Rydell
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Rydell

Forum Replies Created

Viewing 12 reply threads
1 2
  • Replies
      • April 13, 2011 at 6:28 pm
      Rydell
      Participant

      I saw this on AIM at Melanoma. Yervoy reimbursements – 800-861-0048, Mon-Fri. 8am-8pm ET

      • April 13, 2011 at 6:28 pm
      Rydell
      Participant

      I saw this on AIM at Melanoma. Yervoy reimbursements – 800-861-0048, Mon-Fri. 8am-8pm ET

      • April 4, 2011 at 1:43 am
      Rydell
      Participant

      Hi Natalie,

      Glad to hear you are NED. Thank you for reaching out.

      I was diagnosed with Stage IV MM in January 2011, after a double craniotomy. I received 4 CyberKnife treatments for a third brain met. I have about six other lesions throughout my body. I just completed six weeks of Temodar and will have a PET scan this week. I also tested positive for the B-RAF mutation. Not sure what the next step will be, it all seems very overwhelming.

      Please keep us updated on your status. You've given me some more hope 🙂

      Thanks,

      Amanda

      • April 4, 2011 at 1:43 am
      Rydell
      Participant

      Hi Natalie,

      Glad to hear you are NED. Thank you for reaching out.

      I was diagnosed with Stage IV MM in January 2011, after a double craniotomy. I received 4 CyberKnife treatments for a third brain met. I have about six other lesions throughout my body. I just completed six weeks of Temodar and will have a PET scan this week. I also tested positive for the B-RAF mutation. Not sure what the next step will be, it all seems very overwhelming.

      Please keep us updated on your status. You've given me some more hope 🙂

      Thanks,

      Amanda

      • March 28, 2011 at 3:35 pm
      Rydell
      Participant
      I don’t have any helpful tips, sorry. I just hope you feel better soon and someone here can help! Keep us updated with your progress!
      Keep smiling
      • March 28, 2011 at 3:35 pm
      Rydell
      Participant
      I don’t have any helpful tips, sorry. I just hope you feel better soon and someone here can help! Keep us updated with your progress!
      Keep smiling
      • March 18, 2011 at 11:24 pm
      Rydell
      Participant

      Sorry to hear about the side effects. Good luck with your appt! Could you explain the MEK part of the combo? I'm still trying to research things! Stay strong!!

      Amanda

      • March 18, 2011 at 11:24 pm
      Rydell
      Participant

      Sorry to hear about the side effects. Good luck with your appt! Could you explain the MEK part of the combo? I'm still trying to research things! Stay strong!!

      Amanda

      • March 17, 2011 at 10:23 pm
      Rydell
      Participant

      Good luck to your father! Please keep us posted on how he is doing on this treatment! Sending positive thoughts your way!!

      Amanda (Stage 4)

      • March 17, 2011 at 10:23 pm
      Rydell
      Participant

      Good luck to your father! Please keep us posted on how he is doing on this treatment! Sending positive thoughts your way!!

      Amanda (Stage 4)

      • March 17, 2011 at 2:57 am
      Rydell
      Participant

      That is such wonderful news, thank you for sharing!!

      Amanda (Stage 4)

      • March 17, 2011 at 2:57 am
      Rydell
      Participant

      That is such wonderful news, thank you for sharing!!

      Amanda (Stage 4)

      • March 17, 2011 at 1:27 am
      Rydell
      Participant

      Dr. Carvajal is my doctor! Thank you for posting that article! Good luck to you and your husband!!

      • April 10, 2011 at 12:35 am
      Rydell
      Participant

      Hi Natalie,

      I will get my results on Wednesday. I took 150mg everyday for six weeks. Fatigue, nausea, and hair loss were the main side effects. First three weeks weren't bad, then the side effects started…some days were worse than others, I just slept a lot. CyberKnife doesn't use the metal halo. You should definitely be tested for the B-RAF mutation.

      Email me anytime you want to talk, yganra@gmail.com. But definitely keep us updated on your status. Good luck with everything!!
       

      Amanda

      • April 10, 2011 at 12:35 am
      Rydell
      Participant

      Hi Natalie,

      I will get my results on Wednesday. I took 150mg everyday for six weeks. Fatigue, nausea, and hair loss were the main side effects. First three weeks weren't bad, then the side effects started…some days were worse than others, I just slept a lot. CyberKnife doesn't use the metal halo. You should definitely be tested for the B-RAF mutation.

      Email me anytime you want to talk, yganra@gmail.com. But definitely keep us updated on your status. Good luck with everything!!
       

      Amanda

Viewing 12 reply threads
1 2
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.