The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

uccio2014

Forum Replies Created

Viewing 4 reply threads
  • Replies
      uccio2014
      Participant

        In Italy there was a test on NED from zelboraf trying to stop it . It have no success with illness return. Fortunatelly starting again z restart the cure effect. At least it was what my wife oncologist told us 2 years ago

        uccio2014
        Participant

          Here my wife experience, if can help

          surgey on jul 2013

          stage IV on agust 2014 (multiple metastasis sites)

          On zelboraf from august with quick stable response

          Brian metastasis on jul 2015 body stable

          WBR

          on anti -braf+ anti-mek from october 15

          At now stable (the size of all the meet are really small and both RMN for brain and TAC for body cannot assure if it are metastasis or dead cells

          sorry for my english 🙂

           

          uccio2014
          Participant

            My wife was diagnosed of a large melanoma when pregnant (7 mounth) and immediatelly there was the surgey.

            Unfortunatelly 1 year later (when stop to breastfeed- do it matters?) there was a lot of spread in bones liver lung and sthomac.

            she start zelboraf and most spread disappear, but 1 year later (this summer) there was spread to brain.

            She had wbr and at now brian meets are stable and next week i can tell you abot the rest of the body.

            In any case she feel really well a part common z side effects.

            uccio2014
            Participant

              My wife was diagnosed of a large melanoma when pregnant (7 mounth) and immediatelly there was the surgey.

              Unfortunatelly 1 year later (when stop to breastfeed- do it matters?) there was a lot of spread in bones liver lung and sthomac.

              she start zelboraf and most spread disappear, but 1 year later (this summer) there was spread to brain.

              She had wbr and at now brian meets are stable and next week i can tell you abot the rest of the body.

              In any case she feel really well a part common z side effects.

              uccio2014
              Participant

                My wife was diagnosed of a large melanoma when pregnant (7 mounth) and immediatelly there was the surgey.

                Unfortunatelly 1 year later (when stop to breastfeed- do it matters?) there was a lot of spread in bones liver lung and sthomac.

                she start zelboraf and most spread disappear, but 1 year later (this summer) there was spread to brain.

                She had wbr and at now brian meets are stable and next week i can tell you abot the rest of the body.

                In any case she feel really well a part common z side effects.

                uccio2014
                Participant

                  Hello Annie,

                  here my wife story if could help

                  she is now on braf+mek combo since few week, but she is a responder to zelboraf for 2 years.

                  Last summer despite good response in the rest of body, less then 20 little evidence appared in the brain.

                  they was really rapid growing.

                  To be honest just one was evident in TAC and no syntoms but MRN show more. And between first MRN and the one dome before to start the terapy there was a worsening

                  she received WBR for 20 days, i do not remeber the dose, and this had a great effect.

                  at 1 year she still has some evidence (it is not possible to say if it is tumor or dead cells), but most dumps desappears and all the others strinks and mantains stable.

                  No collateral effect eccept hair loss

                  Antonio

                   

                  uccio2014
                  Participant

                    Hello Annie,

                    here my wife story if could help

                    she is now on braf+mek combo since few week, but she is a responder to zelboraf for 2 years.

                    Last summer despite good response in the rest of body, less then 20 little evidence appared in the brain.

                    they was really rapid growing.

                    To be honest just one was evident in TAC and no syntoms but MRN show more. And between first MRN and the one dome before to start the terapy there was a worsening

                    she received WBR for 20 days, i do not remeber the dose, and this had a great effect.

                    at 1 year she still has some evidence (it is not possible to say if it is tumor or dead cells), but most dumps desappears and all the others strinks and mantains stable.

                    No collateral effect eccept hair loss

                    Antonio

                     

                    uccio2014
                    Participant

                      Hello Annie,

                      here my wife story if could help

                      she is now on braf+mek combo since few week, but she is a responder to zelboraf for 2 years.

                      Last summer despite good response in the rest of body, less then 20 little evidence appared in the brain.

                      they was really rapid growing.

                      To be honest just one was evident in TAC and no syntoms but MRN show more. And between first MRN and the one dome before to start the terapy there was a worsening

                      she received WBR for 20 days, i do not remeber the dose, and this had a great effect.

                      at 1 year she still has some evidence (it is not possible to say if it is tumor or dead cells), but most dumps desappears and all the others strinks and mantains stable.

                      No collateral effect eccept hair loss

                      Antonio

                       

                      uccio2014
                      Participant

                        Btw i'm wondering if there are any statistic on Vemu after more then 2 y

                        uccio2014
                        Participant

                          Btw i'm wondering if there are any statistic on Vemu after more then 2 y

                          uccio2014
                          Participant

                            Btw i'm wondering if there are any statistic on Vemu after more then 2 y

                            uccio2014
                            Participant

                              Bruce you are my best example when my wife ask: there is someone that is still winning?

                              uccio2014
                              Participant

                                Bruce you are my best example when my wife ask: there is someone that is still winning?

                                uccio2014
                                Participant

                                  Bruce you are my best example when my wife ask: there is someone that is still winning?

                                  uccio2014
                                  Participant

                                    ty all for the answere

                                    i suppose mets are too little for gamma knife

                                    btw any experience with wbrt? expecially about short and long time side effects

                                Viewing 4 reply threads