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NYKaren
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NYKaren

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      • June 29, 2014 at 9:49 pm
      NYKaren
      Participant

        Yes, I got it. I have never gotten through Sloan so fast in my life!  Arthur, I remember your post all day. 

        So funny, the nurse laughed when I took a picture of the bag  on the pole. She said no one had ever done that before, but a few of her patients had that day. 

        Only side effect is fatigue, which is pretty much to be expected.  

        Fingers crossed, and I just can't thank all of you for your help and support.

        love, karen

        • June 29, 2014 at 9:49 pm
        NYKaren
        Participant

          Yes, I got it. I have never gotten through Sloan so fast in my life!  Arthur, I remember your post all day. 

          So funny, the nurse laughed when I took a picture of the bag  on the pole. She said no one had ever done that before, but a few of her patients had that day. 

          Only side effect is fatigue, which is pretty much to be expected.  

          Fingers crossed, and I just can't thank all of you for your help and support.

          love, karen

          • June 29, 2014 at 9:49 pm
          NYKaren
          Participant

            Yes, I got it. I have never gotten through Sloan so fast in my life!  Arthur, I remember your post all day. 

            So funny, the nurse laughed when I took a picture of the bag  on the pole. She said no one had ever done that before, but a few of her patients had that day. 

            Only side effect is fatigue, which is pretty much to be expected.  

            Fingers crossed, and I just can't thank all of you for your help and support.

            love, karen

            • June 20, 2014 at 12:06 am
            NYKaren
            Participant

              Janet, 

              please keep us posted. I'm starting Tuesday @ Sloan. Can hardly believe it. 

              Love,

              karen

              • June 20, 2014 at 12:06 am
              NYKaren
              Participant

                Janet, 

                please keep us posted. I'm starting Tuesday @ Sloan. Can hardly believe it. 

                Love,

                karen

                • June 20, 2014 at 12:06 am
                NYKaren
                Participant

                  Janet, 

                  please keep us posted. I'm starting Tuesday @ Sloan. Can hardly believe it. 

                  Love,

                  karen

                  • June 19, 2014 at 10:38 pm
                  NYKaren
                  Participant

                    Thank you, Charlie. 

                    Thank you for halting my pity party. I'm finally getting PD1 on Tuesday. Yeah!!!!!!Just read Tim's post on ASCO and realized that those who were NOT prior treated with Ipi have/had lower success rates.  Boooo.   Three gamma knife procedures later, thanks for reminding me to shut up and be happy and hopeful. 

                    BTW: BRAF Combo lasted 10 months. 

                    love ya,

                    Karen

                    • June 19, 2014 at 10:38 pm
                    NYKaren
                    Participant

                      Thank you, Charlie. 

                      Thank you for halting my pity party. I'm finally getting PD1 on Tuesday. Yeah!!!!!!Just read Tim's post on ASCO and realized that those who were NOT prior treated with Ipi have/had lower success rates.  Boooo.   Three gamma knife procedures later, thanks for reminding me to shut up and be happy and hopeful. 

                      BTW: BRAF Combo lasted 10 months. 

                      love ya,

                      Karen

                      • June 19, 2014 at 10:38 pm
                      NYKaren
                      Participant

                        Thank you, Charlie. 

                        Thank you for halting my pity party. I'm finally getting PD1 on Tuesday. Yeah!!!!!!Just read Tim's post on ASCO and realized that those who were NOT prior treated with Ipi have/had lower success rates.  Boooo.   Three gamma knife procedures later, thanks for reminding me to shut up and be happy and hopeful. 

                        BTW: BRAF Combo lasted 10 months. 

                        love ya,

                        Karen

                        • June 16, 2014 at 6:21 pm
                        NYKaren
                        Participant

                          Hi Daniel,

                          Dr. Sznol is starting that trial, but he feels that since I was so recently treated, I should go for the expanded access. 

                          All the best,

                          karen

                          • June 16, 2014 at 6:21 pm
                          NYKaren
                          Participant

                            Hi Daniel,

                            Dr. Sznol is starting that trial, but he feels that since I was so recently treated, I should go for the expanded access. 

                            All the best,

                            karen

                            • June 16, 2014 at 6:21 pm
                            NYKaren
                            Participant

                              Hi Daniel,

                              Dr. Sznol is starting that trial, but he feels that since I was so recently treated, I should go for the expanded access. 

                              All the best,

                              karen

                              • June 16, 2014 at 4:46 pm
                              NYKaren
                              Participant

                                I just emailed Dr. Sznol on this matter, I'll share his response. I'm on NYU's list, starting Sloan's info-gathering procedure, and now this. In a brief email because he was away last week, Dr. Sznol said I should be on PD1 right away. That's what I'm trying for!  It's my understanding that the problem getting started is now with the hospitals.  

                                How many will die before getting PD1?

                                Karen

                                • June 16, 2014 at 4:46 pm
                                NYKaren
                                Participant

                                  I just emailed Dr. Sznol on this matter, I'll share his response. I'm on NYU's list, starting Sloan's info-gathering procedure, and now this. In a brief email because he was away last week, Dr. Sznol said I should be on PD1 right away. That's what I'm trying for!  It's my understanding that the problem getting started is now with the hospitals.  

                                  How many will die before getting PD1?

                                  Karen

                                  • June 16, 2014 at 4:46 pm
                                  NYKaren
                                  Participant

                                    I just emailed Dr. Sznol on this matter, I'll share his response. I'm on NYU's list, starting Sloan's info-gathering procedure, and now this. In a brief email because he was away last week, Dr. Sznol said I should be on PD1 right away. That's what I'm trying for!  It's my understanding that the problem getting started is now with the hospitals.  

                                    How many will die before getting PD1?

                                    Karen

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