sharmon
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

sharmon

Forum Replies Created

Viewing 8 reply threads
1 2 3 … 12 13 14
  • Replies
      • August 25, 2013 at 7:47 pm
      sharmon
      Participant

      Ask to have that new met retested for BRAF mutation.  Not always but it has happened that new mets will be different mutations in the same person. 

      • August 25, 2013 at 7:47 pm
      sharmon
      Participant

      Ask to have that new met retested for BRAF mutation.  Not always but it has happened that new mets will be different mutations in the same person. 

      • August 25, 2013 at 7:47 pm
      sharmon
      Participant

      Ask to have that new met retested for BRAF mutation.  Not always but it has happened that new mets will be different mutations in the same person. 

      • May 6, 2013 at 11:34 pm
      sharmon
      Participant
      Md Anderson has a gleevac trial now! Brent had qualified for it with dr. Falchook.before he died,
      • May 6, 2013 at 11:34 pm
      sharmon
      Participant
      Md Anderson has a gleevac trial now! Brent had qualified for it with dr. Falchook.before he died,
      • May 6, 2013 at 11:34 pm
      sharmon
      Participant
      Md Anderson has a gleevac trial now! Brent had qualified for it with dr. Falchook.before he died,
      • April 11, 2013 at 6:54 pm
      sharmon
      Participant
      Brent died on the 4th. I cannot be alone. My family take turns staying with me. He was my only and best friend. We worked together ever day for 10 years. He did not want to die. No one can tell me that it will get easier. Every moment here without him is agony. We never had an argument. Ours was a love affair that was out of a fairy tale. No one can tell someone how to get over this. I think we have to figure it out on our own in our own time, in our own way. Or not,
      • April 11, 2013 at 6:54 pm
      sharmon
      Participant
      Brent died on the 4th. I cannot be alone. My family take turns staying with me. He was my only and best friend. We worked together ever day for 10 years. He did not want to die. No one can tell me that it will get easier. Every moment here without him is agony. We never had an argument. Ours was a love affair that was out of a fairy tale. No one can tell someone how to get over this. I think we have to figure it out on our own in our own time, in our own way. Or not,
      • April 11, 2013 at 6:54 pm
      sharmon
      Participant
      Brent died on the 4th. I cannot be alone. My family take turns staying with me. He was my only and best friend. We worked together ever day for 10 years. He did not want to die. No one can tell me that it will get easier. Every moment here without him is agony. We never had an argument. Ours was a love affair that was out of a fairy tale. No one can tell someone how to get over this. I think we have to figure it out on our own in our own time, in our own way. Or not,
      • March 3, 2013 at 6:35 pm
      sharmon
      Participant

      Thanks for you reply,  Dr Weber had said once before that there was no more treatment at Moffitt for Brent and then we went to Md Anderson and started Mek,  He got 3 and a half years on that trial.  He doesn't want to give up and now I need to find the next trial.  We don't have a local oncologist to fight for him,.  Should he have one outside of Phase I trials to be his advocate.  Can he get ippi alone from a local oncologist?

      • March 3, 2013 at 6:35 pm
      sharmon
      Participant

      Thanks for you reply,  Dr Weber had said once before that there was no more treatment at Moffitt for Brent and then we went to Md Anderson and started Mek,  He got 3 and a half years on that trial.  He doesn't want to give up and now I need to find the next trial.  We don't have a local oncologist to fight for him,.  Should he have one outside of Phase I trials to be his advocate.  Can he get ippi alone from a local oncologist?

      • March 3, 2013 at 6:35 pm
      sharmon
      Participant

      Thanks for you reply,  Dr Weber had said once before that there was no more treatment at Moffitt for Brent and then we went to Md Anderson and started Mek,  He got 3 and a half years on that trial.  He doesn't want to give up and now I need to find the next trial.  We don't have a local oncologist to fight for him,.  Should he have one outside of Phase I trials to be his advocate.  Can he get ippi alone from a local oncologist?

      • March 3, 2013 at 6:28 pm
      sharmon
      Participant

      Thanks for you reply,  Dr Weber had said once before that there was no more treatment at Moffitt for Brent and then we went to Md Anderson and started Mek,  He got 3 and a half years on that trial.  He doesn't want to give up and now I need to find the next trial.  We don't have a local oncologist to fight for him,.  Should he have one outside of Phase I trials to be his advocate.  Can he get ippi alone from a local oncologist?

      • March 3, 2013 at 6:28 pm
      sharmon
      Participant

      Thanks for you reply,  Dr Weber had said once before that there was no more treatment at Moffitt for Brent and then we went to Md Anderson and started Mek,  He got 3 and a half years on that trial.  He doesn't want to give up and now I need to find the next trial.  We don't have a local oncologist to fight for him,.  Should he have one outside of Phase I trials to be his advocate.  Can he get ippi alone from a local oncologist?

      • March 3, 2013 at 6:28 pm
      sharmon
      Participant

      Thanks for you reply,  Dr Weber had said once before that there was no more treatment at Moffitt for Brent and then we went to Md Anderson and started Mek,  He got 3 and a half years on that trial.  He doesn't want to give up and now I need to find the next trial.  We don't have a local oncologist to fight for him,.  Should he have one outside of Phase I trials to be his advocate.  Can he get ippi alone from a local oncologist?

Viewing 8 reply threads
1 2 3 … 12 13 14
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Popular Topics