responding to BRAIN METS!! :)
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responding to BRAIN METS!! :)

› Forums › General Melanoma Community › responding to BRAIN METS!! :)

  • Post
    • March 21, 2015 at 2:48 pm
    csellers23
    Participant
    So 6 weeks ago my husband’s scans came in. And after taf/Mel combo. Yearvoy whole brain radiation and srs the results where horrible!!!! To many brain Mets to count, cancer growing everywhere! The put him on keytruda. When we went back 3 weeks later his LDH levels went from 800 to 300. They had planned on sending us home on hospices. But the gave us the 2nd round of keytruda. Today we went back and the doc said keytruda is working in his brain. I ask him how he knows and he said because he’s alive. If it wasn’t working in his brain he would have died 2 weeks ago! He also said keytruda does not work one or two months like some drugs can but that now we are looking at YEARS! We went in the matter of 6 weeks from you have 3 weeks to live to years. This keytruda was our last hope. And thank God it’s working!!!! People ask a lot if keytruda can cross the blood brain barrier, yes it can!!!! The doc ended out appointment saying you are no longer dying!!!! Best words ever. NEVER GIVE UP HOPE!!!!! The doc is even amazed Thank God!!!
Viewing 29 reply threads
  • Replies
      • March 21, 2015 at 2:55 pm
      Mat
      Participant

      Crystale, so glad to hear your news.  I recently started Keytruda and am also feeling like the options are limited if it doesn't work.  It's nice to hear a good story.  Best of luck to you and your husband.

        • March 21, 2015 at 3:33 pm
        Brendan
        Participant

        Great news, Crystale.  Congrats to your and your husband!  Enjoy.

        Brendan

        • March 21, 2015 at 3:33 pm
        Brendan
        Participant

        Great news, Crystale.  Congrats to your and your husband!  Enjoy.

        Brendan

        • March 21, 2015 at 3:33 pm
        Brendan
        Participant

        Great news, Crystale.  Congrats to your and your husband!  Enjoy.

        Brendan

        • March 21, 2015 at 3:33 pm
        Brendan
        Participant

        Great news, Crystale.  Congrats to your and your husband!  Enjoy.

        Brendan

        • March 21, 2015 at 3:33 pm
        Brendan
        Participant

        Great news, Crystale.  Congrats to your and your husband!  Enjoy.

        Brendan

        • March 21, 2015 at 3:33 pm
        Brendan
        Participant

        Great news, Crystale.  Congrats to your and your husband!  Enjoy.

        Brendan

        • March 23, 2015 at 1:59 am
        Eileensulliv
        Participant

        What a wonderful post! Great news!

        • March 23, 2015 at 1:59 am
        Eileensulliv
        Participant

        What a wonderful post! Great news!

        • March 23, 2015 at 1:59 am
        Eileensulliv
        Participant

        What a wonderful post! Great news!

      • March 21, 2015 at 2:55 pm
      Mat
      Participant

      Crystale, so glad to hear your news.  I recently started Keytruda and am also feeling like the options are limited if it doesn't work.  It's nice to hear a good story.  Best of luck to you and your husband.

      • March 21, 2015 at 2:55 pm
      Mat
      Participant

      Crystale, so glad to hear your news.  I recently started Keytruda and am also feeling like the options are limited if it doesn't work.  It's nice to hear a good story.  Best of luck to you and your husband.

      • March 21, 2015 at 3:36 pm
      ed williams
      Participant

      So happy for you and your husband!!!! Ed

      • March 21, 2015 at 3:36 pm
      ed williams
      Participant

      So happy for you and your husband!!!! Ed

      • March 21, 2015 at 3:36 pm
      ed williams
      Participant

      So happy for you and your husband!!!! Ed

      • March 21, 2015 at 3:53 pm
      jbronicki
      Participant

      That is wonderful news for your husband, you and your family.  I'm hoping for many years for you all to be together!  

      • March 21, 2015 at 3:53 pm
      jbronicki
      Participant

      That is wonderful news for your husband, you and your family.  I'm hoping for many years for you all to be together!  

      • March 21, 2015 at 3:53 pm
      jbronicki
      Participant

      That is wonderful news for your husband, you and your family.  I'm hoping for many years for you all to be together!  

      • March 21, 2015 at 4:02 pm
      LuckyMan51
      Participant

      This is awesome!!!    As soon as I clear up my 2/11/15 post surgical brain infection I am going in for another SRS and then start Anti Pd-1 treatment.   Was a bit anxious having to delay treatment while this infection clears but can't start anti pd-1 with infection as it might cause a flare up. Posts like this are so great to hear and really give one the strength to keep moving forward! Congratulations on this amazing news!   

      • March 21, 2015 at 4:02 pm
      LuckyMan51
      Participant

      This is awesome!!!    As soon as I clear up my 2/11/15 post surgical brain infection I am going in for another SRS and then start Anti Pd-1 treatment.   Was a bit anxious having to delay treatment while this infection clears but can't start anti pd-1 with infection as it might cause a flare up. Posts like this are so great to hear and really give one the strength to keep moving forward! Congratulations on this amazing news!   

      • March 21, 2015 at 4:02 pm
      LuckyMan51
      Participant

      This is awesome!!!    As soon as I clear up my 2/11/15 post surgical brain infection I am going in for another SRS and then start Anti Pd-1 treatment.   Was a bit anxious having to delay treatment while this infection clears but can't start anti pd-1 with infection as it might cause a flare up. Posts like this are so great to hear and really give one the strength to keep moving forward! Congratulations on this amazing news!   

      • March 21, 2015 at 9:18 pm
      _Paul_
      Participant

      What fantastic news Crystale! Thanks for sharing it.

      • March 21, 2015 at 9:18 pm
      _Paul_
      Participant

      What fantastic news Crystale! Thanks for sharing it.

      • March 21, 2015 at 9:18 pm
      _Paul_
      Participant

      What fantastic news Crystale! Thanks for sharing it.

      • March 21, 2015 at 9:26 pm
      JoshF
      Participant

      Yes!Yes!Yes! Great to hear!

      • March 21, 2015 at 9:26 pm
      JoshF
      Participant

      Yes!Yes!Yes! Great to hear!

      • March 21, 2015 at 9:26 pm
      JoshF
      Participant

      Yes!Yes!Yes! Great to hear!

      • March 22, 2015 at 6:32 pm
      rosa1
      Participant

      Great news Crystale! This gives hope to all of us especially the ones fighting brain mets. I wish you and your husband the best!

      • March 22, 2015 at 6:32 pm
      rosa1
      Participant

      Great news Crystale! This gives hope to all of us especially the ones fighting brain mets. I wish you and your husband the best!

      • March 22, 2015 at 6:32 pm
      rosa1
      Participant

      Great news Crystale! This gives hope to all of us especially the ones fighting brain mets. I wish you and your husband the best!

      • March 22, 2015 at 9:51 pm
      arthurjedi007
      Participant

      Oh my God. Thank you for posting. It warms my heart. I've had 15 doses of keytruda and hoping for a miracle in my third scan with it. Wow. That is an amazing story. I am so happy.

      Artie

      • March 22, 2015 at 9:51 pm
      arthurjedi007
      Participant

      Oh my God. Thank you for posting. It warms my heart. I've had 15 doses of keytruda and hoping for a miracle in my third scan with it. Wow. That is an amazing story. I am so happy.

      Artie

      • March 22, 2015 at 9:51 pm
      arthurjedi007
      Participant

      Oh my God. Thank you for posting. It warms my heart. I've had 15 doses of keytruda and hoping for a miracle in my third scan with it. Wow. That is an amazing story. I am so happy.

      Artie

      • March 22, 2015 at 9:52 pm
      SABKLYN
      Participant

      Terrific!

      • March 22, 2015 at 9:52 pm
      SABKLYN
      Participant

      Terrific!

      • March 22, 2015 at 9:52 pm
      SABKLYN
      Participant

      Terrific!

      • March 23, 2015 at 12:35 pm
      kpcollins31
      Participant

      Awesome… so encouraging to hear the progress being made over just the past couple years with these new treatments. Congratulations!

      Kevin

       

      • March 23, 2015 at 12:35 pm
      kpcollins31
      Participant

      Awesome… so encouraging to hear the progress being made over just the past couple years with these new treatments. Congratulations!

      Kevin

       

      • March 23, 2015 at 12:35 pm
      kpcollins31
      Participant

      Awesome… so encouraging to hear the progress being made over just the past couple years with these new treatments. Congratulations!

      Kevin

       

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