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B-RAF/MEK Combo Week 2

Forums General Melanoma Community B-RAF/MEK Combo Week 2

  • Post
    dawn dion
    Participant

      So today was a little frustrating.   Finally had some side effects – wondered when they would show up :)  Anyway – not to bad – hip joints hurt a little, verry tired today.   I am a person that goes non-stop so when I have to slow down it is frustrating.  Also had a low grade fever about 100 – 101 took a couple of tylenol slept allll day – and now all seems to be right with the world.   Go back to Moffit tomorrow for EKG and visit.   So far so good.   I hope the others of you on the forum riding a the B-RAF train are doing as well.

      So today was a little frustrating.   Finally had some side effects – wondered when they would show up :)  Anyway – not to bad – hip joints hurt a little, verry tired today.   I am a person that goes non-stop so when I have to slow down it is frustrating.  Also had a low grade fever about 100 – 101 took a couple of tylenol slept allll day – and now all seems to be right with the world.   Go back to Moffit tomorrow for EKG and visit.   So far so good.   I hope the others of you on the forum riding a the B-RAF train are doing as well.

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    • Replies
        KellieSue
        Participant

          Sorry to hear you are having some side effects but they seem very managable!

          Hope your day at Moffit goes smoothly!

          Kellie(from Iowa) Stage IV

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          KellieSue
          Participant

            Sorry to hear you are having some side effects but they seem very managable!

            Hope your day at Moffit goes smoothly!

            Kellie(from Iowa) Stage IV

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            Rydell
            Participant

              Sorry to hear about the side effects. Good luck with your appt! Could you explain the MEK part of the combo? I'm still trying to research things! Stay strong!!

              Amanda

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                dawn dion
                Participant

                  So went to Moffit yesterday – seems that what I consider low grade they  consider Hi – if it goes any higher than 101-102 they will stop the B-RAF drug for 72 hours.  Currently I am alternating Tylenol and Motrin every 4 hours still dealing with about 99 – 100 on and off.   Other than that they seem to be happy with my progress.  Still not loving the fatigue but I guess it comes with the territory.  I will do what ever I have to do.  

                  Amanda as far as the MEK part of the combo – it is another inhibator that will hopefully control any reaccurance.  I am hoping that it does.  

                  I am still kind of new at this so if anyone knows anything further about it please chime in.

                  Hugs and Smiles to all

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                  dawn dion
                  Participant

                    So went to Moffit yesterday – seems that what I consider low grade they  consider Hi – if it goes any higher than 101-102 they will stop the B-RAF drug for 72 hours.  Currently I am alternating Tylenol and Motrin every 4 hours still dealing with about 99 – 100 on and off.   Other than that they seem to be happy with my progress.  Still not loving the fatigue but I guess it comes with the territory.  I will do what ever I have to do.  

                    Amanda as far as the MEK part of the combo – it is another inhibator that will hopefully control any reaccurance.  I am hoping that it does.  

                    I am still kind of new at this so if anyone knows anything further about it please chime in.

                    Hugs and Smiles to all

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                  Rydell
                  Participant

                    Sorry to hear about the side effects. Good luck with your appt! Could you explain the MEK part of the combo? I'm still trying to research things! Stay strong!!

                    Amanda

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                    LynnLuc
                    Participant

                      I have a friend who was doing the same trial at Moffitt and her fevers got too high and they took her off last week. Good luck with this trial!!

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                        dawn dion
                        Participant

                          They took me off it for 2 days – I have had a brutal weekend – hopefully back on tuesday and things will be better. 

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                          dawn dion
                          Participant

                            They took me off it for 2 days – I have had a brutal weekend – hopefully back on tuesday and things will be better. 

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                          LynnLuc
                          Participant

                            I have a friend who was doing the same trial at Moffitt and her fevers got too high and they took her off last week. Good luck with this trial!!

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