Forum Replies Created
- Replies
-
-
- August 9, 2016 at 3:52 am
Liza – I had widespread multiple mets including lesions in the liver, thyroid, lung parenchyma, adjacent to both kidneys, various lymph nodes and some subcutaneous. My onc said my scans lit up like a Christmas tree – not good. Fortunately no brain mets. I am very fortunate to be one of those who responded really well to the Ipi.
Tom
-
- August 9, 2016 at 3:52 am
Liza – I had widespread multiple mets including lesions in the liver, thyroid, lung parenchyma, adjacent to both kidneys, various lymph nodes and some subcutaneous. My onc said my scans lit up like a Christmas tree – not good. Fortunately no brain mets. I am very fortunate to be one of those who responded really well to the Ipi.
Tom
-
- August 9, 2016 at 3:52 am
Liza – I had widespread multiple mets including lesions in the liver, thyroid, lung parenchyma, adjacent to both kidneys, various lymph nodes and some subcutaneous. My onc said my scans lit up like a Christmas tree – not good. Fortunately no brain mets. I am very fortunate to be one of those who responded really well to the Ipi.
Tom
-
- August 8, 2016 at 3:50 am
Liza – I was in the same clinical trial as Gene (different location) but in the ipi only arm (no GSFM). My timeline is very similar to his by a few months both in regards to start of treatment and reaching NED status. Ipi has been my only treatment. I am Braf+. In regards to side effects I experienced severe/prolonged colitis. I remain NED 4+ years. Keeping you & your partner in my prayers
Tom
-
- August 8, 2016 at 3:50 am
Liza – I was in the same clinical trial as Gene (different location) but in the ipi only arm (no GSFM). My timeline is very similar to his by a few months both in regards to start of treatment and reaching NED status. Ipi has been my only treatment. I am Braf+. In regards to side effects I experienced severe/prolonged colitis. I remain NED 4+ years. Keeping you & your partner in my prayers
Tom
-
- August 8, 2016 at 3:50 am
Liza – I was in the same clinical trial as Gene (different location) but in the ipi only arm (no GSFM). My timeline is very similar to his by a few months both in regards to start of treatment and reaching NED status. Ipi has been my only treatment. I am Braf+. In regards to side effects I experienced severe/prolonged colitis. I remain NED 4+ years. Keeping you & your partner in my prayers
Tom