upbeat post filled with hope.    Beth 3/B

      • November 20, 2012 at 12:54 am
      BethA in VA
      Participant

      Good job.  I'm happy for you.  Nice to see an upbeat post filled with hope.    Beth 3/B

      • November 20, 2012 at 4:52 am
      DonW
      Participant

      Hi, Alison. I remember we chatted in the old chat room. Great to hear you are doing well and let's make it another 11 for starters.

      • November 20, 2012 at 4:52 am
      DonW
      Participant

      Hi, Alison. I remember we chatted in the old chat room. Great to hear you are doing well and let's make it another 11 for starters.

      • November 20, 2012 at 4:52 am
      DonW
      Participant

      Hi, Alison. I remember we chatted in the old chat room. Great to hear you are doing well and let's make it another 11 for starters.

      • November 22, 2012 at 3:08 am
      michelleg
      Participant

      Thanks for the upbeat post!  Next month I will be 2 1/2 years out – 3B also.  I hope to be able to post 11 years NED one day too.

       

      Michelle/ 3B

      • November 22, 2012 at 3:08 am
      michelleg
      Participant

      Thanks for the upbeat post!  Next month I will be 2 1/2 years out – 3B also.  I hope to be able to post 11 years NED one day too.

       

      Michelle/ 3B

      • November 22, 2012 at 3:08 am
      michelleg
      Participant

      Thanks for the upbeat post!  Next month I will be 2 1/2 years out – 3B also.  I hope to be able to post 11 years NED one day too.

       

      Michelle/ 3B

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