scan week!
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scan week!

› Forums › General Melanoma Community › scan week!

  • Post
    • September 4, 2012 at 4:27 am
    Ali
    Participant

    Just wanted to put out a quick update. 

    In June, after completing 6 weeks of high dose IL-2 (with some amazing but mixed results), they found 25 brain mets and many others scattered around.  I could feel 12 underneath the skin.  One dose of IPI, developed colitis just 5 days into treatment, also felt the tumors shrinking that quickly.  I have not been able to do IPI again yet, just had a colonoscopy that still shows inflammation.  The tumors I can feel have continued to shrink and disappear, and can now feel only one little tiny one on my rib. 

    Just wanted to put out a quick update. 

    In June, after completing 6 weeks of high dose IL-2 (with some amazing but mixed results), they found 25 brain mets and many others scattered around.  I could feel 12 underneath the skin.  One dose of IPI, developed colitis just 5 days into treatment, also felt the tumors shrinking that quickly.  I have not been able to do IPI again yet, just had a colonoscopy that still shows inflammation.  The tumors I can feel have continued to shrink and disappear, and can now feel only one little tiny one on my rib. 

    Hoping this kind of response is happening in the brain!!!  I get the 12-week-after-IPI scans in one week.  Anxiety!  Thanks for all the triumphant stories I read today, they are going to get me through the week. 

    Good luck to all!

    p.s.  No symptoms of brain involvement.  Not so much as a headache.  I feel 100% and have started to run again.  This is good, yes?

     

Viewing 32 reply threads
  • Replies
      • September 4, 2012 at 5:36 am
      rbruce
      Participant

      Hoping and praying for great scan results. just got my scans and had good results, but waiting for them drove me crazy.  Running will help take your mind off of it and they'll be here before you know it! Good? YES! God bless.  Robert

      • September 4, 2012 at 5:36 am
      rbruce
      Participant

      Hoping and praying for great scan results. just got my scans and had good results, but waiting for them drove me crazy.  Running will help take your mind off of it and they'll be here before you know it! Good? YES! God bless.  Robert

      • September 4, 2012 at 5:36 am
      rbruce
      Participant

      Hoping and praying for great scan results. just got my scans and had good results, but waiting for them drove me crazy.  Running will help take your mind off of it and they'll be here before you know it! Good? YES! God bless.  Robert

      • September 4, 2012 at 11:39 am
      rosa1
      Participant
      I hope and pray your scans go well! I think it’s great you have started running again, it shows your body is able to do it. Good? I think it’s wonderful. Think positive and God bless always!
      Keep us posted.

      • September 4, 2012 at 11:39 am
      rosa1
      Participant
      I hope and pray your scans go well! I think it’s great you have started running again, it shows your body is able to do it. Good? I think it’s wonderful. Think positive and God bless always!
      Keep us posted.

      • September 4, 2012 at 11:39 am
      rosa1
      Participant
      I hope and pray your scans go well! I think it’s great you have started running again, it shows your body is able to do it. Good? I think it’s wonderful. Think positive and God bless always!
      Keep us posted.

      • September 4, 2012 at 12:01 pm
      jag
      Participant

      Ali, got my fingers crossed for you.

      God Bless

      John

      • September 4, 2012 at 12:01 pm
      jag
      Participant

      Ali, got my fingers crossed for you.

      God Bless

      John

      • September 4, 2012 at 12:01 pm
      jag
      Participant

      Ali, got my fingers crossed for you.

      God Bless

      John

      • September 4, 2012 at 12:19 pm
      Ali
      Participant

      Thanks guys, I forgot to mention that I am still taking Temodar (I started it with the IPI).  It has been pretty easy.

      • September 4, 2012 at 12:19 pm
      Ali
      Participant

      Thanks guys, I forgot to mention that I am still taking Temodar (I started it with the IPI).  It has been pretty easy.

      • September 4, 2012 at 12:19 pm
      Ali
      Participant

      Thanks guys, I forgot to mention that I am still taking Temodar (I started it with the IPI).  It has been pretty easy.

      • September 4, 2012 at 2:46 pm
      awillett1991
      Participant
      Great news Ali!! Congrats and keep fighting!
      • September 4, 2012 at 2:46 pm
      awillett1991
      Participant
      Great news Ali!! Congrats and keep fighting!
      • September 4, 2012 at 2:46 pm
      awillett1991
      Participant
      Great news Ali!! Congrats and keep fighting!
      • September 4, 2012 at 3:06 pm
      aldakota22
      Participant

      Know you will post great news next week.Praying that you get to do the Happy Dance also.Will keep you in my prayers.Beat  the Beast.  Al

      • September 4, 2012 at 3:06 pm
      aldakota22
      Participant

      Know you will post great news next week.Praying that you get to do the Happy Dance also.Will keep you in my prayers.Beat  the Beast.  Al

      • September 4, 2012 at 3:06 pm
      aldakota22
      Participant

      Know you will post great news next week.Praying that you get to do the Happy Dance also.Will keep you in my prayers.Beat  the Beast.  Al

      • September 4, 2012 at 6:31 pm
      Karin L
      Participant

      You got this Alisa.  It's going to be good news I feel it!

      Karin

      • September 4, 2012 at 6:31 pm
      Karin L
      Participant

      You got this Alisa.  It's going to be good news I feel it!

      Karin

      • September 4, 2012 at 6:31 pm
      Karin L
      Participant

      You got this Alisa.  It's going to be good news I feel it!

      Karin

      • September 4, 2012 at 7:24 pm
      TSchulz
      Participant

      Sounds like your body is ready to win this…. Best of luck with your upcoming scans! Troy

      • September 4, 2012 at 7:24 pm
      TSchulz
      Participant

      Sounds like your body is ready to win this…. Best of luck with your upcoming scans! Troy

      • September 4, 2012 at 7:24 pm
      TSchulz
      Participant

      Sounds like your body is ready to win this…. Best of luck with your upcoming scans! Troy

      • September 4, 2012 at 11:17 pm
      MaryD
      Participant

      Wow Ali – Yes, this is great that you can go out and run!    It sounds like you had a really quick Ipi response and I'll be sending good thoughts and prayers for encouraging scan results!

      Keep up the great work!

      Mary

      • September 4, 2012 at 11:17 pm
      MaryD
      Participant

      Wow Ali – Yes, this is great that you can go out and run!    It sounds like you had a really quick Ipi response and I'll be sending good thoughts and prayers for encouraging scan results!

      Keep up the great work!

      Mary

      • September 4, 2012 at 11:17 pm
      MaryD
      Participant

      Wow Ali – Yes, this is great that you can go out and run!    It sounds like you had a really quick Ipi response and I'll be sending good thoughts and prayers for encouraging scan results!

      Keep up the great work!

      Mary

      • September 5, 2012 at 12:36 am
      Phil S
      Participant
      Ali, We are totally hoping and praying for your good scans next week. You are amazing, keep running, great stress release! Keep up the good work, we love to read about shrinking tumors! God bless, Valerie (Phil’s wife)
      • September 5, 2012 at 12:36 am
      Phil S
      Participant
      Ali, We are totally hoping and praying for your good scans next week. You are amazing, keep running, great stress release! Keep up the good work, we love to read about shrinking tumors! God bless, Valerie (Phil’s wife)
      • September 5, 2012 at 12:36 am
      Phil S
      Participant
      Ali, We are totally hoping and praying for your good scans next week. You are amazing, keep running, great stress release! Keep up the good work, we love to read about shrinking tumors! God bless, Valerie (Phil’s wife)
      • September 5, 2012 at 5:58 am
      gabsound
      Participant
      Ali,
      It’s amazing how much our bodies can take. I am so glad you are having no symptoms from the brain mets, although that personally scares me too ( scans for me next week).

      I’m happy you are feeling so well. Hoping the IPI is working it’s magic.

      Thanks for posting,

      Julie

      • September 5, 2012 at 5:58 am
      gabsound
      Participant
      Ali,
      It’s amazing how much our bodies can take. I am so glad you are having no symptoms from the brain mets, although that personally scares me too ( scans for me next week).

      I’m happy you are feeling so well. Hoping the IPI is working it’s magic.

      Thanks for posting,

      Julie

      • September 5, 2012 at 5:58 am
      gabsound
      Participant
      Ali,
      It’s amazing how much our bodies can take. I am so glad you are having no symptoms from the brain mets, although that personally scares me too ( scans for me next week).

      I’m happy you are feeling so well. Hoping the IPI is working it’s magic.

      Thanks for posting,

      Julie

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