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this is brenda writting for KEVIN

Forums General Melanoma Community this is brenda writting for KEVIN

  • Post
    himynameiskevin
    Participant

    Hi this is Brenda writing on behalf of Kevin. Unfortunately I had to check him in to the hospital today. He began having intense pain in the lower part of his head Sunday night, lasting all day Monday. He was already having trouble eating, what with all the stress of waiting for scan results, and the pain made it worse. Unable to sleep or hold any sort of liquid or medication down, we made the choice to go to the E.R ,  we were only there for an hour, they gave him a prescription for pain (Percocet) , told him not to stress, and sent us on our way.

    Hi this is Brenda writing on behalf of Kevin. Unfortunately I had to check him in to the hospital today. He began having intense pain in the lower part of his head Sunday night, lasting all day Monday. He was already having trouble eating, what with all the stress of waiting for scan results, and the pain made it worse. Unable to sleep or hold any sort of liquid or medication down, we made the choice to go to the E.R ,  we were only there for an hour, they gave him a prescription for pain (Percocet) , told him not to stress, and sent us on our way.

    The pain medication didn't help, after numerous calls to his radiation oncologist, we got a call back with the advice to have him admitted. Although his wish was to zap the remaining mets in his head and start IL2 and possibly go back on Zelboraf it looks like we may have to take another route. Because of all the swelling in his brain he is back on a steroid (for now),  with the addition of new mets in his lungs and one in his hip area, the plan now is to do whole brain radiation and follow up with Temodar, with the hopes of some brain stabilization in order to be eligible for some clinical trials (fingers crossed).

    Even with this small bump in the road his spirits are still higher than ever. He's a fighter, he's Kevin. And Kevin doesn't give up.

    His mpip family has always had a special place in his heart, so i ask all of you to please send Kevin some good vibes.

     

    i wish all of you love and healing.

    -Brenda.

Viewing 47 reply threads
  • Replies
      Gene_S
      Participant

      Brenda, this was my first choice if I wasn't accepted onto a clinical trial, if nothing else please get some

      input from them…  time is running short to help Kevin!   Gene

       

      CHIPSA

      Center for Integrative Medicine 
      Nubes #670, Esq. Creston, Seccion Jardines del Sol
      Playas de Tijuana, Tijuana, B.C., Mexico 22700
      1-877-424-4772 or (1-877-4-CHIPSA)
      +52 66 80-2903 voice
      +52 66 80-29-08 fax

      http://chipsa.com/

      CHIPSA, the home of the Center for Integrative Medicine, is a 6 story, 70 bed, full-service hospital located in the beach area of Tijuana, Mexico. As with many of the clinics, the area is run down.  Their facilities include a lab, x-ray, physical therapy, a pediatric ward,  and a pharmacy. Twenty four hour care is provided by fully licensed physicians and nurses and a full range of on-call medical specialists designed to meet its patient needs.  CHIPSA is licensed to operate by the city, the state and the federal government.

      CHIPSA treats all forms of cancer, lymphoma, melanoma, hodgkins disease, heart disease, lupus, liver, kidney, thyroid, paget's disease, and a number of other diseases.

      The Center is the one of the few places in the world where patients can receive the Coley's Toxins modalities. They use a modified Gerson Diet. They also use the VG-1000 vaccine, CoQ10, Ozone Therapy, Hyperthermia, Laetrile, DMSO, Wobe Enzymes, Chelation, Biological Dentistry, diet, supplements, and a variety of other approaches.

      Gene_S
      Participant

      Brenda, this was my first choice if I wasn't accepted onto a clinical trial, if nothing else please get some

      input from them…  time is running short to help Kevin!   Gene

       

      CHIPSA

      Center for Integrative Medicine 
      Nubes #670, Esq. Creston, Seccion Jardines del Sol
      Playas de Tijuana, Tijuana, B.C., Mexico 22700
      1-877-424-4772 or (1-877-4-CHIPSA)
      +52 66 80-2903 voice
      +52 66 80-29-08 fax

      http://chipsa.com/

      CHIPSA, the home of the Center for Integrative Medicine, is a 6 story, 70 bed, full-service hospital located in the beach area of Tijuana, Mexico. As with many of the clinics, the area is run down.  Their facilities include a lab, x-ray, physical therapy, a pediatric ward,  and a pharmacy. Twenty four hour care is provided by fully licensed physicians and nurses and a full range of on-call medical specialists designed to meet its patient needs.  CHIPSA is licensed to operate by the city, the state and the federal government.

      CHIPSA treats all forms of cancer, lymphoma, melanoma, hodgkins disease, heart disease, lupus, liver, kidney, thyroid, paget's disease, and a number of other diseases.

      The Center is the one of the few places in the world where patients can receive the Coley's Toxins modalities. They use a modified Gerson Diet. They also use the VG-1000 vaccine, CoQ10, Ozone Therapy, Hyperthermia, Laetrile, DMSO, Wobe Enzymes, Chelation, Biological Dentistry, diet, supplements, and a variety of other approaches.

      Gene_S
      Participant

      Brenda, this was my first choice if I wasn't accepted onto a clinical trial, if nothing else please get some

      input from them…  time is running short to help Kevin!   Gene

       

      CHIPSA

      Center for Integrative Medicine 
      Nubes #670, Esq. Creston, Seccion Jardines del Sol
      Playas de Tijuana, Tijuana, B.C., Mexico 22700
      1-877-424-4772 or (1-877-4-CHIPSA)
      +52 66 80-2903 voice
      +52 66 80-29-08 fax

      http://chipsa.com/

      CHIPSA, the home of the Center for Integrative Medicine, is a 6 story, 70 bed, full-service hospital located in the beach area of Tijuana, Mexico. As with many of the clinics, the area is run down.  Their facilities include a lab, x-ray, physical therapy, a pediatric ward,  and a pharmacy. Twenty four hour care is provided by fully licensed physicians and nurses and a full range of on-call medical specialists designed to meet its patient needs.  CHIPSA is licensed to operate by the city, the state and the federal government.

      CHIPSA treats all forms of cancer, lymphoma, melanoma, hodgkins disease, heart disease, lupus, liver, kidney, thyroid, paget's disease, and a number of other diseases.

      The Center is the one of the few places in the world where patients can receive the Coley's Toxins modalities. They use a modified Gerson Diet. They also use the VG-1000 vaccine, CoQ10, Ozone Therapy, Hyperthermia, Laetrile, DMSO, Wobe Enzymes, Chelation, Biological Dentistry, diet, supplements, and a variety of other approaches.

      hope4cure1
      Participant

      Brenda, thank you so much for giving us the update on Kevin.  Yes, he's Kevin, and Kevin doesn't give up, but it's also obvious that you're Brenda, Brenda doesn't give up, supports Kevin, and gives him so many reasons to keep his spirits high.  His MPIP family thinks the world of both of you.  Major good vibes are on their way!

      Hope 

        deardad
        Participant

        Brenda,

        I'm sorry to hear about this bump in road.

        Life has so many bumps! Get over this one and go forward.

        BIG POSITIVE VIBES FOR YOU AND KEVIN.

        Nahmi from Melbourne

        deardad
        Participant

        Brenda,

        I'm sorry to hear about this bump in road.

        Life has so many bumps! Get over this one and go forward.

        BIG POSITIVE VIBES FOR YOU AND KEVIN.

        Nahmi from Melbourne

        deardad
        Participant

        Brenda,

        I'm sorry to hear about this bump in road.

        Life has so many bumps! Get over this one and go forward.

        BIG POSITIVE VIBES FOR YOU AND KEVIN.

        Nahmi from Melbourne

      hope4cure1
      Participant

      Brenda, thank you so much for giving us the update on Kevin.  Yes, he's Kevin, and Kevin doesn't give up, but it's also obvious that you're Brenda, Brenda doesn't give up, supports Kevin, and gives him so many reasons to keep his spirits high.  His MPIP family thinks the world of both of you.  Major good vibes are on their way!

      Hope 

      hope4cure1
      Participant

      Brenda, thank you so much for giving us the update on Kevin.  Yes, he's Kevin, and Kevin doesn't give up, but it's also obvious that you're Brenda, Brenda doesn't give up, supports Kevin, and gives him so many reasons to keep his spirits high.  His MPIP family thinks the world of both of you.  Major good vibes are on their way!

      Hope 

      aldakota22
      Participant

      Brenda So sorry kevin is having such a rough time.This cancer sucks  so bad.Love his fighting spirit.Definitely always say a special prayer for both him and you.Beat the Beast.  Al

        Vermont_Donna
        Participant

        Dear Brenda and Kevin,

           Good for you for being persistent and going BACK to the hospital and getting Kevein admitted! I am thinking positive thoughts and hoping this new plan takes care of the problems! Remember every treatment can buy you time til another treatment regime is put together, clinical trial comes along etc. Hold each other tight and remain the strong fighters that you both are.

        Hugs,

        Vermont_Donna, stage 3a

        Vermont_Donna
        Participant

        Dear Brenda and Kevin,

           Good for you for being persistent and going BACK to the hospital and getting Kevein admitted! I am thinking positive thoughts and hoping this new plan takes care of the problems! Remember every treatment can buy you time til another treatment regime is put together, clinical trial comes along etc. Hold each other tight and remain the strong fighters that you both are.

        Hugs,

        Vermont_Donna, stage 3a

        Vermont_Donna
        Participant

        Dear Brenda and Kevin,

           Good for you for being persistent and going BACK to the hospital and getting Kevein admitted! I am thinking positive thoughts and hoping this new plan takes care of the problems! Remember every treatment can buy you time til another treatment regime is put together, clinical trial comes along etc. Hold each other tight and remain the strong fighters that you both are.

        Hugs,

        Vermont_Donna, stage 3a

      aldakota22
      Participant

      Brenda So sorry kevin is having such a rough time.This cancer sucks  so bad.Love his fighting spirit.Definitely always say a special prayer for both him and you.Beat the Beast.  Al

      aldakota22
      Participant

      Brenda So sorry kevin is having such a rough time.This cancer sucks  so bad.Love his fighting spirit.Definitely always say a special prayer for both him and you.Beat the Beast.  Al

      lhaley
      Participant

      Brenda and Kevin.

       

      I am sorry hear to hear the least tomers.   I am hoping they can quickly get this under standra.

       

      My scans are in a few hours.    Sending Kevin hugs and streght for you.

      Linda

        King
        Participant

        Thinking of you, Linda!  You are one tough woman.

         

        Stay Strong

        King

        Stage IV 7/05 Liver mets

        King
        Participant

        Thinking of you, Linda!  You are one tough woman.

         

        Stay Strong

        King

        Stage IV 7/05 Liver mets

        King
        Participant

        Thinking of you, Linda!  You are one tough woman.

         

        Stay Strong

        King

        Stage IV 7/05 Liver mets

      lhaley
      Participant

      Brenda and Kevin.

       

      I am sorry hear to hear the least tomers.   I am hoping they can quickly get this under standra.

       

      My scans are in a few hours.    Sending Kevin hugs and streght for you.

      Linda

      lhaley
      Participant

      Brenda and Kevin.

       

      I am sorry hear to hear the least tomers.   I am hoping they can quickly get this under standra.

       

      My scans are in a few hours.    Sending Kevin hugs and streght for you.

      Linda

      triciad
      Participant

      Brenda,

      Behind every great man is a great woman..how true!  Kevin is so lucky to have you to inpsire him to beat this thing.  He's so young and been through so much already; however, there's still more to fight and he can do it!  Please send him our love and big hugs to climb this hill in his journey.  I'm praying the temodor will work for him.  God bless!

      Tricia

      triciad
      Participant

      Brenda,

      Behind every great man is a great woman..how true!  Kevin is so lucky to have you to inpsire him to beat this thing.  He's so young and been through so much already; however, there's still more to fight and he can do it!  Please send him our love and big hugs to climb this hill in his journey.  I'm praying the temodor will work for him.  God bless!

      Tricia

      triciad
      Participant

      Brenda,

      Behind every great man is a great woman..how true!  Kevin is so lucky to have you to inpsire him to beat this thing.  He's so young and been through so much already; however, there's still more to fight and he can do it!  Please send him our love and big hugs to climb this hill in his journey.  I'm praying the temodor will work for him.  God bless!

      Tricia

      awillett1991
      Participant
      So sorry to hear this. Prayers coming your way.
        NYKaren
        Participant
        Hi Brenda,
        You are a great advocate for Kevin. Kudos to you for making sure he was admitted.
        I hope the WBR does it’s job. Kevin and I will both be on Temodar, do we can compare notes.
        Sending good vibes to you both,
        Karen
        NYKaren
        Participant
        Hi Brenda,
        You are a great advocate for Kevin. Kudos to you for making sure he was admitted.
        I hope the WBR does it’s job. Kevin and I will both be on Temodar, do we can compare notes.
        Sending good vibes to you both,
        Karen
        NYKaren
        Participant
        Hi Brenda,
        You are a great advocate for Kevin. Kudos to you for making sure he was admitted.
        I hope the WBR does it’s job. Kevin and I will both be on Temodar, do we can compare notes.
        Sending good vibes to you both,
        Karen
      awillett1991
      Participant
      So sorry to hear this. Prayers coming your way.
      awillett1991
      Participant
      So sorry to hear this. Prayers coming your way.
      TSchulz
      Participant

      Brenda and Kevin, 

      I wish you all the best of luck getting things in line to move on to a promising clinical trial.  Take care of each other and I hope you can get home feeling better soon. 

      Best, Troy

      TSchulz
      Participant

      Brenda and Kevin, 

      I wish you all the best of luck getting things in line to move on to a promising clinical trial.  Take care of each other and I hope you can get home feeling better soon. 

      Best, Troy

      TSchulz
      Participant

      Brenda and Kevin, 

      I wish you all the best of luck getting things in line to move on to a promising clinical trial.  Take care of each other and I hope you can get home feeling better soon. 

      Best, Troy

      Laurie from maine
      Participant

      Brenda and Kevin,

      Thank you so much for posting and giving us all a chance to send strong prayers and vibes for kevin and you.  He is strong and so full of hope and courage.  , I hope he can continue to hold on to that during this time.  I am so glad you were able to get him back in the hospital, I am sorry he was in such pain. 

      Please let him know we are all thinking and praying for him! 

      laurie from maine

      Laurie from maine
      Participant

      Brenda and Kevin,

      Thank you so much for posting and giving us all a chance to send strong prayers and vibes for kevin and you.  He is strong and so full of hope and courage.  , I hope he can continue to hold on to that during this time.  I am so glad you were able to get him back in the hospital, I am sorry he was in such pain. 

      Please let him know we are all thinking and praying for him! 

      laurie from maine

        killmel
        Participant

        Kevin & Brenda,

         

        I am so depressed over your setback Kevin. This disease is so unfair. Why do drugs work on some and not others. My heart is broken for you both. I hope that the brain mets will get under control.

        My prayers are with you both. You are so young, you should be planning for your future,not planning for your next treatment or clinical trial.

        God Bless,

        MaryBeth

        killmel
        Participant

        Kevin & Brenda,

         

        I am so depressed over your setback Kevin. This disease is so unfair. Why do drugs work on some and not others. My heart is broken for you both. I hope that the brain mets will get under control.

        My prayers are with you both. You are so young, you should be planning for your future,not planning for your next treatment or clinical trial.

        God Bless,

        MaryBeth

        killmel
        Participant

        Kevin & Brenda,

         

        I am so depressed over your setback Kevin. This disease is so unfair. Why do drugs work on some and not others. My heart is broken for you both. I hope that the brain mets will get under control.

        My prayers are with you both. You are so young, you should be planning for your future,not planning for your next treatment or clinical trial.

        God Bless,

        MaryBeth

      Laurie from maine
      Participant

      Brenda and Kevin,

      Thank you so much for posting and giving us all a chance to send strong prayers and vibes for kevin and you.  He is strong and so full of hope and courage.  , I hope he can continue to hold on to that during this time.  I am so glad you were able to get him back in the hospital, I am sorry he was in such pain. 

      Please let him know we are all thinking and praying for him! 

      laurie from maine

      o2bcheri
      Participant

       

      Hi Brenda,

       

      big hugs.. 

       

      please call this man.. Robert.. 631-584-3100 X224  

      this is a place called the National Cancer Research Foundation..

      they are amazing.. they are healing cancers left and right.. Melanoma is one of them..

      they will not lie to you.. they are not about money.. but about life and healing..

      if you call Robert.. he will give you information.. and help you if he can..

       

      xxx

      o2bcheri
      Participant

       

      Hi Brenda,

       

      big hugs.. 

       

      please call this man.. Robert.. 631-584-3100 X224  

      this is a place called the National Cancer Research Foundation..

      they are amazing.. they are healing cancers left and right.. Melanoma is one of them..

      they will not lie to you.. they are not about money.. but about life and healing..

      if you call Robert.. he will give you information.. and help you if he can..

       

      xxx

      o2bcheri
      Participant

       

      Hi Brenda,

       

      big hugs.. 

       

      please call this man.. Robert.. 631-584-3100 X224  

      this is a place called the National Cancer Research Foundation..

      they are amazing.. they are healing cancers left and right.. Melanoma is one of them..

      they will not lie to you.. they are not about money.. but about life and healing..

      if you call Robert.. he will give you information.. and help you if he can..

       

      xxx

      Phil S
      Participant
      Brenda, Thanks for posting this update, was thinking about Kevin yesterday, wondering how he was doing! Please tell him that WBR can be effective in the stabilization of brain mets, my husband, Phil completed WBR the first week of November, and his MRIs have been fine since that time! You are both so strong and so positive, keep fighting, we are all praying for you and sending healing vibes! Take good care! Valerie (Phil’s wife)
      Phil S
      Participant
      Brenda, Thanks for posting this update, was thinking about Kevin yesterday, wondering how he was doing! Please tell him that WBR can be effective in the stabilization of brain mets, my husband, Phil completed WBR the first week of November, and his MRIs have been fine since that time! You are both so strong and so positive, keep fighting, we are all praying for you and sending healing vibes! Take good care! Valerie (Phil’s wife)
      Phil S
      Participant
      Brenda, Thanks for posting this update, was thinking about Kevin yesterday, wondering how he was doing! Please tell him that WBR can be effective in the stabilization of brain mets, my husband, Phil completed WBR the first week of November, and his MRIs have been fine since that time! You are both so strong and so positive, keep fighting, we are all praying for you and sending healing vibes! Take good care! Valerie (Phil’s wife)
      King
      Participant

      Brenda,

       

      Good vibes and more are being sent to you and Kevin.  Thanks for updating his MPIP family.  Kevin is one popular guy here and many of us have followed his journey from the start.  One day at a time.  So sorry about the latest curve ball.

      Stay Strong

      King

      Stage IV 7/05  Liver mets

      King
      Participant

      Brenda,

       

      Good vibes and more are being sent to you and Kevin.  Thanks for updating his MPIP family.  Kevin is one popular guy here and many of us have followed his journey from the start.  One day at a time.  So sorry about the latest curve ball.

      Stay Strong

      King

      Stage IV 7/05  Liver mets

      King
      Participant

      Brenda,

       

      Good vibes and more are being sent to you and Kevin.  Thanks for updating his MPIP family.  Kevin is one popular guy here and many of us have followed his journey from the start.  One day at a time.  So sorry about the latest curve ball.

      Stay Strong

      King

      Stage IV 7/05  Liver mets

      James from Sydney
      Participant

      Brenda we are thinking of you and Kevin and sending all the positive energy we can from Oz. Your on the right track, get him stable with WBR maybe then zap with Gamma and start a new treatment. I have been on this Board for many years and am continually amazed at how some people can turn things around when all seems lost. Kevin i know you will too.

       

      best wishes

      James

      James from Sydney
      Participant

      Brenda we are thinking of you and Kevin and sending all the positive energy we can from Oz. Your on the right track, get him stable with WBR maybe then zap with Gamma and start a new treatment. I have been on this Board for many years and am continually amazed at how some people can turn things around when all seems lost. Kevin i know you will too.

       

      best wishes

      James

      James from Sydney
      Participant

      Brenda we are thinking of you and Kevin and sending all the positive energy we can from Oz. Your on the right track, get him stable with WBR maybe then zap with Gamma and start a new treatment. I have been on this Board for many years and am continually amazed at how some people can turn things around when all seems lost. Kevin i know you will too.

       

      best wishes

      James

      Roxy1453
      Participant
      Good vibes coming your way!! I know you are a large part of his strength. I couldn’t do it without the support of my husband. Hang in there! My thoughts and prayers go out to you both.

      Nancy

      Roxy1453
      Participant
      Good vibes coming your way!! I know you are a large part of his strength. I couldn’t do it without the support of my husband. Hang in there! My thoughts and prayers go out to you both.

      Nancy

      Roxy1453
      Participant
      Good vibes coming your way!! I know you are a large part of his strength. I couldn’t do it without the support of my husband. Hang in there! My thoughts and prayers go out to you both.

      Nancy

      BrianP
      Participant

      Brenda,

      Praying for you and Kevin.  His fight and positive attitude has been an inspiration.  Stay Strong.

      Brian

      BrianP
      Participant

      Brenda,

      Praying for you and Kevin.  His fight and positive attitude has been an inspiration.  Stay Strong.

      Brian

      BrianP
      Participant

      Brenda,

      Praying for you and Kevin.  His fight and positive attitude has been an inspiration.  Stay Strong.

      Brian

      FormerCaregiver
      Participant

      Brenda, I am sorry to read that Kevin has been admitted to hospital. Hopefully things will improve soon.

      You and Kevin are in my thoughts and prayers.

      Frank from Australia

        Snickers60
        Participant

        Brenda and Kevin,

        Soooo sorry to hear this latest update on KEVIN !   What a trooper he has been and still is.   He has encouraged soooo many of us here.    PLEASE GET TO THE BEST OF THE BEST OF THE BEST TREATMENT YOU CAN, NOW !

        Don't wait, do not pass go, do not collect $200 (well, maybe take the money :-)))  – but GO !    

        Know that we are PRAYING FOR YOU and ASKING GOD to heal Kevin and to show him what to do and when and how, and to give wisdom and skills to the Doctors and other medical folks involved. 

        PLEASE UPDATE OFTEN !    JUST SICK TO HEAR THIS……….

        Nancy (devoted wife of 3 X warrior Wayne)

        Snickers60
        Participant

        Brenda and Kevin,

        Soooo sorry to hear this latest update on KEVIN !   What a trooper he has been and still is.   He has encouraged soooo many of us here.    PLEASE GET TO THE BEST OF THE BEST OF THE BEST TREATMENT YOU CAN, NOW !

        Don't wait, do not pass go, do not collect $200 (well, maybe take the money :-)))  – but GO !    

        Know that we are PRAYING FOR YOU and ASKING GOD to heal Kevin and to show him what to do and when and how, and to give wisdom and skills to the Doctors and other medical folks involved. 

        PLEASE UPDATE OFTEN !    JUST SICK TO HEAR THIS……….

        Nancy (devoted wife of 3 X warrior Wayne)

        Snickers60
        Participant

        Brenda and Kevin,

        Soooo sorry to hear this latest update on KEVIN !   What a trooper he has been and still is.   He has encouraged soooo many of us here.    PLEASE GET TO THE BEST OF THE BEST OF THE BEST TREATMENT YOU CAN, NOW !

        Don't wait, do not pass go, do not collect $200 (well, maybe take the money :-)))  – but GO !    

        Know that we are PRAYING FOR YOU and ASKING GOD to heal Kevin and to show him what to do and when and how, and to give wisdom and skills to the Doctors and other medical folks involved. 

        PLEASE UPDATE OFTEN !    JUST SICK TO HEAR THIS……….

        Nancy (devoted wife of 3 X warrior Wayne)

      FormerCaregiver
      Participant

      Brenda, I am sorry to read that Kevin has been admitted to hospital. Hopefully things will improve soon.

      You and Kevin are in my thoughts and prayers.

      Frank from Australia

      FormerCaregiver
      Participant

      Brenda, I am sorry to read that Kevin has been admitted to hospital. Hopefully things will improve soon.

      You and Kevin are in my thoughts and prayers.

      Frank from Australia

      Ali
      Participant

      Keep fighting!  You guys are inspiring.  Hoping for the best. 

      Ali

      Ali
      Participant

      Keep fighting!  You guys are inspiring.  Hoping for the best. 

      Ali

      Ali
      Participant

      Keep fighting!  You guys are inspiring.  Hoping for the best. 

      Ali

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