Update and THANK YOU
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Update and THANK YOU

› Forums › Cutaneous Melanoma Community › Update and THANK YOU

  • Post
    • November 11, 2015 at 4:48 pm
    AshleyS
    Participant

    After beginning (then trial) Ipi/Nivo combo therapy in March 2015, I was kicked off after 3/4 treatments. However, scans in May indicated the combo worked well – all subcutaneous tumors were gone and my liver mets shrunk by 95%. Scans in August were stable. After a day full of scans yesterday, I met with my doctor this morning and I'm now a COMPLETE RESPONDER! We are doing a happy dance. 

    Thank you to everyone who has answered my questions on this board. Your help and support has been tremendous, perhaps even lifesaving – I switched my care to MDA after everyone here urged me to see a specialist.

    Also, thank you to everyone who participated in Yervoy, Opdivo, and the combo trial before me. Again, you may have helped save my life. 

    I can't wait to get home, hug my babies, and to start planning my little guy's first birthday!

    Sincerely,

    Ashley 

Viewing 53 reply threads
  • Replies
      • November 11, 2015 at 5:02 pm
      mkirkland
      Participant

      Awesome news Ashley!!!  So happy for your wonderful results! Hope your baby has the best birthday ever!! 

      • November 11, 2015 at 5:02 pm
      mkirkland
      Participant

      Awesome news Ashley!!!  So happy for your wonderful results! Hope your baby has the best birthday ever!! 

      • November 11, 2015 at 5:02 pm
      mkirkland
      Participant

      Awesome news Ashley!!!  So happy for your wonderful results! Hope your baby has the best birthday ever!! 

        • November 12, 2015 at 6:43 pm
        Debbieamccoy
        Participant

        Congrats I hope i reach your success I've had 2 doses of the combo and now found out the mets is also in my liver and lungs and feeling discouraged continued success to you 

        • November 12, 2015 at 6:43 pm
        Debbieamccoy
        Participant

        Congrats I hope i reach your success I've had 2 doses of the combo and now found out the mets is also in my liver and lungs and feeling discouraged continued success to you 

        • November 12, 2015 at 6:43 pm
        Debbieamccoy
        Participant

        Congrats I hope i reach your success I've had 2 doses of the combo and now found out the mets is also in my liver and lungs and feeling discouraged continued success to you 

        • November 13, 2015 at 4:44 am
        AshleyS
        Participant

        Debbie,

        Try to stay positive. It's tough sometimes fighting this B**** but I truly believe the mind is powerful. To be honest, I didn't think these results could ever be my reality. Just keep on keeping on. 

        Ashley 

         

        • November 13, 2015 at 4:44 am
        AshleyS
        Participant

        Debbie,

        Try to stay positive. It's tough sometimes fighting this B**** but I truly believe the mind is powerful. To be honest, I didn't think these results could ever be my reality. Just keep on keeping on. 

        Ashley 

         

        • November 13, 2015 at 4:44 am
        AshleyS
        Participant

        Debbie,

        Try to stay positive. It's tough sometimes fighting this B**** but I truly believe the mind is powerful. To be honest, I didn't think these results could ever be my reality. Just keep on keeping on. 

        Ashley 

         

      • November 11, 2015 at 5:44 pm
      Eileensulliv
      Participant

      YAYYYYYY!!! That's wonderful news, Ashley!! Truly a great reason to celebrate! Your story is inspiring, trial buddy!  

      • November 11, 2015 at 5:44 pm
      Eileensulliv
      Participant

      YAYYYYYY!!! That's wonderful news, Ashley!! Truly a great reason to celebrate! Your story is inspiring, trial buddy!  

      • November 11, 2015 at 5:44 pm
      Eileensulliv
      Participant

      YAYYYYYY!!! That's wonderful news, Ashley!! Truly a great reason to celebrate! Your story is inspiring, trial buddy!  

      • November 11, 2015 at 6:00 pm
      jbronicki
      Participant

      Absolutely fabulous news!  Congratulatons to you and your family!

      • November 11, 2015 at 6:00 pm
      jbronicki
      Participant

      Absolutely fabulous news!  Congratulatons to you and your family!

      • November 11, 2015 at 6:00 pm
      jbronicki
      Participant

      Absolutely fabulous news!  Congratulatons to you and your family!

      • November 11, 2015 at 6:57 pm
      ldub
      Participant

      Fantastic News!

      • November 11, 2015 at 6:57 pm
      ldub
      Participant

      Fantastic News!

      • November 11, 2015 at 6:57 pm
      ldub
      Participant

      Fantastic News!

      • November 11, 2015 at 8:32 pm
      DZnDef
      Participant

      Congratulations Ashley!  Phenomenal news!  What a fantastic turn of events.  It warms my heart to hear success stories like yours.  It is possible to beat this dreaded disease!  May you remain free of melanoma well into your hundreds!

      • November 11, 2015 at 8:32 pm
      DZnDef
      Participant

      Congratulations Ashley!  Phenomenal news!  What a fantastic turn of events.  It warms my heart to hear success stories like yours.  It is possible to beat this dreaded disease!  May you remain free of melanoma well into your hundreds!

      • November 11, 2015 at 8:32 pm
      DZnDef
      Participant

      Congratulations Ashley!  Phenomenal news!  What a fantastic turn of events.  It warms my heart to hear success stories like yours.  It is possible to beat this dreaded disease!  May you remain free of melanoma well into your hundreds!

      • November 11, 2015 at 9:10 pm
      arthurjedi007
      Participant

      Live long and prosper. That is wonderful.

      Artie

      • November 11, 2015 at 9:10 pm
      arthurjedi007
      Participant

      Live long and prosper. That is wonderful.

      Artie

      • November 11, 2015 at 9:10 pm
      arthurjedi007
      Participant

      Live long and prosper. That is wonderful.

      Artie

        • November 15, 2015 at 9:12 pm
        _Paul_
        Participant

        Artie you are going to have to change your username now to arthurspock007!

        • November 15, 2015 at 9:12 pm
        _Paul_
        Participant

        Artie you are going to have to change your username now to arthurspock007!

        • November 15, 2015 at 9:12 pm
        _Paul_
        Participant

        Artie you are going to have to change your username now to arthurspock007!

      • November 11, 2015 at 10:10 pm
      Bubbles
      Participant

      Oh, Ashley!  That is wonderful for you and yours!!  Plus, you demonstrate one more example of how immunotherapy can not only maintain response after stopping administration…but continue to improve the response!!!  So. Super. GREAT!!!!  love, c

      • November 11, 2015 at 10:10 pm
      Bubbles
      Participant

      Oh, Ashley!  That is wonderful for you and yours!!  Plus, you demonstrate one more example of how immunotherapy can not only maintain response after stopping administration…but continue to improve the response!!!  So. Super. GREAT!!!!  love, c

      • November 11, 2015 at 10:10 pm
      Bubbles
      Participant

      Oh, Ashley!  That is wonderful for you and yours!!  Plus, you demonstrate one more example of how immunotherapy can not only maintain response after stopping administration…but continue to improve the response!!!  So. Super. GREAT!!!!  love, c

        • November 11, 2015 at 10:22 pm
        AshleyS
        Participant

        I should have stated that I'm still on Opdivo!

        • November 11, 2015 at 10:22 pm
        AshleyS
        Participant

        I should have stated that I'm still on Opdivo!

        • November 11, 2015 at 10:22 pm
        AshleyS
        Participant

        I should have stated that I'm still on Opdivo!

        • November 11, 2015 at 11:06 pm
        Bubbles
        Participant

        Well, that works too!!!  Enjoy! c

        • November 11, 2015 at 11:06 pm
        Bubbles
        Participant

        Well, that works too!!!  Enjoy! c

        • November 11, 2015 at 11:06 pm
        Bubbles
        Participant

        Well, that works too!!!  Enjoy! c

      • November 11, 2015 at 11:20 pm
      jenny22
      Participant

      Ashley-

      What a great post to see today!!!! Such  sensational news for you and family!!!!!!

      Make me soooo happy to read this!

      Keep celebrating!

      All the best,

      j

      • November 11, 2015 at 11:20 pm
      jenny22
      Participant

      Ashley-

      What a great post to see today!!!! Such  sensational news for you and family!!!!!!

      Make me soooo happy to read this!

      Keep celebrating!

      All the best,

      j

      • November 11, 2015 at 11:20 pm
      jenny22
      Participant

      Ashley-

      What a great post to see today!!!! Such  sensational news for you and family!!!!!!

      Make me soooo happy to read this!

      Keep celebrating!

      All the best,

      j

        • November 12, 2015 at 1:08 am
        vivian
        Participant

        Ashley,

        I am so happy for you and your family!!!

        Lear

        • November 12, 2015 at 1:08 am
        vivian
        Participant

        Ashley,

        I am so happy for you and your family!!!

        Lear

        • November 12, 2015 at 1:08 am
        vivian
        Participant

        Ashley,

        I am so happy for you and your family!!!

        Lear

      • November 12, 2015 at 1:15 am
      JoshF
      Participant

      Just love hearing this….great news!!!

       

      Josh

      • November 12, 2015 at 1:15 am
      JoshF
      Participant

      Just love hearing this….great news!!!

       

      Josh

      • November 12, 2015 at 1:15 am
      JoshF
      Participant

      Just love hearing this….great news!!!

       

      Josh

      • November 12, 2015 at 11:41 am
      Jubes
      Participant

      Woohoo!! Great news Ashley. Gives us all hope!!

      anne-Louise 

      • November 12, 2015 at 11:41 am
      Jubes
      Participant

      Woohoo!! Great news Ashley. Gives us all hope!!

      anne-Louise 

      • November 12, 2015 at 11:41 am
      Jubes
      Participant

      Woohoo!! Great news Ashley. Gives us all hope!!

      anne-Louise 

      • November 12, 2015 at 12:14 pm
      Mat
      Participant

      Awesome news!

      • November 12, 2015 at 12:14 pm
      Mat
      Participant

      Awesome news!

      • November 12, 2015 at 12:14 pm
      Mat
      Participant

      Awesome news!

      • November 12, 2015 at 1:45 pm
      dentholla
      Participant

      Ashley, I think about you often and am over the moon with your news!  Congrats and enjoy his first birthday – a LOT to celebrate!

      ~Kristi

      • November 12, 2015 at 1:45 pm
      dentholla
      Participant

      Ashley, I think about you often and am over the moon with your news!  Congrats and enjoy his first birthday – a LOT to celebrate!

      ~Kristi

      • November 12, 2015 at 1:45 pm
      dentholla
      Participant

      Ashley, I think about you often and am over the moon with your news!  Congrats and enjoy his first birthday – a LOT to celebrate!

      ~Kristi

      • November 12, 2015 at 4:15 pm
      mrsaxde
      Participant

      Great news!!! Congratulations!!!

      -Bill

      • November 12, 2015 at 4:15 pm
      mrsaxde
      Participant

      Great news!!! Congratulations!!!

      -Bill

      • November 12, 2015 at 4:15 pm
      mrsaxde
      Participant

      Great news!!! Congratulations!!!

      -Bill

        • November 12, 2015 at 8:26 pm
        tschmith
        Participant

        Such wonderful news!!!!!!!  Your post gives us all hope and happiness.

        Thank you for sharing and congratulations!!!!!

        Terrie

        • November 12, 2015 at 8:26 pm
        tschmith
        Participant

        Such wonderful news!!!!!!!  Your post gives us all hope and happiness.

        Thank you for sharing and congratulations!!!!!

        Terrie

        • November 12, 2015 at 8:26 pm
        tschmith
        Participant

        Such wonderful news!!!!!!!  Your post gives us all hope and happiness.

        Thank you for sharing and congratulations!!!!!

        Terrie

      • November 13, 2015 at 12:36 am
      chrisholder
      Participant

      Such great news!   We all rejoice when cancer gets the boot.  Bless you and your new positive future with your family, Ashley!

      • November 13, 2015 at 12:36 am
      chrisholder
      Participant

      Such great news!   We all rejoice when cancer gets the boot.  Bless you and your new positive future with your family, Ashley!

        • November 13, 2015 at 1:33 am
        AnitaLoree
        Participant

        Yes!! Getting on with your life! Your good news is good news for us, husband just switched from Keytruda to Yervoy/Opdivo combo. Have a fabulous Thanksgiving celebration. A.L.

        • November 13, 2015 at 1:33 am
        AnitaLoree
        Participant

        Yes!! Getting on with your life! Your good news is good news for us, husband just switched from Keytruda to Yervoy/Opdivo combo. Have a fabulous Thanksgiving celebration. A.L.

        • November 13, 2015 at 1:33 am
        AnitaLoree
        Participant

        Yes!! Getting on with your life! Your good news is good news for us, husband just switched from Keytruda to Yervoy/Opdivo combo. Have a fabulous Thanksgiving celebration. A.L.

        • November 13, 2015 at 1:33 am
        AnitaLoree
        Participant

        Yes!! Getting on with your life! Your good news is good news for us, husband just switched from Keytruda to Yervoy/Opdivo combo. Have a fabulous Thanksgiving celebration. A.L.

        • November 13, 2015 at 1:33 am
        AnitaLoree
        Participant

        Yes!! Getting on with your life! Your good news is good news for us, husband just switched from Keytruda to Yervoy/Opdivo combo. Have a fabulous Thanksgiving celebration. A.L.

        • November 13, 2015 at 1:33 am
        AnitaLoree
        Participant

        Yes!! Getting on with your life! Your good news is good news for us, husband just switched from Keytruda to Yervoy/Opdivo combo. Have a fabulous Thanksgiving celebration. A.L.

      • November 13, 2015 at 12:36 am
      chrisholder
      Participant

      Such great news!   We all rejoice when cancer gets the boot.  Bless you and your new positive future with your family, Ashley!

      • November 13, 2015 at 3:33 am
      SABKLYN
      Participant

      Terrific news!

      • November 13, 2015 at 3:33 am
      SABKLYN
      Participant

      Terrific news!

      • November 13, 2015 at 3:33 am
      SABKLYN
      Participant

      Terrific news!

      • November 13, 2015 at 4:46 am
      AshleyS
      Participant

      Thanks everyone! I feel so grateful. And in case you didn't see my reply to Celeste, I'm on Opdivo! 

      • November 13, 2015 at 4:46 am
      AshleyS
      Participant

      Thanks everyone! I feel so grateful. And in case you didn't see my reply to Celeste, I'm on Opdivo! 

      • November 13, 2015 at 4:46 am
      AshleyS
      Participant

      Thanks everyone! I feel so grateful. And in case you didn't see my reply to Celeste, I'm on Opdivo! 

      • November 15, 2015 at 9:08 pm
      _Paul_
      Participant

      This just totally made my day! I am so happy for you Ashley, and thank you so much for sharing the awesome news (finally get to use that adjective the way it was intended).

      – Paul

      • November 15, 2015 at 9:08 pm
      _Paul_
      Participant

      This just totally made my day! I am so happy for you Ashley, and thank you so much for sharing the awesome news (finally get to use that adjective the way it was intended).

      – Paul

      • November 15, 2015 at 9:08 pm
      _Paul_
      Participant

      This just totally made my day! I am so happy for you Ashley, and thank you so much for sharing the awesome news (finally get to use that adjective the way it was intended).

      – Paul

      • November 17, 2015 at 5:11 pm
      dfeng
      Participant

      Very happy for you Ashley!

      • November 17, 2015 at 5:11 pm
      dfeng
      Participant

      Very happy for you Ashley!

      • November 17, 2015 at 5:11 pm
      dfeng
      Participant

      Very happy for you Ashley!

Viewing 53 reply threads

Tagged: 

  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.