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Stage IV: Annual scans back clean – still NED
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Stage IV: Annual scans back clean – still NED

› Forums › General Melanoma Community › Stage IV: Annual scans back clean – still NED

  • Post
    • January 11, 2018 at 5:24 am
    Rocco
    Participant

      My annual January scans (CAP CT and Brain MRI) just came back clean.  NED still – since early 2009, IPI responder after 5 doses in total of 10mg/kg.  Full history online for those interested.

      I continue to check in on this bulletin board, respond to posts when/if my experience may help someone and never, ever forget how meaningful and supportive many regulars on this board were back when I needed it the most.   

      Prayers and good vibes to all in the fight.  Hang in there!

      Rocco

      Stage IV in 2005, ipi responder (MDX trial) in 2009 and NED ever since.  

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    • Replies
        • January 11, 2018 at 6:55 am
        Tracyyy
        Participant
          Wow, Rocco! Thanks for checking in and giving hope to many others! Wish you the best and many many years of NED!

          Tracy
          Daughter of patient

          • January 11, 2018 at 4:58 pm
          Bubbles
          Participant

            That's wonderful, Rocco!!!  Ratties like you are leading our way!!!  celeste

            • January 11, 2018 at 8:53 pm
            WithinMySkin
            Participant

              Congrats, Rocco!! Here's to another 9 years NED!

              Lauren

              • January 14, 2018 at 2:06 pm
              WITom
              Participant

                Congrats Rocco!! That’s awesome – so happy for you and thanks for sharing. I’m especially interested as I am also a 10 mg ipi complete responder – NED 5+ yrs. Best wishes for a continued healthy 2018

                Tom

                • January 14, 2018 at 6:32 pm
                sister of patient
                Participant

                  This is just great to hear and fabulous for you!! I love the long-term NED reports. May this be your forever state!!! Best wishes always!

                  Barb

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