› Forums › General Melanoma Community › What to Do
- This topic has 69 replies, 13 voices, and was last updated 8 years, 10 months ago by
Scooby123.
- Post
-
- January 18, 2017 at 2:13 am
So brain MRI was stable. That means TIL would be a go. I'm having 2nd thoughts. Is TIL my best option at beating this or getting into trial like Paul is looking at. I guess I'd like to ask Paul if he'd do TIL again. How tough was it? It's tough decision because it's a long time away from my kids…. What are response rates…is the juice worth the squeeze? I'm really torn…somebody give me some guidance.
Josh
- Replies
-
-
- January 18, 2017 at 2:26 am
Do you have a good number of cells? Paul's difficulty (though I certainly don't want speak for him) was certainly compounded by fewer than was preferred. If you do have a good number of bad ass melanoma fighting cells ready to infused…this is a window…go for it!!! Have they offered you any other alternatives? Love you, Joshie!! Hang tough. c
-
- January 18, 2017 at 3:11 am
Do you know why it would take 3 weeks? Does it take that long to grow cells? If I were in your shoes….I would say yes to the dress…aka…the cells. BUT!!!! I would talk to my local doc. What is their best advice apart from the current treatment? I would look at all the various options we have all put forward. Of those….what sounds possible/interesting to you? Is there something? I'll research anything you say. THEN….call that contact. What do they have to say? What is their timeframe? This is not the time to play nice….one by one. This is the time to go nuts! Let's take this moment and make hay with any option we can. Who has the best deal? The best odds? The best timeframe?
-
- January 18, 2017 at 3:11 am
Do you know why it would take 3 weeks? Does it take that long to grow cells? If I were in your shoes….I would say yes to the dress…aka…the cells. BUT!!!! I would talk to my local doc. What is their best advice apart from the current treatment? I would look at all the various options we have all put forward. Of those….what sounds possible/interesting to you? Is there something? I'll research anything you say. THEN….call that contact. What do they have to say? What is their timeframe? This is not the time to play nice….one by one. This is the time to go nuts! Let's take this moment and make hay with any option we can. Who has the best deal? The best odds? The best timeframe?
-
- January 18, 2017 at 3:11 am
Do you know why it would take 3 weeks? Does it take that long to grow cells? If I were in your shoes….I would say yes to the dress…aka…the cells. BUT!!!! I would talk to my local doc. What is their best advice apart from the current treatment? I would look at all the various options we have all put forward. Of those….what sounds possible/interesting to you? Is there something? I'll research anything you say. THEN….call that contact. What do they have to say? What is their timeframe? This is not the time to play nice….one by one. This is the time to go nuts! Let's take this moment and make hay with any option we can. Who has the best deal? The best odds? The best timeframe?
-
- January 18, 2017 at 2:26 am
Do you have a good number of cells? Paul's difficulty (though I certainly don't want speak for him) was certainly compounded by fewer than was preferred. If you do have a good number of bad ass melanoma fighting cells ready to infused…this is a window…go for it!!! Have they offered you any other alternatives? Love you, Joshie!! Hang tough. c
-
- January 18, 2017 at 2:26 am
Do you have a good number of cells? Paul's difficulty (though I certainly don't want speak for him) was certainly compounded by fewer than was preferred. If you do have a good number of bad ass melanoma fighting cells ready to infused…this is a window…go for it!!! Have they offered you any other alternatives? Love you, Joshie!! Hang tough. c
-
- January 18, 2017 at 3:56 am
Glad to hear that the brain is stable, that is great!! I am anxious to hear what Paul has to say. I had a chance to speak to him about it yesterday, it sounds like his experience was intense, especially given he wasn't able to receive the second and third bag. But, I know everyone is diff rent. Is there any chance that you could get it touch with Hamid's office for at least some type of phone consultation? Just throwing out ideas, not that he is the "save all" for everyone, just a good source of info. Thinking and praying for some kind of answer for you Josh. Thanks for staying in touch on the board, it means alot 🙂
xo Jen
-
- January 18, 2017 at 3:56 am
Glad to hear that the brain is stable, that is great!! I am anxious to hear what Paul has to say. I had a chance to speak to him about it yesterday, it sounds like his experience was intense, especially given he wasn't able to receive the second and third bag. But, I know everyone is diff rent. Is there any chance that you could get it touch with Hamid's office for at least some type of phone consultation? Just throwing out ideas, not that he is the "save all" for everyone, just a good source of info. Thinking and praying for some kind of answer for you Josh. Thanks for staying in touch on the board, it means alot 🙂
xo Jen
-
- January 18, 2017 at 3:56 am
Glad to hear that the brain is stable, that is great!! I am anxious to hear what Paul has to say. I had a chance to speak to him about it yesterday, it sounds like his experience was intense, especially given he wasn't able to receive the second and third bag. But, I know everyone is diff rent. Is there any chance that you could get it touch with Hamid's office for at least some type of phone consultation? Just throwing out ideas, not that he is the "save all" for everyone, just a good source of info. Thinking and praying for some kind of answer for you Josh. Thanks for staying in touch on the board, it means alot 🙂
xo Jen
-
- January 18, 2017 at 4:02 am
Josh, I'm kind of hesitant to tell my story because it's kind unique, but first I want you to know that you are in my prayers. So….I was kind of in your boat but going in the opposite direction. I had melanoma here there and everywhere. I was going to try IL2 but an opportunity arose at NIH. I didn't have a met that was big enough for TIL so they did a core biopsy from a mass surrounding my ribs. It failed to grow enough cells so they enrolled me in a trial called MAGE TCR. The procedure is much like TIL however they removed white blood cells during apherisis and re-engineered them with a retro virus and IL2. They used chemo to take me to neutropenia and then gave me back my cells with a boost of IL2. I was able to receive 6 bags (or 8…honestly, I don't remember). A fever developed/infection but they got it under control. The cancer slowed for a bit (not even two months) but then some progression. I was crushed. They didn't consider it a success, but on the other hand I was only the third person to do the trial. My doctor, Evan Lipson (Johns Hopkins), said we need to get you into Merck's extended access program for Pembro. Hopkins didn't have it but Georgetown did with Dr. Michael Atkins. It worked. They considered it a combination since the treatments were so close together. It's not your typical combination but a combination just the same. I've been off treatment since June of 2015 and am still NED. I don't know if this helps, but I felt it would be good to share it with you.
Hope and Faith
Terrie
-
- January 18, 2017 at 4:02 am
Josh, I'm kind of hesitant to tell my story because it's kind unique, but first I want you to know that you are in my prayers. So….I was kind of in your boat but going in the opposite direction. I had melanoma here there and everywhere. I was going to try IL2 but an opportunity arose at NIH. I didn't have a met that was big enough for TIL so they did a core biopsy from a mass surrounding my ribs. It failed to grow enough cells so they enrolled me in a trial called MAGE TCR. The procedure is much like TIL however they removed white blood cells during apherisis and re-engineered them with a retro virus and IL2. They used chemo to take me to neutropenia and then gave me back my cells with a boost of IL2. I was able to receive 6 bags (or 8…honestly, I don't remember). A fever developed/infection but they got it under control. The cancer slowed for a bit (not even two months) but then some progression. I was crushed. They didn't consider it a success, but on the other hand I was only the third person to do the trial. My doctor, Evan Lipson (Johns Hopkins), said we need to get you into Merck's extended access program for Pembro. Hopkins didn't have it but Georgetown did with Dr. Michael Atkins. It worked. They considered it a combination since the treatments were so close together. It's not your typical combination but a combination just the same. I've been off treatment since June of 2015 and am still NED. I don't know if this helps, but I felt it would be good to share it with you.
Hope and Faith
Terrie
-
- January 18, 2017 at 4:02 am
Josh, I'm kind of hesitant to tell my story because it's kind unique, but first I want you to know that you are in my prayers. So….I was kind of in your boat but going in the opposite direction. I had melanoma here there and everywhere. I was going to try IL2 but an opportunity arose at NIH. I didn't have a met that was big enough for TIL so they did a core biopsy from a mass surrounding my ribs. It failed to grow enough cells so they enrolled me in a trial called MAGE TCR. The procedure is much like TIL however they removed white blood cells during apherisis and re-engineered them with a retro virus and IL2. They used chemo to take me to neutropenia and then gave me back my cells with a boost of IL2. I was able to receive 6 bags (or 8…honestly, I don't remember). A fever developed/infection but they got it under control. The cancer slowed for a bit (not even two months) but then some progression. I was crushed. They didn't consider it a success, but on the other hand I was only the third person to do the trial. My doctor, Evan Lipson (Johns Hopkins), said we need to get you into Merck's extended access program for Pembro. Hopkins didn't have it but Georgetown did with Dr. Michael Atkins. It worked. They considered it a combination since the treatments were so close together. It's not your typical combination but a combination just the same. I've been off treatment since June of 2015 and am still NED. I don't know if this helps, but I felt it would be good to share it with you.
Hope and Faith
Terrie
-
- January 18, 2017 at 4:09 am
Josh,
My email is thermaller@comcast.net and my phone number is 425-590-7393. It would be great to talk to you. Seriously.
– Paul
-
- January 18, 2017 at 4:09 am
Josh,
My email is thermaller@comcast.net and my phone number is 425-590-7393. It would be great to talk to you. Seriously.
– Paul
-
- January 18, 2017 at 4:09 am
Josh,
My email is thermaller@comcast.net and my phone number is 425-590-7393. It would be great to talk to you. Seriously.
– Paul
-
- January 18, 2017 at 2:18 pm
Hi Josh, the best link to data that I have on T-cell adoptive therapy is from MD Anderson and Dr. Patrick Hwu who brought the program to MD Anderson. The video is from 2013 sorry that I have nothing more current from him. He is speaking at the Angeles Clinic. Best Wishes!!!Ed https://www.youtube.com/watch?v=yGzJzzGj5Jw
-
- January 18, 2017 at 2:18 pm
Hi Josh, the best link to data that I have on T-cell adoptive therapy is from MD Anderson and Dr. Patrick Hwu who brought the program to MD Anderson. The video is from 2013 sorry that I have nothing more current from him. He is speaking at the Angeles Clinic. Best Wishes!!!Ed https://www.youtube.com/watch?v=yGzJzzGj5Jw
-
- January 18, 2017 at 2:18 pm
Hi Josh, the best link to data that I have on T-cell adoptive therapy is from MD Anderson and Dr. Patrick Hwu who brought the program to MD Anderson. The video is from 2013 sorry that I have nothing more current from him. He is speaking at the Angeles Clinic. Best Wishes!!!Ed https://www.youtube.com/watch?v=yGzJzzGj5Jw
-
- January 18, 2017 at 2:39 pm
Josh is there any way you could at least talk to Hamid office to see if there is anything they could do for you and then choose from the two? Or you could try the Til and keep Hamid in your back pocket if it doesn’t work. Tough decisions and I’m sure you’ve already thought about these. Good to hear from you. Best I can say is what does your gut tell you? -
- January 18, 2017 at 2:39 pm
Josh is there any way you could at least talk to Hamid office to see if there is anything they could do for you and then choose from the two? Or you could try the Til and keep Hamid in your back pocket if it doesn’t work. Tough decisions and I’m sure you’ve already thought about these. Good to hear from you. Best I can say is what does your gut tell you? -
- January 18, 2017 at 2:39 pm
Josh is there any way you could at least talk to Hamid office to see if there is anything they could do for you and then choose from the two? Or you could try the Til and keep Hamid in your back pocket if it doesn’t work. Tough decisions and I’m sure you’ve already thought about these. Good to hear from you. Best I can say is what does your gut tell you? -
- January 18, 2017 at 2:51 pm
Josh,
The final number of cells were known on the day for us. It was only 4 billion, an extremely small number but we went ahead anyway, it was the lowest they had ever actually gone ahead with. The trial had two arms with the IL-2 both low dose and high dose. juan got low dose which was a daily injection over two weeks. He had done high-dose before so we knew what that was like. i will say that our experience at MDA when Juan did high-dose was that they were all over it and the symptoms, no letting him leave hospital until fully recovered etc.
we wanted to do TIL because the success rate is about 50% I think for those who are well enough to do it and who harvest cells. There are specific examples of people who have become NED, I think even on this board. So it is actually a treatment that has been proven to work. It cannot be done by everyone of course. Additionally, this particular protocol combined it with Keytruda so three weeks after T-cell infusion was first Keytruda infusion. I think that is key as well.
obviously it did not work for Juan, but I think if they are already telling you they have about 100billion cells at this stage then that sounds fantastic to me. I would see about getting the immunitherapy immediately afterwards or whether you could do something with Dr Hamid after you have recovered.
the one final thought I have is whether you should see about Y-90 or something to shrink the liver tumours a bit first. It may not be an option per MDA, it may not be worth it as you have mets in a lot of other places and you would not want to delay TIL for that reason, plus the liver treatment may weaken you so that TIL would then be difficult afterwards. sorry if I am further confusing things, just wanted you to have all aspects to think through and ask about.
if you have time, it is a quick read. Look up Changing the Game Plan – the story of Trey Rood.
Bottom-line, not everyone gets the chance to do TIL, they only want to put the people through it who have a good chance, That is my honest opinion. Juan even asked the other day if he could try again but obviously not an option for us.
Good luck
Maria
-
- January 18, 2017 at 2:51 pm
Josh,
The final number of cells were known on the day for us. It was only 4 billion, an extremely small number but we went ahead anyway, it was the lowest they had ever actually gone ahead with. The trial had two arms with the IL-2 both low dose and high dose. juan got low dose which was a daily injection over two weeks. He had done high-dose before so we knew what that was like. i will say that our experience at MDA when Juan did high-dose was that they were all over it and the symptoms, no letting him leave hospital until fully recovered etc.
we wanted to do TIL because the success rate is about 50% I think for those who are well enough to do it and who harvest cells. There are specific examples of people who have become NED, I think even on this board. So it is actually a treatment that has been proven to work. It cannot be done by everyone of course. Additionally, this particular protocol combined it with Keytruda so three weeks after T-cell infusion was first Keytruda infusion. I think that is key as well.
obviously it did not work for Juan, but I think if they are already telling you they have about 100billion cells at this stage then that sounds fantastic to me. I would see about getting the immunitherapy immediately afterwards or whether you could do something with Dr Hamid after you have recovered.
the one final thought I have is whether you should see about Y-90 or something to shrink the liver tumours a bit first. It may not be an option per MDA, it may not be worth it as you have mets in a lot of other places and you would not want to delay TIL for that reason, plus the liver treatment may weaken you so that TIL would then be difficult afterwards. sorry if I am further confusing things, just wanted you to have all aspects to think through and ask about.
if you have time, it is a quick read. Look up Changing the Game Plan – the story of Trey Rood.
Bottom-line, not everyone gets the chance to do TIL, they only want to put the people through it who have a good chance, That is my honest opinion. Juan even asked the other day if he could try again but obviously not an option for us.
Good luck
Maria
-
- January 18, 2017 at 2:51 pm
Josh,
The final number of cells were known on the day for us. It was only 4 billion, an extremely small number but we went ahead anyway, it was the lowest they had ever actually gone ahead with. The trial had two arms with the IL-2 both low dose and high dose. juan got low dose which was a daily injection over two weeks. He had done high-dose before so we knew what that was like. i will say that our experience at MDA when Juan did high-dose was that they were all over it and the symptoms, no letting him leave hospital until fully recovered etc.
we wanted to do TIL because the success rate is about 50% I think for those who are well enough to do it and who harvest cells. There are specific examples of people who have become NED, I think even on this board. So it is actually a treatment that has been proven to work. It cannot be done by everyone of course. Additionally, this particular protocol combined it with Keytruda so three weeks after T-cell infusion was first Keytruda infusion. I think that is key as well.
obviously it did not work for Juan, but I think if they are already telling you they have about 100billion cells at this stage then that sounds fantastic to me. I would see about getting the immunitherapy immediately afterwards or whether you could do something with Dr Hamid after you have recovered.
the one final thought I have is whether you should see about Y-90 or something to shrink the liver tumours a bit first. It may not be an option per MDA, it may not be worth it as you have mets in a lot of other places and you would not want to delay TIL for that reason, plus the liver treatment may weaken you so that TIL would then be difficult afterwards. sorry if I am further confusing things, just wanted you to have all aspects to think through and ask about.
if you have time, it is a quick read. Look up Changing the Game Plan – the story of Trey Rood.
Bottom-line, not everyone gets the chance to do TIL, they only want to put the people through it who have a good chance, That is my honest opinion. Juan even asked the other day if he could try again but obviously not an option for us.
Good luck
Maria
-
- January 18, 2017 at 2:52 pm
Hi Josh,
All I can add to the info pot is that my specialist hospital registered to start TIL trials in the UK some time ago but looks like they have not started recruiting . Could be due to cash/ other therapies or wanting to see more results from the states. This article reviews http://www.touchoncology.com/articles/cancer-immunotherapy-interleukin-2-current-status-and-future-developments-0/page/3/0 and some of the references may give you outcome stats to help weigh things up. The other person you might consider talking to is Catherine Poole from Melanoma Foundation International. I gained the impression she has followed a number of patients through TIL trials- and may have insights that are helpful for you.
cpoole@melanomainternational.org
http://melanomainternational.org/2015/05/til-therapy-for-melanoma-magic-bullet-or/#.WH9_ZhuLTIU
It really stinks having to scramble at difficult and stressful times to find the info needed to make such important choices. Sorry, I have no answers for you but hope you and the family can gather enough information to be comfortable in the choices you make going forward. Best of luck Josh- we are all routing for you…
Deb PS Hugs
-
- January 18, 2017 at 2:52 pm
Hi Josh,
All I can add to the info pot is that my specialist hospital registered to start TIL trials in the UK some time ago but looks like they have not started recruiting . Could be due to cash/ other therapies or wanting to see more results from the states. This article reviews http://www.touchoncology.com/articles/cancer-immunotherapy-interleukin-2-current-status-and-future-developments-0/page/3/0 and some of the references may give you outcome stats to help weigh things up. The other person you might consider talking to is Catherine Poole from Melanoma Foundation International. I gained the impression she has followed a number of patients through TIL trials- and may have insights that are helpful for you.
cpoole@melanomainternational.org
http://melanomainternational.org/2015/05/til-therapy-for-melanoma-magic-bullet-or/#.WH9_ZhuLTIU
It really stinks having to scramble at difficult and stressful times to find the info needed to make such important choices. Sorry, I have no answers for you but hope you and the family can gather enough information to be comfortable in the choices you make going forward. Best of luck Josh- we are all routing for you…
Deb PS Hugs
-
- January 18, 2017 at 2:52 pm
Hi Josh,
All I can add to the info pot is that my specialist hospital registered to start TIL trials in the UK some time ago but looks like they have not started recruiting . Could be due to cash/ other therapies or wanting to see more results from the states. This article reviews http://www.touchoncology.com/articles/cancer-immunotherapy-interleukin-2-current-status-and-future-developments-0/page/3/0 and some of the references may give you outcome stats to help weigh things up. The other person you might consider talking to is Catherine Poole from Melanoma Foundation International. I gained the impression she has followed a number of patients through TIL trials- and may have insights that are helpful for you.
cpoole@melanomainternational.org
http://melanomainternational.org/2015/05/til-therapy-for-melanoma-magic-bullet-or/#.WH9_ZhuLTIU
It really stinks having to scramble at difficult and stressful times to find the info needed to make such important choices. Sorry, I have no answers for you but hope you and the family can gather enough information to be comfortable in the choices you make going forward. Best of luck Josh- we are all routing for you…
Deb PS Hugs
-
- January 18, 2017 at 3:11 pm
Josh, have you searched Til here on the forum? There are some good stories and info on there. The post I was just reading was from a few years back and I don’t know how they are doing now but read it, people that have been through it are the best to look to. -
- January 18, 2017 at 3:11 pm
Josh, have you searched Til here on the forum? There are some good stories and info on there. The post I was just reading was from a few years back and I don’t know how they are doing now but read it, people that have been through it are the best to look to. -
- January 18, 2017 at 3:11 pm
Josh, have you searched Til here on the forum? There are some good stories and info on there. The post I was just reading was from a few years back and I don’t know how they are doing now but read it, people that have been through it are the best to look to. -
- January 18, 2017 at 5:01 pm
Josh, one more thing about my trial at NIH. I was on schedule to do Interleukin 2 but my doctors felt that I should try TIL first (ended up a gene transfer type of deal) in the event that some side effect of IL2 would prohibit me from at least attempting TIL or a TIL like therapy. We were weighing the success rates.
Praying for you, Josh.
Terrie
-
- January 18, 2017 at 5:01 pm
Josh, one more thing about my trial at NIH. I was on schedule to do Interleukin 2 but my doctors felt that I should try TIL first (ended up a gene transfer type of deal) in the event that some side effect of IL2 would prohibit me from at least attempting TIL or a TIL like therapy. We were weighing the success rates.
Praying for you, Josh.
Terrie
-
- January 18, 2017 at 5:01 pm
Josh, one more thing about my trial at NIH. I was on schedule to do Interleukin 2 but my doctors felt that I should try TIL first (ended up a gene transfer type of deal) in the event that some side effect of IL2 would prohibit me from at least attempting TIL or a TIL like therapy. We were weighing the success rates.
Praying for you, Josh.
Terrie
-
- January 18, 2017 at 5:44 pm
Josh,
Vruti told me on one of my trips to MDA that by her estimates they are seeing about a 40% response rate for untreated patients and a 30% response rate for pretreated patients with their TIL at MDA.
Brian
-
- January 18, 2017 at 8:19 pm
That's interesting because if you watch the link Ed sent, Dr Hwu's speech contradicts this. Just goes to show the varying opinions out there. 30% response rate for treatment of that magnitude…not sure I'd go that route.
How you doing on the ACT trial? I was really hoping that was my magic bullett….
-
- January 18, 2017 at 10:56 pm
I haven't watched Ed's link so I'll go back and take a look at that. Not sure how scientific Vruti's 40/30 was but that's what she shared with me.
I go back next week for the 3rd Ipi and 1st scan since startting. Feeling good. Only side effect so far was a pretty good rash for about 10 days after the initial infusion. Since then nothing. Still keeping you in my daily prayers. Hang tough.
-
- January 19, 2017 at 2:19 pm
Hi Brian and Josh, I have some more for you if you are up to it. This one features Dr. Steven Rosenberg of the NIH who I believe trained Dr. Hwu before he went to MD Anderson. If you go to the 1.14 hr mark of the documentary it starts to talk about Immunotherapy and Dr.Rosenberg research. Dr. Jim Allison and Ipi are featured as well around the 1.22hr mark. Best Wishes!!!Ed https://www.youtube.com/watch?v=yQMlzXcwsdQ
-
- January 19, 2017 at 2:19 pm
Hi Brian and Josh, I have some more for you if you are up to it. This one features Dr. Steven Rosenberg of the NIH who I believe trained Dr. Hwu before he went to MD Anderson. If you go to the 1.14 hr mark of the documentary it starts to talk about Immunotherapy and Dr.Rosenberg research. Dr. Jim Allison and Ipi are featured as well around the 1.22hr mark. Best Wishes!!!Ed https://www.youtube.com/watch?v=yQMlzXcwsdQ
-
- January 19, 2017 at 2:19 pm
Hi Brian and Josh, I have some more for you if you are up to it. This one features Dr. Steven Rosenberg of the NIH who I believe trained Dr. Hwu before he went to MD Anderson. If you go to the 1.14 hr mark of the documentary it starts to talk about Immunotherapy and Dr.Rosenberg research. Dr. Jim Allison and Ipi are featured as well around the 1.22hr mark. Best Wishes!!!Ed https://www.youtube.com/watch?v=yQMlzXcwsdQ
-
- January 18, 2017 at 10:56 pm
I haven't watched Ed's link so I'll go back and take a look at that. Not sure how scientific Vruti's 40/30 was but that's what she shared with me.
I go back next week for the 3rd Ipi and 1st scan since startting. Feeling good. Only side effect so far was a pretty good rash for about 10 days after the initial infusion. Since then nothing. Still keeping you in my daily prayers. Hang tough.
-
- January 18, 2017 at 10:56 pm
I haven't watched Ed's link so I'll go back and take a look at that. Not sure how scientific Vruti's 40/30 was but that's what she shared with me.
I go back next week for the 3rd Ipi and 1st scan since startting. Feeling good. Only side effect so far was a pretty good rash for about 10 days after the initial infusion. Since then nothing. Still keeping you in my daily prayers. Hang tough.
-
- January 18, 2017 at 8:19 pm
That's interesting because if you watch the link Ed sent, Dr Hwu's speech contradicts this. Just goes to show the varying opinions out there. 30% response rate for treatment of that magnitude…not sure I'd go that route.
How you doing on the ACT trial? I was really hoping that was my magic bullett….
-
- January 18, 2017 at 8:19 pm
That's interesting because if you watch the link Ed sent, Dr Hwu's speech contradicts this. Just goes to show the varying opinions out there. 30% response rate for treatment of that magnitude…not sure I'd go that route.
How you doing on the ACT trial? I was really hoping that was my magic bullett….
-
- January 20, 2017 at 7:43 pm
Hi Josh so good to hear from you Hun. Pleased brain stable and you have a option on treatment. The guys have given you a lot to think about. Sorry I do not know much about Till treatment only learning from others on this wounderful sight. I want you to know I am praying for you and sending hugs.
scooby
-
- January 20, 2017 at 7:43 pm
Hi Josh so good to hear from you Hun. Pleased brain stable and you have a option on treatment. The guys have given you a lot to think about. Sorry I do not know much about Till treatment only learning from others on this wounderful sight. I want you to know I am praying for you and sending hugs.
scooby
-
- January 20, 2017 at 7:43 pm
Hi Josh so good to hear from you Hun. Pleased brain stable and you have a option on treatment. The guys have given you a lot to think about. Sorry I do not know much about Till treatment only learning from others on this wounderful sight. I want you to know I am praying for you and sending hugs.
scooby
-
- January 20, 2017 at 7:44 pm
Hi Josh so good to hear from you Hun. Pleased brain stable and you have a option on treatment. The guys have given you a lot to think about. Sorry I do not know much about Till treatment only learning from others on this wounderful sight. I want you to know I am praying for you and sending hugs.
scooby
-
- January 20, 2017 at 7:44 pm
Hi Josh so good to hear from you Hun. Pleased brain stable and you have a option on treatment. The guys have given you a lot to think about. Sorry I do not know much about Till treatment only learning from others on this wounderful sight. I want you to know I am praying for you and sending hugs.
scooby
-
- January 20, 2017 at 7:44 pm
Hi Josh so good to hear from you Hun. Pleased brain stable and you have a option on treatment. The guys have given you a lot to think about. Sorry I do not know much about Till treatment only learning from others on this wounderful sight. I want you to know I am praying for you and sending hugs.
scooby
-
- You must be logged in to reply to this topic.