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Stu
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Stu

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      • October 4, 2017 at 12:26 pm
      Stu
      Participant

        Hi Tex

        Good luck with the treatment, hope all goes well. 

        I am on the trial mentioned below and had my 17th infusion yesterday.

        (A Phase 3 Randomized, double blind, Placebo-Controlled study of Pembrolizumab (MK-3475) in combination with Epacadostat or Placebo in subjects with Unresectable or Metastatic Melanoma.)

        I was diagnosed with Stage IV mets in the lung with no known primary. The scan yesterday showed that all small tumors had disappeared and the large one has reduced from 45 mm to 10 mm.

        Side effects are all similar to those mentioned above. Fatigue for a few days after infusion, minor rash, not too bad, but sometimes feels like i have walked through spider webs, aching lower back , hips, legs and knees. All of this is by no means debilitating, I work long and full days.

        I have found that I cannot do my normal exersise regime, which some may have said was quite extreme, but hey, I'll take my results anyday over the other option. I truly cannot believe how lucky I am to be on this trial..

        Take care, keep positive and dont dwell too much on the minor side effects. 

        Wishing you all the best….. Stu

         

        • July 14, 2017 at 6:20 am
        Stu
        Participant

          Hello there.

          I have been on Keytruda ( Pembrolizumab Epacadostat/Pecibo Trial ) since Nov 2016 and received 13 infusions so far.

          As with most of the other contributors, fatigue, itchiness, slight rash, aching joints, shortness of breath seem to be the main issues. 

          I must however add that these side effects are not debilitating, I still work long hours full time. The only thing I can't do is my normal exersise regime, but that would be considered extreme for a lot of people. That said a break has been good, I still can do 8 km walk run a few times a week and will look to stepping it up as I feel okay to do so.

          The results have been very encouraging so far, all small toumours have disappeared, and the big guy has reduced by 60%, (In the Lung). In my case, I feel the minimal side effects are well worth the results. In fact I cant believe how lucky I am…..

          I wish you all the best and hope that you get some positive results from whatever treatment you choose.

          • June 21, 2017 at 8:27 am
          Stu
          Participant

            So very sorry to read of your sad news.. Love and thoughts are with you all..

            • June 12, 2017 at 7:04 pm
            Stu
            Participant

              Love and thoughts are with Josh's family…. So very sad

              • June 2, 2017 at 9:11 am
              Stu
              Participant

                Love and thoughts are with Josh and his family

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