Nodule or scar tissue

The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Nodule or scar tissue

This topic has 4 replies, 2 voices, and was last updated 6 years, 7 months ago by uccio2014.

Post

- October 30, 2016 at 3:46 pm
- Quote
Bruce Davis
Participant
Just felt I had to share my experience as I read a simular one about a year ago or so that gave me inspiration. I've had it easier than a lot of stage 4 people. Interleukin 2 wasn't much fun and either was the "6 months to a year " to live diagnosis from 3 sets of Oncologists in 2011. No primary location was ever found. A nodule appeared in the left arm pit after "leaning" on crutches for 6 weeks following a hip resurfacing.The 6 cm nodule along with the remaining lymph nodes were removed and radiation followed.About 2 months later nodules presented in the lungs. The largest being 5 cm. Being BRAF+ I started Zelboraf in September of 2011. After a few months the CT scan showed the nodules shrinking. After 4 years and 9 months of Zelboraf, the Oncologist let me stop taking it. A 3 month follow-up CT scan showed no progression of disease. The CT images might be mimicking small nodules but could represent scar tissue. I heard the protocol now is to stop Zelboraf after 2 years.

Being off the Zelboraf for 3 months most of the side effects are gone and I'm getting back to normal. I realize melanoma could resurface at any time, but I'm very thankful for every day! Hope this information helps.

Bruce

Viewing 3 reply threads

Replies

- - October 31, 2016 at 4:03 pm
  - Quote
  SOLE
  Participant
  Thank you Bruce for this hindsight.
  
  I havent crossed stage 4 (fingers crossed) but knowing about your response to that combo gives me hope.
  
  When would you be considered a complete responder? In a year? or else?
  
  Take good care
- - October 31, 2016 at 4:03 pm
  - Quote
  SOLE
  Participant
  Thank you Bruce for this hindsight.
  
  I havent crossed stage 4 (fingers crossed) but knowing about your response to that combo gives me hope.
  
  When would you be considered a complete responder? In a year? or else?
  
  Take good care
- - October 31, 2016 at 4:03 pm
  - Quote
  SOLE
  Participant
  Thank you Bruce for this hindsight.
  
  I havent crossed stage 4 (fingers crossed) but knowing about your response to that combo gives me hope.
  
  When would you be considered a complete responder? In a year? or else?
  
  Take good care
- - September 21, 2017 at 3:56 pm
  - Quote
  uccio2014
  Participant
  In Italy there was a test on NED from zelboraf trying to stop it . It have no success with illness return. Fortunatelly starting again z restart the cure effect. At least it was what my wife oncologist told us 2 years ago

Viewing 3 reply threads

You must be logged in to reply to this topic.

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.