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uccio2014

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      uccio2014
      Participant

      In Italy there was a test on NED from zelboraf trying to stop it . It have no success with illness return. Fortunatelly starting again z restart the cure effect. At least it was what my wife oncologist told us 2 years ago

      uccio2014
      Participant

      Here my wife experience, if can help

      surgey on jul 2013

      stage IV on agust 2014 (multiple metastasis sites)

      On zelboraf from august with quick stable response

      Brian metastasis on jul 2015 body stable

      WBR

      on anti -braf+ anti-mek from october 15

      At now stable (the size of all the meet are really small and both RMN for brain and TAC for body cannot assure if it are metastasis or dead cells

      sorry for my english 🙂

       

      uccio2014
      Participant

      My wife was diagnosed of a large melanoma when pregnant (7 mounth) and immediatelly there was the surgey.

      Unfortunatelly 1 year later (when stop to breastfeed- do it matters?) there was a lot of spread in bones liver lung and sthomac.

      she start zelboraf and most spread disappear, but 1 year later (this summer) there was spread to brain.

      She had wbr and at now brian meets are stable and next week i can tell you abot the rest of the body.

      In any case she feel really well a part common z side effects.

      uccio2014
      Participant

      My wife was diagnosed of a large melanoma when pregnant (7 mounth) and immediatelly there was the surgey.

      Unfortunatelly 1 year later (when stop to breastfeed- do it matters?) there was a lot of spread in bones liver lung and sthomac.

      she start zelboraf and most spread disappear, but 1 year later (this summer) there was spread to brain.

      She had wbr and at now brian meets are stable and next week i can tell you abot the rest of the body.

      In any case she feel really well a part common z side effects.

      uccio2014
      Participant

      My wife was diagnosed of a large melanoma when pregnant (7 mounth) and immediatelly there was the surgey.

      Unfortunatelly 1 year later (when stop to breastfeed- do it matters?) there was a lot of spread in bones liver lung and sthomac.

      she start zelboraf and most spread disappear, but 1 year later (this summer) there was spread to brain.

      She had wbr and at now brian meets are stable and next week i can tell you abot the rest of the body.

      In any case she feel really well a part common z side effects.

      uccio2014
      Participant

      Hello Annie,

      here my wife story if could help

      she is now on braf+mek combo since few week, but she is a responder to zelboraf for 2 years.

      Last summer despite good response in the rest of body, less then 20 little evidence appared in the brain.

      they was really rapid growing.

      To be honest just one was evident in TAC and no syntoms but MRN show more. And between first MRN and the one dome before to start the terapy there was a worsening

      she received WBR for 20 days, i do not remeber the dose, and this had a great effect.

      at 1 year she still has some evidence (it is not possible to say if it is tumor or dead cells), but most dumps desappears and all the others strinks and mantains stable.

      No collateral effect eccept hair loss

      Antonio

       

      uccio2014
      Participant

      Hello Annie,

      here my wife story if could help

      she is now on braf+mek combo since few week, but she is a responder to zelboraf for 2 years.

      Last summer despite good response in the rest of body, less then 20 little evidence appared in the brain.

      they was really rapid growing.

      To be honest just one was evident in TAC and no syntoms but MRN show more. And between first MRN and the one dome before to start the terapy there was a worsening

      she received WBR for 20 days, i do not remeber the dose, and this had a great effect.

      at 1 year she still has some evidence (it is not possible to say if it is tumor or dead cells), but most dumps desappears and all the others strinks and mantains stable.

      No collateral effect eccept hair loss

      Antonio

       

      uccio2014
      Participant

      Hello Annie,

      here my wife story if could help

      she is now on braf+mek combo since few week, but she is a responder to zelboraf for 2 years.

      Last summer despite good response in the rest of body, less then 20 little evidence appared in the brain.

      they was really rapid growing.

      To be honest just one was evident in TAC and no syntoms but MRN show more. And between first MRN and the one dome before to start the terapy there was a worsening

      she received WBR for 20 days, i do not remeber the dose, and this had a great effect.

      at 1 year she still has some evidence (it is not possible to say if it is tumor or dead cells), but most dumps desappears and all the others strinks and mantains stable.

      No collateral effect eccept hair loss

      Antonio

       

      uccio2014
      Participant

      Btw i'm wondering if there are any statistic on Vemu after more then 2 y

      uccio2014
      Participant

      Btw i'm wondering if there are any statistic on Vemu after more then 2 y

      uccio2014
      Participant

      Btw i'm wondering if there are any statistic on Vemu after more then 2 y

      uccio2014
      Participant

      Bruce you are my best example when my wife ask: there is someone that is still winning?

      uccio2014
      Participant

      Bruce you are my best example when my wife ask: there is someone that is still winning?

      uccio2014
      Participant

      Bruce you are my best example when my wife ask: there is someone that is still winning?

      uccio2014
      Participant

      ty all for the answere

      i suppose mets are too little for gamma knife

      btw any experience with wbrt? expecially about short and long time side effects

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