Two years NED
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Two years NED

› Forums › General Melanoma Community › Two years NED

  • Post
    • February 1, 2019 at 8:55 pm
    Jubes
    Participant

    Hi all

     

    just checking in with you all. Had my three monthly scans and all clear!  We are moving to 4 monthly now. I have been on Humira for joint pain, so we were scanning a bit more often as it suppresses the immune system. 

    Humira since September, and that has worked very well for me. 

    Im back at work and did a month tour of Europe with a concert in a different city almost every night. 

    So please to those of you going through a hard time, sometimes the combinations of treatments and surgeries really keep us going well for a long time. I wish you all wonderful recoveries and will keep on here to follow your stories

    much love

     

    anne-Louise 

Viewing 11 reply threads
  • Replies
      • February 1, 2019 at 9:54 pm
      Julie in SoCal
      Participant

      WOOHOOOOOOOOOOOO

      Happy dancing here in SoCal with you!

      Julie

      • February 1, 2019 at 10:47 pm
      Tilly1402
      Participant

      Fantastic news! Love to see positive posts it gives me and I’m sure many others hope, positivity and strength! X

      • February 1, 2019 at 11:01 pm
      lkb
      Participant

      Hooray, Anne-Louise! And concertizing–yes! Want to name me a piece from your repertoire, so I can associate it with good NED vibes? Congratulations!

        • February 10, 2019 at 8:08 pm
        Jubes
        Participant

        Well. The major works we played on tour were Mahler 5 and prokofiev 5. If they’re too long for you just listen to the Mahler 5 slow movement. You will love it!! 

      • February 1, 2019 at 11:15 pm
      Bubbles
      Participant

      So wonderful to hear this, Anne-Louise!!!!  And I swear….I am going to hear you play that fiddle for realz, one of these days!!!  Enjoy!  Love, c

        • February 10, 2019 at 8:27 pm
        Jubes
        Participant

        I will try to send you something Celeste. Not that I won’t come and meet you in person at my first opportunity, but just for the meantime I’ll try to post a video of a small performance I did at our golf girls get together. Not sure if it will work. 

        • February 10, 2019 at 8:47 pm
        Jubes
        Participant

        Any hints on how to upload a video onto here?

        • February 11, 2019 at 6:56 pm
        Bubbles
        Participant

        You can upload a link…to a video…I don't about a video in and of itself.  We WILL get together one of these days!!!  So glad you are well and making music!!  c

      • February 1, 2019 at 11:47 pm
      MarkR
      Participant

      Congratulations on your two years NED – great news!!

      i have just read your bio and your story is a bit similar to mine although I am at the just been surgically respected to NED stage so 2 years behind you, but very much hoping to follow your example

      Mark

        • February 10, 2019 at 8:24 pm
        Jubes
        Participant

        I hope you have the same result Mark! In any case we can feel like every bit of our life is a great bonus now! 

      • February 2, 2019 at 12:30 am
      Mark_DC
      Participant

      Jubes — great news and amazing you are touring and playing in all these concerts!!!

      Mark

      • February 2, 2019 at 12:43 am
      Casitas1
      Participant
      Oh Yeah! Wonderful. Best, Paul
      • February 2, 2019 at 1:06 am
      SABKLYN
      Participant

      Great news Jubaloo!!

      • February 2, 2019 at 2:09 am
      jbronicki
      Participant

      Wonderful post Jubes, I know you have suffered with joint pain greatly.  Just glad your music is able to be shared with the world, the world is lucky 🙂  I'm glad the Humira is working on the pain!

      • February 2, 2019 at 4:34 pm
      Coragirl
      Participant

      Wonderful news! Thank you for sharing.

      • February 4, 2019 at 10:00 am
      obtu.bt
      Participant
      Perfect news..
      • February 4, 2019 at 10:23 pm
      Hukill
      Participant

      So happy for you.

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