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sharmon
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sharmon

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      • August 25, 2013 at 7:47 pm
      sharmon
      Participant

        Ask to have that new met retested for BRAF mutation.  Not always but it has happened that new mets will be different mutations in the same person. 

        • August 25, 2013 at 7:47 pm
        sharmon
        Participant

          Ask to have that new met retested for BRAF mutation.  Not always but it has happened that new mets will be different mutations in the same person. 

          • August 25, 2013 at 7:47 pm
          sharmon
          Participant

            Ask to have that new met retested for BRAF mutation.  Not always but it has happened that new mets will be different mutations in the same person. 

            • May 6, 2013 at 11:34 pm
            sharmon
            Participant
              Md Anderson has a gleevac trial now! Brent had qualified for it with dr. Falchook.before he died,
              • May 6, 2013 at 11:34 pm
              sharmon
              Participant
                Md Anderson has a gleevac trial now! Brent had qualified for it with dr. Falchook.before he died,
                • May 6, 2013 at 11:34 pm
                sharmon
                Participant
                  Md Anderson has a gleevac trial now! Brent had qualified for it with dr. Falchook.before he died,
                  • April 11, 2013 at 6:54 pm
                  sharmon
                  Participant
                    Brent died on the 4th. I cannot be alone. My family take turns staying with me. He was my only and best friend. We worked together ever day for 10 years. He did not want to die. No one can tell me that it will get easier. Every moment here without him is agony. We never had an argument. Ours was a love affair that was out of a fairy tale. No one can tell someone how to get over this. I think we have to figure it out on our own in our own time, in our own way. Or not,
                    • April 11, 2013 at 6:54 pm
                    sharmon
                    Participant
                      Brent died on the 4th. I cannot be alone. My family take turns staying with me. He was my only and best friend. We worked together ever day for 10 years. He did not want to die. No one can tell me that it will get easier. Every moment here without him is agony. We never had an argument. Ours was a love affair that was out of a fairy tale. No one can tell someone how to get over this. I think we have to figure it out on our own in our own time, in our own way. Or not,
                      • April 11, 2013 at 6:54 pm
                      sharmon
                      Participant
                        Brent died on the 4th. I cannot be alone. My family take turns staying with me. He was my only and best friend. We worked together ever day for 10 years. He did not want to die. No one can tell me that it will get easier. Every moment here without him is agony. We never had an argument. Ours was a love affair that was out of a fairy tale. No one can tell someone how to get over this. I think we have to figure it out on our own in our own time, in our own way. Or not,
                        • March 3, 2013 at 6:35 pm
                        sharmon
                        Participant

                          Thanks for you reply,  Dr Weber had said once before that there was no more treatment at Moffitt for Brent and then we went to Md Anderson and started Mek,  He got 3 and a half years on that trial.  He doesn't want to give up and now I need to find the next trial.  We don't have a local oncologist to fight for him,.  Should he have one outside of Phase I trials to be his advocate.  Can he get ippi alone from a local oncologist?

                          • March 3, 2013 at 6:35 pm
                          sharmon
                          Participant

                            Thanks for you reply,  Dr Weber had said once before that there was no more treatment at Moffitt for Brent and then we went to Md Anderson and started Mek,  He got 3 and a half years on that trial.  He doesn't want to give up and now I need to find the next trial.  We don't have a local oncologist to fight for him,.  Should he have one outside of Phase I trials to be his advocate.  Can he get ippi alone from a local oncologist?

                            • March 3, 2013 at 6:35 pm
                            sharmon
                            Participant

                              Thanks for you reply,  Dr Weber had said once before that there was no more treatment at Moffitt for Brent and then we went to Md Anderson and started Mek,  He got 3 and a half years on that trial.  He doesn't want to give up and now I need to find the next trial.  We don't have a local oncologist to fight for him,.  Should he have one outside of Phase I trials to be his advocate.  Can he get ippi alone from a local oncologist?

                              • March 3, 2013 at 6:28 pm
                              sharmon
                              Participant

                                Thanks for you reply,  Dr Weber had said once before that there was no more treatment at Moffitt for Brent and then we went to Md Anderson and started Mek,  He got 3 and a half years on that trial.  He doesn't want to give up and now I need to find the next trial.  We don't have a local oncologist to fight for him,.  Should he have one outside of Phase I trials to be his advocate.  Can he get ippi alone from a local oncologist?

                                • March 3, 2013 at 6:28 pm
                                sharmon
                                Participant

                                  Thanks for you reply,  Dr Weber had said once before that there was no more treatment at Moffitt for Brent and then we went to Md Anderson and started Mek,  He got 3 and a half years on that trial.  He doesn't want to give up and now I need to find the next trial.  We don't have a local oncologist to fight for him,.  Should he have one outside of Phase I trials to be his advocate.  Can he get ippi alone from a local oncologist?

                                  • March 3, 2013 at 6:28 pm
                                  sharmon
                                  Participant

                                    Thanks for you reply,  Dr Weber had said once before that there was no more treatment at Moffitt for Brent and then we went to Md Anderson and started Mek,  He got 3 and a half years on that trial.  He doesn't want to give up and now I need to find the next trial.  We don't have a local oncologist to fight for him,.  Should he have one outside of Phase I trials to be his advocate.  Can he get ippi alone from a local oncologist?

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