MRF-Logo2019-Horizontal-RGB
vickirs
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

vickirs

Forum Replies Created

Viewing 4 reply threads
1 2 3 4
  • Replies
      • August 15, 2011 at 5:10 am
      vickirs
      Participant

        I do not know what Austrilla has to offer right now, but I do know that the trial I am on E7080 is supposed to include Europe and Austrailla in it.  It is a good drug that keeps most people stalble and some cured.  That is where I would begin.

        Good luck

         

        • August 15, 2011 at 5:10 am
        vickirs
        Participant

          I do not know what Austrilla has to offer right now, but I do know that the trial I am on E7080 is supposed to include Europe and Austrailla in it.  It is a good drug that keeps most people stalble and some cured.  That is where I would begin.

          Good luck

           

          • April 30, 2011 at 12:06 am
          vickirs
          Participant

            Hi, This is Vickirs.  I am on this at univ of colo.  I am doing very good compared to when I started.  My scans a few weeks ago showed stable  with possible dead tumor.  Hope more people respond.  My worst side effect right is high blood pressure, and we are working on that.  Wishing you success.  Vicki

            • April 30, 2011 at 12:06 am
            vickirs
            Participant

              Hi, This is Vickirs.  I am on this at univ of colo.  I am doing very good compared to when I started.  My scans a few weeks ago showed stable  with possible dead tumor.  Hope more people respond.  My worst side effect right is high blood pressure, and we are working on that.  Wishing you success.  Vicki

              • March 31, 2011 at 4:48 am
              vickirs
              Participant

                I am on E7080 and I have responded quickly to it.  I know there are several others at my clinic that are having the same results.  I noticed a change in my liver first.  I no longer prodtrudes out of my side.  I started E7080 after failing ipi and was very close to calling hospice in.  I was pratically wheel chair bound and hadn't been out of my house for 2 months before starting the drug.  Good luck on your choice and whatever drug you choose do not regret your decision.

                 

                Vicki

                • April 29, 2011 at 11:53 pm
                vickirs
                Participant

                  Hi

                  This is Vicki.  have not been on the computer lately been busy getting a garden started.  My results to the scans was stable possible dead tumor.  I am so glad.  Get a whole month off of seeing the doctor.  I am now having problems with my blood pressure which is being treated.  Everything else is going good.  Wishing you the best.  Vicki

                  • April 29, 2011 at 11:53 pm
                  vickirs
                  Participant

                    Hi

                    This is Vicki.  have not been on the computer lately been busy getting a garden started.  My results to the scans was stable possible dead tumor.  I am so glad.  Get a whole month off of seeing the doctor.  I am now having problems with my blood pressure which is being treated.  Everything else is going good.  Wishing you the best.  Vicki

                    • April 9, 2011 at 3:11 am
                    vickirs
                    Participant

                      Oh and by the way you can be braf positive to be on this study.

                      • April 9, 2011 at 3:11 am
                      vickirs
                      Participant

                        Oh and by the way you can be braf positive to be on this study.

                        • April 9, 2011 at 3:10 am
                        vickirs
                        Participant

                          had my first cat scan today,  get the results on wed.  I am not to worried because i have had such a turn around on how I feel. 

                          wish me luck  has anybody else had their first scan yet.

                           

                           

                          vicki

                          • April 9, 2011 at 3:10 am
                          vickirs
                          Participant

                            had my first cat scan today,  get the results on wed.  I am not to worried because i have had such a turn around on how I feel. 

                            wish me luck  has anybody else had their first scan yet.

                             

                             

                            vicki

                            • April 2, 2011 at 12:52 am
                            vickirs
                            Participant

                              I go to University of Denver and my doc is Dr. Gonzalez.  Did you start ipi today?

                              • April 2, 2011 at 12:52 am
                              vickirs
                              Participant

                                I go to University of Denver and my doc is Dr. Gonzalez.  Did you start ipi today?

                                • April 1, 2011 at 2:16 am
                                vickirs
                                Participant

                                  I never heard that you had to look healthy to be on the trial.  I know i looked like shit.  When I started to trial i was….

                                  in bed 75% of the day – now it is about 40 %  the medicine really does make you tired

                                  on morphine, dialated, oxy – now i only take oxy

                                  unable to cook or clean house   –  now i piddle around some but still have help

                                  unable to stand straight up for more than just a few minutes  had to be hunched over – does not effect me anymore

                                  had my liver buldging out of my side  – still rigid but does not buldge at all

                                  could not take shower without sitting down on stool  – no longer true

                                  So, you see I was really in pretty bad shape.  I am on my 2nd month, 3rd week of e7080 and get scans on 8th and results on 13th.

                                  Good Luck with your decision

                                  Vicki

                                  • April 1, 2011 at 2:16 am
                                  vickirs
                                  Participant

                                    I never heard that you had to look healthy to be on the trial.  I know i looked like shit.  When I started to trial i was….

                                    in bed 75% of the day – now it is about 40 %  the medicine really does make you tired

                                    on morphine, dialated, oxy – now i only take oxy

                                    unable to cook or clean house   –  now i piddle around some but still have help

                                    unable to stand straight up for more than just a few minutes  had to be hunched over – does not effect me anymore

                                    had my liver buldging out of my side  – still rigid but does not buldge at all

                                    could not take shower without sitting down on stool  – no longer true

                                    So, you see I was really in pretty bad shape.  I am on my 2nd month, 3rd week of e7080 and get scans on 8th and results on 13th.

                                    Good Luck with your decision

                                    Vicki

                                Viewing 4 reply threads
                                1 2 3 4