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Stage 3C – NED 11 years today

Forums General Melanoma Community Stage 3C – NED 11 years today

  • Post
    DebbieH
    Participant

    I'm posting this to maybe give some hope to those who are recently diagnosed. 

    I'm posting this to maybe give some hope to those who are recently diagnosed. 

    11+ years ago I found that the tiny stage 1 "lucky to have caught it so early" melanoma had returned to my lymphnodes and I was now stage 3C.  I wasn't hearing much hope from my doctors or where I went for a second opinion.  They were wheeling me into surgery at Univ. of Michigan right after the second tower was falling in NYC so I missed most of what happened that day.  When I woke up I was told I had 3 positive nodes and one had matted and had extracapsular extensions going into a muscle in my back so that was also removed.  My surgeon said he just kept going until he didn't see any more black.  I wanted to do a clinical trial but a brain mri showed "something" there so I didn't qualify and so I did interferon and got through 9 months before I had to quit.  U of M won't do scans (at least not then, not sure if that changed) after stage 3 unless you have symptoms so I had no scanxiety and I think it was easier for me to get on with my life once the side effects of the interferon were gone.  By the way, while it was no picnic, I found it doable and I'm glad I did. 

    In the past 11 years I've had 4 more grandchildren, acquired two more by our daughter's marriage, our daughter got married and is very happy and life is very good. 11 years ago I would never have imagined this.  There are plenty more like me on this bulletin board and if you were recently diagnoised, NEVER FORGET THIS.  I don't know what I would have done without this place and I thank the Pattersons for having the wisdom and compassion to begin this bulletin board in their sister's memory.  Never give up, never think of yourself as the number they all drill into us with their statistics.  Good luck to us all.

    DebbieH, stage IIIC, NED 11 years today after interferon and no scans 

Viewing 23 reply threads
  • Replies
      Janner
      Participant

      WooHoo!  Love hearing this, Deb.  I know you and I joined this board about the same time and it's had it's ups and downs… but glad we're both here kicking 11 years later! 

      HAPPY NEDversary!

      Janner

      Janner
      Participant

      WooHoo!  Love hearing this, Deb.  I know you and I joined this board about the same time and it's had it's ups and downs… but glad we're both here kicking 11 years later! 

      HAPPY NEDversary!

      Janner

      Janner
      Participant

      WooHoo!  Love hearing this, Deb.  I know you and I joined this board about the same time and it's had it's ups and downs… but glad we're both here kicking 11 years later! 

      HAPPY NEDversary!

      Janner

      JerryfromFauq
      Participant

      Thanks DEbbie, love to hear that story.  Ain't those grndkids that weren't supposed to get to know us LUCKY?  I don't spoil my Graandkids, THEY SPOIL ME!

      JerryfromFauq
      Participant

      Thanks DEbbie, love to hear that story.  Ain't those grndkids that weren't supposed to get to know us LUCKY?  I don't spoil my Graandkids, THEY SPOIL ME!

      JerryfromFauq
      Participant

      Thanks DEbbie, love to hear that story.  Ain't those grndkids that weren't supposed to get to know us LUCKY?  I don't spoil my Graandkids, THEY SPOIL ME!

      Ali
      Participant

      Love this!  Congrats!!

      Ali
      Participant

      Love this!  Congrats!!

      Ali
      Participant

      Love this!  Congrats!!

      akls
      Participant

      Deb,

      This is the best news!  11 years is awesome.  You are the one I always think of when I'm getting down and worrying.  Thanks for the update.

      Amy S. in Michigan

      akls
      Participant

      Deb,

      This is the best news!  11 years is awesome.  You are the one I always think of when I'm getting down and worrying.  Thanks for the update.

      Amy S. in Michigan

      akls
      Participant

      Deb,

      This is the best news!  11 years is awesome.  You are the one I always think of when I'm getting down and worrying.  Thanks for the update.

      Amy S. in Michigan

      Linny
      Participant

      Loved reading this! Congratulations!!!!!

      Linny
      Participant

      Loved reading this! Congratulations!!!!!

      Linny
      Participant

      Loved reading this! Congratulations!!!!!

      mom3girlsFL
      Participant

      Hi Debbie,

      I HAD to post after reading…I too had a small stage 1 WLE all clear back in 2002 only to have it reappear in my groin nodes affecting about 15 of them almost 2 years ago.  Been "okay" since – won't say "great" b/c we have had some scares!  I am so encouraged to read your post, 3c is a hard place to live…really nothing to do but "watch and wait"…keep looking for the floor to fall out from under us again though.

      Thanks for taking the time to post your news and congratulations!

      Laurie

      mom3girlsFL
      Participant

      Hi Debbie,

      I HAD to post after reading…I too had a small stage 1 WLE all clear back in 2002 only to have it reappear in my groin nodes affecting about 15 of them almost 2 years ago.  Been "okay" since – won't say "great" b/c we have had some scares!  I am so encouraged to read your post, 3c is a hard place to live…really nothing to do but "watch and wait"…keep looking for the floor to fall out from under us again though.

      Thanks for taking the time to post your news and congratulations!

      Laurie

      mom3girlsFL
      Participant

      Hi Debbie,

      I HAD to post after reading…I too had a small stage 1 WLE all clear back in 2002 only to have it reappear in my groin nodes affecting about 15 of them almost 2 years ago.  Been "okay" since – won't say "great" b/c we have had some scares!  I am so encouraged to read your post, 3c is a hard place to live…really nothing to do but "watch and wait"…keep looking for the floor to fall out from under us again though.

      Thanks for taking the time to post your news and congratulations!

      Laurie

      frankMill
      Participant

      Congrats Debbie!  You've been through hell and I'm happy you are NED for all these years.  You give me hope.

      Thanks!

      Frank

      frankMill
      Participant

      Congrats Debbie!  You've been through hell and I'm happy you are NED for all these years.  You give me hope.

      Thanks!

      Frank

      frankMill
      Participant

      Congrats Debbie!  You've been through hell and I'm happy you are NED for all these years.  You give me hope.

      Thanks!

      Frank

      King
      Participant

      Debbie,

      Yours is a great story of inspiration and hope.  You were such a support to me especially in the early years of my journey.  Tim and I are happy that we met you in person and hope that our paths just might cross again some day.

      Live life to the fullest and enjoy those grandchildren.  Congratulations!

      Stay Strong
      Kathie

      Stage IV 7/05 Liver mets

        NYKaren
        Participant

        Thanks so much for your post, Debbie.

        Enjoy those grandkids!

        karen

        NYKaren
        Participant

        oops, forgot CONGRATULATIONS!!!

        NYKaren
        Participant

        oops, forgot CONGRATULATIONS!!!

        NYKaren
        Participant

        oops, forgot CONGRATULATIONS!!!

        NYKaren
        Participant

        Thanks so much for your post, Debbie.

        Enjoy those grandkids!

        karen

        NYKaren
        Participant

        Thanks so much for your post, Debbie.

        Enjoy those grandkids!

        karen

      King
      Participant

      Debbie,

      Yours is a great story of inspiration and hope.  You were such a support to me especially in the early years of my journey.  Tim and I are happy that we met you in person and hope that our paths just might cross again some day.

      Live life to the fullest and enjoy those grandchildren.  Congratulations!

      Stay Strong
      Kathie

      Stage IV 7/05 Liver mets

      King
      Participant

      Debbie,

      Yours is a great story of inspiration and hope.  You were such a support to me especially in the early years of my journey.  Tim and I are happy that we met you in person and hope that our paths just might cross again some day.

      Live life to the fullest and enjoy those grandchildren.  Congratulations!

      Stay Strong
      Kathie

      Stage IV 7/05 Liver mets

Viewing 23 reply threads
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