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Stage IV – DX in 2005, NED since 2009
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Stage IV – DX in 2005, NED since 2009

› Forums › Caregiver Community › Stage IV – DX in 2005, NED since 2009

  • Post
    • February 8, 2019 at 8:38 pm
    Rocco
    Participant

      Annual scans in January showed that I'm still NED after 10 years.  Diagnosed at Stage IV in Aug 2005, surgeries, radiation, IL-2, and two trials – the last being IPI 10mg/kg compassionate use trial – led me to NED in Jan 2009.  2 addt'l years of treating side effects – heavy steriods for 18 mos plus other stuff during a time when my husband was also diagnosed with cancer (2010 – Kidney – he's NED too). 

      Still here, working full time, praying and trying to not take precious life for granted.

      Stay strong – all of you in the fight and/or the caregivers out there! 

      Hang in there!

      Rocco

       

    Viewing 5 reply threads
    • Replies
        • February 8, 2019 at 9:27 pm
        GeoTony
        Participant

          Inspiring news for us all

          • February 9, 2019 at 2:38 am
          lkb
          Participant

            Hooray, Rocco!  Thanks for the boost.

            • February 9, 2019 at 3:33 am
            AnxiousDad
            Participant
              Rocco,

              You are truly an inspiration. Thank you for posting this.

              • February 9, 2019 at 11:48 pm
              sister of patient
              Participant

                Great to know!! Thank you for posting your news and congratulations and best wishes to both of you!! 🙂

                Barb

                  • February 10, 2019 at 2:40 am
                  WITom
                  Participant

                    Congrats & so happy for both you and your husband! I am especially interested in your success as I am also an ipi 10 mg responder – NED since Nov 2012. 

                    Everyday is indeed a blessing!!

                    Tom

                    • February 12, 2019 at 10:51 pm
                    Rocco
                    Participant
                      Nice to meet you, Tom. I’m so glad to hear that it worked for you as well! Stay well!
                    • February 10, 2019 at 2:40 am
                    jbronicki
                    Participant

                      Rock on Rocco!  I'm so glad you came through the treatments and are here living life to the fullest!

                      • February 10, 2019 at 1:12 pm
                      Bubbles
                      Participant

                        Congrats!  May all side effects and cancers stay gone!!!!  Thanks for sharing! Celeste

                    Viewing 5 reply threads

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