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Wife_WilliamR
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Wife_WilliamR

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      • April 20, 2018 at 7:18 pm
      Wife_WilliamR
      Participant

        I did reach out to Dr. Weber and he suggested we look at MD Anderson.  Does anyone have a contact there or a doctor I should try to contact?

        • April 20, 2018 at 4:38 pm
        Wife_WilliamR
        Participant

          Celeste – good idea, I will reach out to one of the coordinators!  Ed, that is it!  Thank you both!  

          • April 20, 2018 at 2:10 pm
          Wife_WilliamR
          Participant

            Thank you everyone for the responses!  Such valuable information!  I will spend this weekend reading and reaching out!  I do have another question – my husband did have the IMPACT testing done at Sloan and recently at Johns Hopkins they sent a biopsy to Foundation One (but said that showed nothing new).  I am still pretty unclear exactly what Foundation One is, but my question is would the MATCH trial at NIH be different from these two test he has already had done?  Thank you again for your help.

            • April 4, 2018 at 4:34 pm
            Wife_WilliamR
            Participant

              Bill – you are doing great!  Was anxious to log on today to see if you had posted!  Try to rest/relax and let those cells do their job!  Love and prayers, Stacy & William

              • April 24, 2018 at 1:42 pm
              Wife_WilliamR
              Participant

                Bill – it sounds like you did awesome!  Get lots of rest and let those new cells do their thing!  Continued prayers! – Stacy

                • April 21, 2018 at 3:46 pm
                Wife_WilliamR
                Participant

                  Cindy that is great news about your Mother!  I emailed the coordinator of this trial at MD Anderson to see if William would be a candidate.  Thank you so much for sharing this info!

                  • April 21, 2018 at 3:42 pm
                  Wife_WilliamR
                  Participant

                    Thank you for this information!  I am sorry to hear you have had complications, and glad you are getting care from some of the best! 

                    • April 20, 2018 at 7:16 pm
                    Wife_WilliamR
                    Participant

                      Thank you Bill!  We have been thinking of you – how are you doing with TIL?

                      • April 2, 2018 at 7:24 pm
                      Wife_WilliamR
                      Participant

                        Prayers from Stacy & William! 

                        • March 28, 2018 at 4:07 pm
                        Wife_WilliamR
                        Participant

                          Bill – William just rec'd his 4th treatment and will go for scans April 16th to determine if we stay on trial or not.  I have really been thinking about you and your family as this February made two years since we were there going thru TIL.  It feels like it was yesterday – such vivid memories.  But all good – the staff was amazing.  If you don't feel to rough, keep us posted.   – Stacy

                          • March 26, 2018 at 6:52 pm
                          Wife_WilliamR
                          Participant

                            Bill that is great news!  William and I are sending thoughts and prayers from WV!!  – Stacy

                            • January 16, 2018 at 5:46 pm
                            Wife_WilliamR
                            Participant

                              Bill – we are so happy to hear your good news!  If you want to talk to William again on your family has any questions for me feel free to call us!  Wishing you the best!!  Stacy & William

                              • January 12, 2018 at 2:39 pm
                              Wife_WilliamR
                              Participant

                                LOL – but look at young as energetic and eager!   Yes, William started – he is actually receiving treatment #2 today in the LAG-3 trial.

                                • January 11, 2018 at 7:37 pm
                                Wife_WilliamR
                                Participant

                                  Bill hoping and praying you get in!  We spent a lot of time with Dr. Sherry while William was there for TIL and really liked him!  He was one of our favorites!  Glad they are being so thorough!  – Stacy

                                  • December 6, 2017 at 8:17 pm
                                  Wife_WilliamR
                                  Participant

                                    Bill, I had posted on one of your other comments last week but my husband also goes to Dr. Sharfman.  My husband is just getting ready to start the Anti-Lag-3 trial next week.  He went thru the TIL therapy last February (2016).  If you have any specific questions or want to talk to someone that has been thru it let me know as I am sure my husband would enjoy talking with you.  NIH doctors and nurses are amazing.  While it was not an easy treatment the care that you get while you are there is unbelieveable.  The Discovery Channel did a 3 part documentary on NIH a couple months ago.  You may be able to find it online.  The actor Jim Parsons was the narrator and the film does a great job showing what NIH is really about – especially part 1.  Good luck – sending our thoughts and prayers!  – Stacy

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