Forum Replies Created
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- July 13, 2017 at 9:56 am
I was diagnosed with a Desmoplastic Melanoma in 2005, 3.55 mm depth, no regression, some lymph infiltrate. The surgeons said that they treated it like a soft tissue sarcoma and it is not unusual for them to be quite deep when presented. I have had various other primaries, one superfical spreading melanoma in situ spreading to my lymph nodes in my groin for which I received radiation therapy in 2001. Given my history I pushed to get radiation therapy on the DM to avoid local recurrence. To date, I have had no further issues and I am currently NED.
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- July 7, 2017 at 1:18 pm
Thanks Carol K. I am checking in too. I have been a long term poster on this Board and currently 17 years NED after Stage 3b melanoma, some may remember me. My treatment back then was surgery and radiation therapy for local control. I am sending my best wishes to everyone battling this disease.
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- June 19, 2017 at 1:21 pm
Hi, sorry to hear of your diagnosis. I'm a fellow kiwi living in Australia and have battled this disease for 17 years. I wish you all the best in your fight. This board certainly got me through some tough times but armed me with so much knowledge. I hope that you get the answers you seek.
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- May 1, 2017 at 6:02 am
Hi Janner, that is fantastic news. I am so happy for you that you have reached this milestone. You have made such an incredible contribution over the years and giving to others support on this board it is good that you have posted your own positive story. I may not visit the board much these days but it's lovely to see a familiar name every time I do. Keep up the good work but don't not forget yourself. Wishing you many years of NED. Nicky -17 years NED
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- April 30, 2017 at 12:08 pm
Hi there, you sound like you are having an incredibly rough time, this disease can be such a roller coaster. We are here to support you in any way we can. Fight it, and tell yourself that melanoma is not going to beat you. Be strong. I wish you all the best in this journey.
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- April 30, 2017 at 11:52 am
Hi there, sorry for your diagnosis. You are right to be your own advocate and question and fight for your survival. It's a lesson I learnt 17 years ago when I was first diagnosed with Stage III melanoma. It has kept me in good stead and has helped me survive two more melanomas. I wish you all the best in your journey.
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- June 30, 2015 at 12:01 pm
Hi Kelly, I'm sorry to hear that you are feeling so down. It is good that you have found this forum as it can offer such wonderful support and friendship. After battling this disease for 15 years, currently Stage IIIb, I remember contacting my local cancer council which offered free counselling and I found that really helpful when I was first diagnosed as friends and family don't always understand what you are going through. It gave me the tools to remain positive and determined to make changes like reducing stress to give my immune system the best support it could get. If you have this in your area or through a hospital I would recommend it. Take care of yourself and I wish you all the best.
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- April 30, 2019 at 11:56 am
Hi, I don’t know whether I am BRAF positive or not. Diagnosed Stage 3b in 2001. Currently NED. There are many long term survivors out there, they just don’t necessarily post. I have had 3 more primary melanomas but none have metastasized thanks to early detection every 3 months. I wish you all the best.
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- November 20, 2018 at 6:47 pm
I was also one of the rare unlucky ones. In situ on my right leg, 9 months later it was in my right groin lymph nodes. Thank goodness I’ve stayed alive long enough to see these new treatments, back then there were very few options. Skin checks are so important, I can’t stress that enough. 18 years battling this x%^#{ disease.
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- November 6, 2018 at 10:49 pm
Thanks everyone. Very grateful that it’s still a thin melanoma. I’ve already had a full dissection of the lymph nodes in my groin 18 years ago and I really want to preserve all the rest of them. I am readying my self for three surgeries this afternoon. A wider excision for the melanoma on my back, another suspicious mole and another squamous carcinoma on my face. I’m going to have a margarita when I get to Los Angeles and raise it to all my old melanoma friends past and present on this amazing American page. I know there is a lot of pain on this board and we can all just allow ourselves to acknowledge it. At least we have each other through the good times and bad no matter where we are in the world. I wish you all so much healing on your journey.
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- December 4, 2017 at 12:22 pm
Hi Janice, thinking of you at this time. I was also diagnosed 17 years ago and have been on this board a long time. Stage III melanoma in one lymph node in groin with extracapsulary spread. Whatever the diagnosis is, we are all hereto support you. Time will never change that.