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- August 5, 2021 at 9:49 pm
All great suggestions noted and I’ve used Coolibar and others mentioned. Many more brands, style choices and price points than there were in years past. You may want to check out Columbia, Eddie Bauer, Duluth Trading, LL Bean as they all make UPF 50 /sun-safe shirts (button up/collared) along with T-shirts. Columbia – esp their outlet stores and/or online sites – offer great sales. If I’m going to be outside for a while I also put on a pair of light-weight (not hot to wear as they are ultra thin) Columbia brand UPF/sun safe fingerless gloves. I used these trekking around Disney in the Florida sun. I have a wide-brimmed Tilley (brand) hat that I wear – gives shade over back of neck. Happy shopping! -
- June 19, 2021 at 9:34 pm
No, you’re not alone. The old format worked….ask a question, get replies. MPIP.org was a lifeline for me after being diagnosed Stage IV in 2005…..used it daily to get answers, give answers and get hope. A lot of people relied heavily on that bulletin board . The profiles were extremely helpful to me – now they’re gone….and the new format is not well designed and painful to use especially for anyone needing to ask a quick question, find an answer and get the much needed support from fellow warriors and caregivers. -
- August 11, 2020 at 1:13 am
Hi –
I am so sorry that your husband (and you!) are having to go thru this. While I can’t personally attest to the combination (ipi + Nivolumb) you noted, likely someone else on this site can. Hang on to that hope and keep asking questions. This site was a lifeline for me when I was dx’ed at Stage IV on Aug 11, 2005 and throughout my treatments, surgeries and trials. Tomorrow marks my 15th year as a Stage IV survivor – I’ve had no evidence of disease (NED) since early 2009 after a full response to the Ipi trial I was on. Hang in there!Rocco, Stage IV in Aug 2005, NED since 2009 – full response to Ipi (MDX-101 trial)
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- March 10, 2020 at 3:35 pm
I had symptoms like Graves but without the Graves antibodies present. Steroids eventually did the trick but it took awhile to taper off as I was put on a much higher dose than you. Had no thyroid issues for about 3 years after that, when out of the blue I went hypo (text book symptoms) and was retested and found positive for Graves. Have taken Methimazole – very low dose – daily for about 2 years or so and all is well to the point where I see the Endo. Dr only once a year and the Graves specialist only if I were to have a recurrence of symptoms / swelling/double vision, etc. Hang in there!