WendyPam

Hi Ben,

Just like you I lost my Mom to melanoma several months back. Your post made my heart feel heavy. Your Dad was once  a patient of Dr. Lutzky in Miami. The same center my Mom went to as well. I'm so happy that your Dad got to be a part of you becoming a Dad like my Mom got to see me become a Mother.

Take care of yourself and send your Mom a hug from me. 

Wishing you the best during this difficult time.

Regards,

Wendy

Hi Ben,

Just like you I lost my Mom to melanoma several months back. Your post made my heart feel heavy. Your Dad was once  a patient of Dr. Lutzky in Miami. The same center my Mom went to as well. I'm so happy that your Dad got to be a part of you becoming a Dad like my Mom got to see me become a Mother.

Take care of yourself and send your Mom a hug from me. 

Wishing you the best during this difficult time.

Regards,

Wendy

Hi Ben,

Just like you I lost my Mom to melanoma several months back. Your post made my heart feel heavy. Your Dad was once  a patient of Dr. Lutzky in Miami. The same center my Mom went to as well. I'm so happy that your Dad got to be a part of you becoming a Dad like my Mom got to see me become a Mother.

Take care of yourself and send your Mom a hug from me. 

Wishing you the best during this difficult time.

Regards,

Wendy

Hi Ben,

Just like you I lost my Mom to melanoma several months back. Your post made my heart feel heavy. Your Dad was once  a patient of Dr. Lutzky in Miami. The same center my Mom went to as well. I'm so happy that your Dad got to be a part of you becoming a Dad like my Mom got to see me become a Mother.

Take care of yourself and send your Mom a hug from me. 

Wishing you the best during this difficult time.

Regards,

Wendy

Hi Ben,

Just like you I lost my Mom to melanoma several months back. Your post made my heart feel heavy. Your Dad was once  a patient of Dr. Lutzky in Miami. The same center my Mom went to as well. I'm so happy that your Dad got to be a part of you becoming a Dad like my Mom got to see me become a Mother.

Take care of yourself and send your Mom a hug from me. 

Wishing you the best during this difficult time.

Regards,

Wendy

Hi Ben,

Just like you I lost my Mom to melanoma several months back. Your post made my heart feel heavy. Your Dad was once  a patient of Dr. Lutzky in Miami. The same center my Mom went to as well. I'm so happy that your Dad got to be a part of you becoming a Dad like my Mom got to see me become a Mother.

Take care of yourself and send your Mom a hug from me. 

Wishing you the best during this difficult time.

Regards,

Wendy

I'm sad to read your post and the way your approach what this board is about. I lost my Mother to Melanoma this past Nov. The day my Mother was diagnosed was the day I was too. Same goes for my father, brother and sister. Melanoma became a huge part of who we all became. I moved back from California to fight my Mother's fight with her. I had a newborn and a home one block away. For 2 years I slept on a sofa bed outside her door. I never wanted to miss a day with her.  It was never just my Mother's fight. It was a our family against  melanoma and our exstended family on this board that help us so much in our fight. This board became an extension of our family. We did "join the club". The club of the most amazing people. People who understood! People who had a vast amount of knowledge to share! Whether a melanoma patient or caregiver!  Yes, you are an individual with melanoma  facing your own individual experience. However, you came to this board for advise and support. Welcome the people that care. You could not have found a better group of people. 

All the best to you!

Wendy

I'm sad to read your post and the way your approach what this board is about. I lost my Mother to Melanoma this past Nov. The day my Mother was diagnosed was the day I was too. Same goes for my father, brother and sister. Melanoma became a huge part of who we all became. I moved back from California to fight my Mother's fight with her. I had a newborn and a home one block away. For 2 years I slept on a sofa bed outside her door. I never wanted to miss a day with her.  It was never just my Mother's fight. It was a our family against  melanoma and our exstended family on this board that help us so much in our fight. This board became an extension of our family. We did "join the club". The club of the most amazing people. People who understood! People who had a vast amount of knowledge to share! Whether a melanoma patient or caregiver!  Yes, you are an individual with melanoma  facing your own individual experience. However, you came to this board for advise and support. Welcome the people that care. You could not have found a better group of people. 

All the best to you!

Wendy

I'm sad to read your post and the way your approach what this board is about. I lost my Mother to Melanoma this past Nov. The day my Mother was diagnosed was the day I was too. Same goes for my father, brother and sister. Melanoma became a huge part of who we all became. I moved back from California to fight my Mother's fight with her. I had a newborn and a home one block away. For 2 years I slept on a sofa bed outside her door. I never wanted to miss a day with her.  It was never just my Mother's fight. It was a our family against  melanoma and our exstended family on this board that help us so much in our fight. This board became an extension of our family. We did "join the club". The club of the most amazing people. People who understood! People who had a vast amount of knowledge to share! Whether a melanoma patient or caregiver!  Yes, you are an individual with melanoma  facing your own individual experience. However, you came to this board for advise and support. Welcome the people that care. You could not have found a better group of people. 

All the best to you!

Wendy

I'm sad to read your post and the way your approach what this board is about. I lost my Mother to Melanoma this past Nov. The day my Mother was diagnosed was the day I was too. Same goes for my father, brother and sister. Melanoma became a huge part of who we all became. I moved back from California to fight my Mother's fight with her. I had a newborn and a home one block away. For 2 years I slept on a sofa bed outside her door. I never wanted to miss a day with her.  It was never just my Mother's fight. It was a our family against  melanoma and our exstended family on this board that help us so much in our fight. This board became an extension of our family. We did "join the club". The club of the most amazing people. People who understood! People who had a vast amount of knowledge to share! Whether a melanoma patient or caregiver!  Yes, you are an individual with melanoma  facing your own individual experience. However, you came to this board for advise and support. Welcome the people that care. You could not have found a better group of people. 

All the best to you!

Wendy

I'm sad to read your post and the way your approach what this board is about. I lost my Mother to Melanoma this past Nov. The day my Mother was diagnosed was the day I was too. Same goes for my father, brother and sister. Melanoma became a huge part of who we all became. I moved back from California to fight my Mother's fight with her. I had a newborn and a home one block away. For 2 years I slept on a sofa bed outside her door. I never wanted to miss a day with her.  It was never just my Mother's fight. It was a our family against  melanoma and our exstended family on this board that help us so much in our fight. This board became an extension of our family. We did "join the club". The club of the most amazing people. People who understood! People who had a vast amount of knowledge to share! Whether a melanoma patient or caregiver!  Yes, you are an individual with melanoma  facing your own individual experience. However, you came to this board for advise and support. Welcome the people that care. You could not have found a better group of people. 

All the best to you!

Wendy

I'm sad to read your post and the way your approach what this board is about. I lost my Mother to Melanoma this past Nov. The day my Mother was diagnosed was the day I was too. Same goes for my father, brother and sister. Melanoma became a huge part of who we all became. I moved back from California to fight my Mother's fight with her. I had a newborn and a home one block away. For 2 years I slept on a sofa bed outside her door. I never wanted to miss a day with her.  It was never just my Mother's fight. It was a our family against  melanoma and our exstended family on this board that help us so much in our fight. This board became an extension of our family. We did "join the club". The club of the most amazing people. People who understood! People who had a vast amount of knowledge to share! Whether a melanoma patient or caregiver!  Yes, you are an individual with melanoma  facing your own individual experience. However, you came to this board for advise and support. Welcome the people that care. You could not have found a better group of people. 

All the best to you!

Wendy

Hi Holly,

Sorry to hear about your husbands resistant to Z. So glad your headed to Angeles Clinic. I'm not a super star that really has a vast knowledge of all of the treatments out there. I'm just someone that lost my Mom several months ago to this beast and  miss her like crazy! I still read the boards everyday.  I love all the advance in treatments that I read about all the time. Here is my thoughts for your husband. I'm sure lots of experts will chim in.

I would skip just Yervoy and get into a trial with Yervoy/Anti-PD1 or just Anti-PD1. Lots of trial I see opening up on that. Next if you visit the other board. MIF, Melanoma International Foundation and look under Stage 4, Jonathan, http://forum.melanomainternational.org/mif/viewforum.php?f

I also see a lot about the Braf/Mek. I'm not super knowledgable in all of the braf trials as my Mother was braf negative. Lots of wonderful options for the both of you to look at. You have a great game plan in place by visiting both Angeles Clinic and also Moffitt. Read up on Jonathan's latest post from July 24. People are doing well on his trial. I'm cheering on a local guy in my hometown that that has a great blog you can follow, Patient #1. He was treated at Moffitt and did several medication together, Yervoy IL2 and on and on. That's why he's Patient #1. He did O.K, but is now doing Merk Anti-pd1 in Ft. Lauderdale and had nice first scan results. Stay focused on the fight and you'll do well! You have lots of supoort and brillant people on these boards. When your at Angeles ask about the tiral Jonathan is in. And the Yervoy/Anti-PD1……….

All the best to you and Dave!!! 

Regards,

Wendy

Catherine posted a while ago about this trial of a drug currently called DEDN6526A by Genentech/Roche – details at clinicaltrials.gov, trial NCT01522664. It uses something called ADC technology, which is the hottest wrinkle in cancer therapy these days, and this is the first ADC drug specifically aimed at melanoma. The first ADC drug to be FDA approved "came out" 2 weeks ago, for Her-2 breast cancer, the most aggressive form. Many more ADC drugs are "in the trial pipeline" at present, and you'll likely hear about them soon if you haven't already. 

Hi Holly,

Sorry to hear about your husbands resistant to Z. So glad your headed to Angeles Clinic. I'm not a super star that really has a vast knowledge of all of the treatments out there. I'm just someone that lost my Mom several months ago to this beast and  miss her like crazy! I still read the boards everyday.  I love all the advance in treatments that I read about all the time. Here is my thoughts for your husband. I'm sure lots of experts will chim in.

I would skip just Yervoy and get into a trial with Yervoy/Anti-PD1 or just Anti-PD1. Lots of trial I see opening up on that. Next if you visit the other board. MIF, Melanoma International Foundation and look under Stage 4, Jonathan, http://forum.melanomainternational.org/mif/viewforum.php?f

I also see a lot about the Braf/Mek. I'm not super knowledgable in all of the braf trials as my Mother was braf negative. Lots of wonderful options for the both of you to look at. You have a great game plan in place by visiting both Angeles Clinic and also Moffitt. Read up on Jonathan's latest post from July 24. People are doing well on his trial. I'm cheering on a local guy in my hometown that that has a great blog you can follow, Patient #1. He was treated at Moffitt and did several medication together, Yervoy IL2 and on and on. That's why he's Patient #1. He did O.K, but is now doing Merk Anti-pd1 in Ft. Lauderdale and had nice first scan results. Stay focused on the fight and you'll do well! You have lots of supoort and brillant people on these boards. When your at Angeles ask about the tiral Jonathan is in. And the Yervoy/Anti-PD1……….

All the best to you and Dave!!! 

Regards,

Wendy

Catherine posted a while ago about this trial of a drug currently called DEDN6526A by Genentech/Roche – details at clinicaltrials.gov, trial NCT01522664. It uses something called ADC technology, which is the hottest wrinkle in cancer therapy these days, and this is the first ADC drug specifically aimed at melanoma. The first ADC drug to be FDA approved "came out" 2 weeks ago, for Her-2 breast cancer, the most aggressive form. Many more ADC drugs are "in the trial pipeline" at present, and you'll likely hear about them soon if you haven't already. 

Hi Holly,

Sorry to hear about your husbands resistant to Z. So glad your headed to Angeles Clinic. I'm not a super star that really has a vast knowledge of all of the treatments out there. I'm just someone that lost my Mom several months ago to this beast and  miss her like crazy! I still read the boards everyday.  I love all the advance in treatments that I read about all the time. Here is my thoughts for your husband. I'm sure lots of experts will chim in.

I would skip just Yervoy and get into a trial with Yervoy/Anti-PD1 or just Anti-PD1. Lots of trial I see opening up on that. Next if you visit the other board. MIF, Melanoma International Foundation and look under Stage 4, Jonathan, http://forum.melanomainternational.org/mif/viewforum.php?f

I also see a lot about the Braf/Mek. I'm not super knowledgable in all of the braf trials as my Mother was braf negative. Lots of wonderful options for the both of you to look at. You have a great game plan in place by visiting both Angeles Clinic and also Moffitt. Read up on Jonathan's latest post from July 24. People are doing well on his trial. I'm cheering on a local guy in my hometown that that has a great blog you can follow, Patient #1. He was treated at Moffitt and did several medication together, Yervoy IL2 and on and on. That's why he's Patient #1. He did O.K, but is now doing Merk Anti-pd1 in Ft. Lauderdale and had nice first scan results. Stay focused on the fight and you'll do well! You have lots of supoort and brillant people on these boards. When your at Angeles ask about the tiral Jonathan is in. And the Yervoy/Anti-PD1……….

All the best to you and Dave!!! 

Regards,

Wendy

Catherine posted a while ago about this trial of a drug currently called DEDN6526A by Genentech/Roche – details at clinicaltrials.gov, trial NCT01522664. It uses something called ADC technology, which is the hottest wrinkle in cancer therapy these days, and this is the first ADC drug specifically aimed at melanoma. The first ADC drug to be FDA approved "came out" 2 weeks ago, for Her-2 breast cancer, the most aggressive form. Many more ADC drugs are "in the trial pipeline" at present, and you'll likely hear about them soon if you haven't already.