Rodensir

I live in Noblesville too.

I used Stephen Schultz and was great I recommend him.

Siebe in Noblesville is a great dermatologist and he would be the person to do the 6 month followups with.  You will be followed every 3 months for a while then every 6 for a couple years and then yearly forever not too bad.

Good luck if you have questions email at [email protected]

I live in Noblesville too.

I used Stephen Schultz and was great I recommend him.

Siebe in Noblesville is a great dermatologist and he would be the person to do the 6 month followups with.  You will be followed every 3 months for a while then every 6 for a couple years and then yearly forever not too bad.

Good luck if you have questions email at [email protected]

I live in Noblesville too.

I used Stephen Schultz and was great I recommend him.

Siebe in Noblesville is a great dermatologist and he would be the person to do the 6 month followups with.  You will be followed every 3 months for a while then every 6 for a couple years and then yearly forever not too bad.

Good luck if you have questions email at [email protected]

Yep I was on trial in 2004 and still NED

Yep I was on trial in 2004 and still NED

Yep I was on trial in 2004 and still NED

Yep I was on trial in 2004 and still NED

Yep I was on trial in 2004 and still NED

Yep I was on trial in 2004 and still NED

Hi

I had the MDX10 the experimental yervoy at NIH in the fall of 2003 on a trial basis.

After 2 doses had the same response plus the itching and other side effects.  It sucks!

Yes with only two dosed I become NED in March of 2004 and have remained that way.

Hope you have the same response  I know that what Charle S says is correct but there are some complete responders to drugs  like you are on.  NIH indicates that it is a small number IE Charlie stats are right but still there are complete NED responses also.

Hang in there

Allan

Hi

I had the MDX10 the experimental yervoy at NIH in the fall of 2003 on a trial basis.

After 2 doses had the same response plus the itching and other side effects.  It sucks!

Yes with only two dosed I become NED in March of 2004 and have remained that way.

Hope you have the same response  I know that what Charle S says is correct but there are some complete responders to drugs  like you are on.  NIH indicates that it is a small number IE Charlie stats are right but still there are complete NED responses also.

Hang in there

Allan

Hi

I had the MDX10 the experimental yervoy at NIH in the fall of 2003 on a trial basis.

After 2 doses had the same response plus the itching and other side effects.  It sucks!

Yes with only two dosed I become NED in March of 2004 and have remained that way.

Hope you have the same response  I know that what Charle S says is correct but there are some complete responders to drugs  like you are on.  NIH indicates that it is a small number IE Charlie stats are right but still there are complete NED responses also.

Hang in there

Allan

You can search for trials at Cancer.gov this site allows you to search both in your area and  nationally.

It also lets you see what NIH is doing if you don't mind going to DC.

Allan

You can search for trials at Cancer.gov this site allows you to search both in your area and  nationally.

It also lets you see what NIH is doing if you don't mind going to DC.

Allan

I did the drug 5+ years ago and have been NED since.

Having a response is not fun and I know what your husband is going through and it is tough.  But the good news is that if he is a responded then and it would appear he is then once treated and responding there is no need for further treatment.  Just get the bowls under control.  It is not the number of treatments but the response that is critical so do not sweat stopping, That is easier to say than to do I know but deal with things day to day.  

You can follow my next trip down the river at Mississippiriver3.blogspot.com and contact me from there if there is more information you need or just someone to talk with.

Allan