The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.
Longtime member, frequent lurker…sadly, not much of a poster.
I have been on this forum since (roughly) 2003. There have been many people here who I've been blessed to journey with and many more who I've been able to learn from. There have been times when I've "stepped away", sometimes because it can be so overwhelming, and sometimes because of battles being lost by the most courageous warriors. I am so grateful to you all who continue to regularly post and update and share information.
With so many current stories of people battling-people who you cant help but love, I thought maybe my past year (year and a half) could offer optimism and hope.
Started Taf/Mek combo-cant remember if we were into 2016 by this time. Immediate responder! It hasn't been easy, have changed dosing, switched to zelboraf/cotellic (was bad!), took only taf for a while, have had a couple med "vacations"…currently full dose.
So far 3 scans (last one December) have shown no recurrence. I continue to try and stay cautiously optimistic about the future knowing, statisically, things can change.
Dont know if anyone else here has been on T/M this long as well?
Hi Laurie – my husband has been on varying doses of Tafinlar/MEK since Sept 2013. He had an initial reduction in tumor load and was stable – never NED – until March of 2016. He's been on 3/4 dose of Tafinlar as a single agent as he had too many side effects with the combo. Transitioned to Keytruda and tolerated 7 infusions, all the while continued to take Tafinlar as a second line of defense. He finally showed a response in Feb 2017 – waiting until his next scans in May to see if his tumors continue to shrink and, if so, his oncologist may decrease or stop the Tafinlar. I hope you continue to see a good response. Take care.
stage IV on agust 2014 (multiple metastasis sites)
On zelboraf from august with quick stable response
Brian metastasis on jul 2015 body stable
on anti -braf+ anti-mek from october 15
At now stable (the size of all the meet are really small and both RMN for brain and TAC for body cannot assure if it are metastasis or dead cells
sorry for my english :-)
Viewing 2 reply threads
You must be logged in to reply to this topic.
About the MRF Patient Forum
The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.
The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.