Wally

So sorry about that but lets hope it is just a pseudo tumor and not malignant! OR did you have a pet scan done 2 months ago that indicated a positive reading and is this a follow up to confirm the diagnosis? I note you initially had melanoma in the toe, which was surgically removed some 5 years previously – was that your primary Mel?

This is my experience and may not necessarily work for you:

I had a primary (mole) in 2006 on my right ear lobe that was removed. It was claimed to be in-situ. It metastasized to the middle lobe of my right lung in 2011 and was resected (single tumor but pretty large at 20mm by 30mm) I had absolutely no treatment after that (by choice) and have been NED ever since and live a perfectly normal life. I never think of it and even forget to go for my quarterly check-ups now – I go every 6 months. Had a scare in July when a Pet Scan was done, they operated and removed the top right lobe of my lung but it was found to be a pseudo-tumor thus the NED status remaining. It was a false possitive. I had the op in August and was resuming my daily walk of 8 KM 2 weeks later, having started with 2 KM per day 2 days after being discharged from hospital.

If it is not multiple tumors I would say have the thing removed surgically. I have no regrets and unless there are compelling reasons for not going the surgical route as we all have different diagnosis, I would opt for the operation and avoid the chemical treatments if you can.

I really wish you all the best going forward and hope that whatever route you follow, will be beneficial. Fight the beast!

So sorry about that but lets hope it is just a pseudo tumor and not malignant! OR did you have a pet scan done 2 months ago that indicated a positive reading and is this a follow up to confirm the diagnosis? I note you initially had melanoma in the toe, which was surgically removed some 5 years previously – was that your primary Mel?

This is my experience and may not necessarily work for you:

I had a primary (mole) in 2006 on my right ear lobe that was removed. It was claimed to be in-situ. It metastasized to the middle lobe of my right lung in 2011 and was resected (single tumor but pretty large at 20mm by 30mm) I had absolutely no treatment after that (by choice) and have been NED ever since and live a perfectly normal life. I never think of it and even forget to go for my quarterly check-ups now – I go every 6 months. Had a scare in July when a Pet Scan was done, they operated and removed the top right lobe of my lung but it was found to be a pseudo-tumor thus the NED status remaining. It was a false possitive. I had the op in August and was resuming my daily walk of 8 KM 2 weeks later, having started with 2 KM per day 2 days after being discharged from hospital.

If it is not multiple tumors I would say have the thing removed surgically. I have no regrets and unless there are compelling reasons for not going the surgical route as we all have different diagnosis, I would opt for the operation and avoid the chemical treatments if you can.

I really wish you all the best going forward and hope that whatever route you follow, will be beneficial. Fight the beast!

So sorry about that but lets hope it is just a pseudo tumor and not malignant! OR did you have a pet scan done 2 months ago that indicated a positive reading and is this a follow up to confirm the diagnosis? I note you initially had melanoma in the toe, which was surgically removed some 5 years previously – was that your primary Mel?

This is my experience and may not necessarily work for you:

I had a primary (mole) in 2006 on my right ear lobe that was removed. It was claimed to be in-situ. It metastasized to the middle lobe of my right lung in 2011 and was resected (single tumor but pretty large at 20mm by 30mm) I had absolutely no treatment after that (by choice) and have been NED ever since and live a perfectly normal life. I never think of it and even forget to go for my quarterly check-ups now – I go every 6 months. Had a scare in July when a Pet Scan was done, they operated and removed the top right lobe of my lung but it was found to be a pseudo-tumor thus the NED status remaining. It was a false possitive. I had the op in August and was resuming my daily walk of 8 KM 2 weeks later, having started with 2 KM per day 2 days after being discharged from hospital.

If it is not multiple tumors I would say have the thing removed surgically. I have no regrets and unless there are compelling reasons for not going the surgical route as we all have different diagnosis, I would opt for the operation and avoid the chemical treatments if you can.

I really wish you all the best going forward and hope that whatever route you follow, will be beneficial. Fight the beast!

So sorry about that but lets hope it is just a pseudo tumor and not malignant! OR did you have a pet scan done 2 months ago that indicated a positive reading and is this a follow up to confirm the diagnosis? I note you initially had melanoma in the toe, which was surgically removed some 5 years previously – was that your primary Mel?

This is my experience and may not necessarily work for you:

I had a primary (mole) in 2006 on my right ear lobe that was removed. It was claimed to be in-situ. It metastasized to the middle lobe of my right lung in 2011 and was resected (single tumor but pretty large at 20mm by 30mm) I had absolutely no treatment after that (by choice) and have been NED ever since and live a perfectly normal life. I never think of it and even forget to go for my quarterly check-ups now – I go every 6 months. Had a scare in July when a Pet Scan was done, they operated and removed the top right lobe of my lung but it was found to be a pseudo-tumor thus the NED status remaining. It was a false possitive. I had the op in August and was resuming my daily walk of 8 KM 2 weeks later, having started with 2 KM per day 2 days after being discharged from hospital.

If it is not multiple tumors I would say have the thing removed surgically. I have no regrets and unless there are compelling reasons for not going the surgical route as we all have different diagnosis, I would opt for the operation and avoid the chemical treatments if you can.

I really wish you all the best going forward and hope that whatever route you follow, will be beneficial. Fight the beast!

So sorry about that but lets hope it is just a pseudo tumor and not malignant! OR did you have a pet scan done 2 months ago that indicated a positive reading and is this a follow up to confirm the diagnosis? I note you initially had melanoma in the toe, which was surgically removed some 5 years previously – was that your primary Mel?

This is my experience and may not necessarily work for you:

I had a primary (mole) in 2006 on my right ear lobe that was removed. It was claimed to be in-situ. It metastasized to the middle lobe of my right lung in 2011 and was resected (single tumor but pretty large at 20mm by 30mm) I had absolutely no treatment after that (by choice) and have been NED ever since and live a perfectly normal life. I never think of it and even forget to go for my quarterly check-ups now – I go every 6 months. Had a scare in July when a Pet Scan was done, they operated and removed the top right lobe of my lung but it was found to be a pseudo-tumor thus the NED status remaining. It was a false possitive. I had the op in August and was resuming my daily walk of 8 KM 2 weeks later, having started with 2 KM per day 2 days after being discharged from hospital.

If it is not multiple tumors I would say have the thing removed surgically. I have no regrets and unless there are compelling reasons for not going the surgical route as we all have different diagnosis, I would opt for the operation and avoid the chemical treatments if you can.

I really wish you all the best going forward and hope that whatever route you follow, will be beneficial. Fight the beast!

So sorry about that but lets hope it is just a pseudo tumor and not malignant! OR did you have a pet scan done 2 months ago that indicated a positive reading and is this a follow up to confirm the diagnosis? I note you initially had melanoma in the toe, which was surgically removed some 5 years previously – was that your primary Mel?

This is my experience and may not necessarily work for you:

I had a primary (mole) in 2006 on my right ear lobe that was removed. It was claimed to be in-situ. It metastasized to the middle lobe of my right lung in 2011 and was resected (single tumor but pretty large at 20mm by 30mm) I had absolutely no treatment after that (by choice) and have been NED ever since and live a perfectly normal life. I never think of it and even forget to go for my quarterly check-ups now – I go every 6 months. Had a scare in July when a Pet Scan was done, they operated and removed the top right lobe of my lung but it was found to be a pseudo-tumor thus the NED status remaining. It was a false possitive. I had the op in August and was resuming my daily walk of 8 KM 2 weeks later, having started with 2 KM per day 2 days after being discharged from hospital.

If it is not multiple tumors I would say have the thing removed surgically. I have no regrets and unless there are compelling reasons for not going the surgical route as we all have different diagnosis, I would opt for the operation and avoid the chemical treatments if you can.

I really wish you all the best going forward and hope that whatever route you follow, will be beneficial. Fight the beast!

So sorry about that but lets hope it is just a pseudo tumor and not malignant! OR did you have a pet scan done 2 months ago that indicated a positive reading and is this a follow up to confirm the diagnosis? I note you initially had melanoma in the toe, which was surgically removed some 5 years previously – was that your primary Mel?

This is my experience and may not necessarily work for you:

I had a primary (mole) in 2006 on my right ear lobe that was removed. It was claimed to be in-situ. It metastasized to the middle lobe of my right lung in 2011 and was resected (single tumor but pretty large at 20mm by 30mm) I had absolutely no treatment after that (by choice) and have been NED ever since and live a perfectly normal life. I never think of it and even forget to go for my quarterly check-ups now – I go every 6 months. Had a scare in July when a Pet Scan was done, they operated and removed the top right lobe of my lung but it was found to be a pseudo-tumor thus the NED status remaining. It was a false possitive. I had the op in August and was resuming my daily walk of 8 KM 2 weeks later, having started with 2 KM per day 2 days after being discharged from hospital.

If it is not multiple tumors I would say have the thing removed surgically. I have no regrets and unless there are compelling reasons for not going the surgical route as we all have different diagnosis, I would opt for the operation and avoid the chemical treatments if you can.

I really wish you all the best going forward and hope that whatever route you follow, will be beneficial. Fight the beast!

So sorry about that but lets hope it is just a pseudo tumor and not malignant! OR did you have a pet scan done 2 months ago that indicated a positive reading and is this a follow up to confirm the diagnosis? I note you initially had melanoma in the toe, which was surgically removed some 5 years previously – was that your primary Mel?

This is my experience and may not necessarily work for you:

I had a primary (mole) in 2006 on my right ear lobe that was removed. It was claimed to be in-situ. It metastasized to the middle lobe of my right lung in 2011 and was resected (single tumor but pretty large at 20mm by 30mm) I had absolutely no treatment after that (by choice) and have been NED ever since and live a perfectly normal life. I never think of it and even forget to go for my quarterly check-ups now – I go every 6 months. Had a scare in July when a Pet Scan was done, they operated and removed the top right lobe of my lung but it was found to be a pseudo-tumor thus the NED status remaining. It was a false possitive. I had the op in August and was resuming my daily walk of 8 KM 2 weeks later, having started with 2 KM per day 2 days after being discharged from hospital.

If it is not multiple tumors I would say have the thing removed surgically. I have no regrets and unless there are compelling reasons for not going the surgical route as we all have different diagnosis, I would opt for the operation and avoid the chemical treatments if you can.

I really wish you all the best going forward and hope that whatever route you follow, will be beneficial. Fight the beast!

So sorry about that but lets hope it is just a pseudo tumor and not malignant! OR did you have a pet scan done 2 months ago that indicated a positive reading and is this a follow up to confirm the diagnosis? I note you initially had melanoma in the toe, which was surgically removed some 5 years previously – was that your primary Mel?

This is my experience and may not necessarily work for you:

I had a primary (mole) in 2006 on my right ear lobe that was removed. It was claimed to be in-situ. It metastasized to the middle lobe of my right lung in 2011 and was resected (single tumor but pretty large at 20mm by 30mm) I had absolutely no treatment after that (by choice) and have been NED ever since and live a perfectly normal life. I never think of it and even forget to go for my quarterly check-ups now – I go every 6 months. Had a scare in July when a Pet Scan was done, they operated and removed the top right lobe of my lung but it was found to be a pseudo-tumor thus the NED status remaining. It was a false possitive. I had the op in August and was resuming my daily walk of 8 KM 2 weeks later, having started with 2 KM per day 2 days after being discharged from hospital.

If it is not multiple tumors I would say have the thing removed surgically. I have no regrets and unless there are compelling reasons for not going the surgical route as we all have different diagnosis, I would opt for the operation and avoid the chemical treatments if you can.

I really wish you all the best going forward and hope that whatever route you follow, will be beneficial. Fight the beast!

Hi there, where in SA do you live. I am in Johannesburg and was diagnosed metastatic stage 4 in 2011 in the middle lobe of my right lung. Primary was my right ear. The tumor was successfully removed by sectional resection and I remain NED up to now. If you are in Johannesburg, I could recommend Dr Geldenhuys at the Flora Clinic (West Rand Oncology Centre) Post surgery treatment was discussed with me and she also said that Chemo / Radiation is not very successful with Melanoma. IPI was suggested but we decided on a wait and see strategy which has worked so far. The point is she is pretty clued up about the various options for Trials and which medical aids will cover such treatments. Where is your wife being treated?

I really wish you guys the best of luck and a speedy solution as treatment should really start ASAP if surgery cannot be performed.

All the best. Wally.

Hi there, where in SA do you live. I am in Johannesburg and was diagnosed metastatic stage 4 in 2011 in the middle lobe of my right lung. Primary was my right ear. The tumor was successfully removed by sectional resection and I remain NED up to now. If you are in Johannesburg, I could recommend Dr Geldenhuys at the Flora Clinic (West Rand Oncology Centre) Post surgery treatment was discussed with me and she also said that Chemo / Radiation is not very successful with Melanoma. IPI was suggested but we decided on a wait and see strategy which has worked so far. The point is she is pretty clued up about the various options for Trials and which medical aids will cover such treatments. Where is your wife being treated?

I really wish you guys the best of luck and a speedy solution as treatment should really start ASAP if surgery cannot be performed.

All the best. Wally.

Hi there, where in SA do you live. I am in Johannesburg and was diagnosed metastatic stage 4 in 2011 in the middle lobe of my right lung. Primary was my right ear. The tumor was successfully removed by sectional resection and I remain NED up to now. If you are in Johannesburg, I could recommend Dr Geldenhuys at the Flora Clinic (West Rand Oncology Centre) Post surgery treatment was discussed with me and she also said that Chemo / Radiation is not very successful with Melanoma. IPI was suggested but we decided on a wait and see strategy which has worked so far. The point is she is pretty clued up about the various options for Trials and which medical aids will cover such treatments. Where is your wife being treated?

I really wish you guys the best of luck and a speedy solution as treatment should really start ASAP if surgery cannot be performed.

All the best. Wally.