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Stage IV – DX in 2005, NED since 2009

Forums Caregiver Community Stage IV – DX in 2005, NED since 2009

  • Post
    Rocco
    Participant

    Annual scans in January showed that I'm still NED after 10 years.  Diagnosed at Stage IV in Aug 2005, surgeries, radiation, IL-2, and two trials – the last being IPI 10mg/kg compassionate use trial – led me to NED in Jan 2009.  2 addt'l years of treating side effects – heavy steriods for 18 mos plus other stuff during a time when my husband was also diagnosed with cancer (2010 – Kidney – he's NED too). 

    Still here, working full time, praying and trying to not take precious life for granted.

    Stay strong – all of you in the fight and/or the caregivers out there! 

    Hang in there!

    Rocco

     

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  • Replies
      GeoTony
      Participant

      Inspiring news for us all

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      lkb
      Participant

      Hooray, Rocco!  Thanks for the boost.

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      AnxiousDad
      Participant
      Rocco,

      You are truly an inspiration. Thank you for posting this.

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      sister of patient
      Participant

      Great to know!! Thank you for posting your news and congratulations and best wishes to both of you!! :)

      Barb

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        WITom
        Participant

        Congrats & so happy for both you and your husband! I am especially interested in your success as I am also an ipi 10 mg responder – NED since Nov 2012. 

        Everyday is indeed a blessing!!

        Tom

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        Rocco
        Participant
        Clinical Trial ParticipantNED
        Nice to meet you, Tom. I’m so glad to hear that it worked for you as well! Stay well!

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      jbronicki
      Participant

      Rock on Rocco!  I'm so glad you came through the treatments and are here living life to the fullest!

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      Bubbles
      Participant

      Congrats!  May all side effects and cancers stay gone!!!!  Thanks for sharing! Celeste

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