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sandywebb

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      sandywebb
      Participant

        I think there are actually very many long-term survivors out there. We just never hear or see them here because they move on. It's not cus they don't care about coming here it's just cus they are busy and maybe don't want to remind themselves of the tough times they may have endured. I kinda fall into that category. I was NED for 5 years and after visiting this site every day several times a day for about 3 years I kinda got out of the habit and would just not have the time to get on here. Had too many other things going on that I was able to do and I basically wanted no reminder at all of this Beast. Very recently  I had my 5 year scans and was floored that they saw a small nodule on my left lung and possible bone mets to my left hip and spine area soooo now I'm back here for support and information. So I do think there are A LOT of long-termers out there!!!   We just don't see them. Good Luck and Stay Positive!!!!!!

        sandywebb
        Participant

          I think there are actually very many long-term survivors out there. We just never hear or see them here because they move on. It's not cus they don't care about coming here it's just cus they are busy and maybe don't want to remind themselves of the tough times they may have endured. I kinda fall into that category. I was NED for 5 years and after visiting this site every day several times a day for about 3 years I kinda got out of the habit and would just not have the time to get on here. Had too many other things going on that I was able to do and I basically wanted no reminder at all of this Beast. Very recently  I had my 5 year scans and was floored that they saw a small nodule on my left lung and possible bone mets to my left hip and spine area soooo now I'm back here for support and information. So I do think there are A LOT of long-termers out there!!!   We just don't see them. Good Luck and Stay Positive!!!!!!

          sandywebb
          Participant

            I think there are actually very many long-term survivors out there. We just never hear or see them here because they move on. It's not cus they don't care about coming here it's just cus they are busy and maybe don't want to remind themselves of the tough times they may have endured. I kinda fall into that category. I was NED for 5 years and after visiting this site every day several times a day for about 3 years I kinda got out of the habit and would just not have the time to get on here. Had too many other things going on that I was able to do and I basically wanted no reminder at all of this Beast. Very recently  I had my 5 year scans and was floored that they saw a small nodule on my left lung and possible bone mets to my left hip and spine area soooo now I'm back here for support and information. So I do think there are A LOT of long-termers out there!!!   We just don't see them. Good Luck and Stay Positive!!!!!!

            sandywebb
            Participant

              WOW!!!!  Thank you for that post!!!!  Docs are looking at possible lung mets for me and I think trying to take my 5yr.NED title from me. I have been sooooo worried, mad and dusgusted. Seeing your post has made me put on the boxing gloves again and say BRING IT!!!  I have beat you before and I will again!!!!   Again,,THANKS!!!!!!!

              sandywebb
              Participant

                WOW!!!!  Thank you for that post!!!!  Docs are looking at possible lung mets for me and I think trying to take my 5yr.NED title from me. I have been sooooo worried, mad and dusgusted. Seeing your post has made me put on the boxing gloves again and say BRING IT!!!  I have beat you before and I will again!!!!   Again,,THANKS!!!!!!!

                sandywebb
                Participant

                  WOW!!!!  Thank you for that post!!!!  Docs are looking at possible lung mets for me and I think trying to take my 5yr.NED title from me. I have been sooooo worried, mad and dusgusted. Seeing your post has made me put on the boxing gloves again and say BRING IT!!!  I have beat you before and I will again!!!!   Again,,THANKS!!!!!!!

                  sandywebb
                  Participant

                    Thanks so much for the info. Starting to look at it now!!!!

                    sandywebb
                    Participant

                      Thanks so much for the info. Starting to look at it now!!!!

                      sandywebb
                      Participant

                        Thanks so much for the info. Starting to look at it now!!!!

                        sandywebb
                        Participant

                          Thanks so much for the encouragement!!!!!

                          sandywebb
                          Participant

                            Thanks so much for the encouragement!!!!!

                            sandywebb
                            Participant

                              Thanks so much for the encouragement!!!!!

                              sandywebb
                              Participant

                                I didn't want to wait but they told me with the size being so small the chances that it would light up on the PET would be minimal, apparently they have to be bigger. But I do have an oncology appt. on the 21st and she may want to speed things up a bit. My Surgical Oncologist and the thoracic surgeon both decided on the wait approach because of the smallness but also said the Oncologist may go ahead and speed things up. 

                                sandywebb
                                Participant

                                  I didn't want to wait but they told me with the size being so small the chances that it would light up on the PET would be minimal, apparently they have to be bigger. But I do have an oncology appt. on the 21st and she may want to speed things up a bit. My Surgical Oncologist and the thoracic surgeon both decided on the wait approach because of the smallness but also said the Oncologist may go ahead and speed things up. 

                                  sandywebb
                                  Participant

                                    I didn't want to wait but they told me with the size being so small the chances that it would light up on the PET would be minimal, apparently they have to be bigger. But I do have an oncology appt. on the 21st and she may want to speed things up a bit. My Surgical Oncologist and the thoracic surgeon both decided on the wait approach because of the smallness but also said the Oncologist may go ahead and speed things up. 

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