› Forums › General Melanoma Community › Stage 1B – 25 year anniversary
- This topic has 17 replies, 16 voices, and was last updated 1 year, 4 months ago by ed williams.
- April 18, 2017 at 1:02 pm
Just posting a little positive news here. It's often easy when reading this site to think every early stage person progresses. What we don't see is those that move on and have no reason to post. It's the 25 year anniversary since my first melanoma primary was removed in 1992. Seems like a world ago. No internet, no information, no support system back then. I didn't know a single person who had had melanoma. Even the medical library at my local university had only gloom and doom information. What a difference to today. This is amazing website of people and information – we are all so much better informed today.
For me, the 1st primary wasn't my only encounter with melanoma. I had two more primaries 8 and 9 years later. But nothing since 2001. My adoptive parents have both have melanoma – it is what took my Dad. And my birth Mom and half-sister have both had melanoma. I can't seem to escape it nowadays. It has also brought me some amazing friends from this website from way back. (I've been on this site since 2001). I'm just so thankful we have the support and resources and information available to us today that was sadly lacking 25 years ago! And treatments! The world is an entirely different place in regards to treatments for melanoma.
Carry on, I wish everyone well, and remember despite how it appears here, MOST early stagers do NOT progress!
Julie in SoCalParticipant
- April 18, 2017 at 3:41 pm
LOVE THIS!!!!! Thanks so much for posting!!!!!
Happy Dancing in Huntington Beach over this!
- April 18, 2017 at 11:51 pm
What great news! Thank you for all of your years of dedication to this site, it is much appreciated!
- April 19, 2017 at 1:46 am
Thanks, Janner! Even though my husband is one of those patients with multiple primaries, every time he goes in for a check (seems like every two months something suspicious comes up) he's so far dodged the progression bullet. It's nice to hear a reminder like yours — that chances are he never will progress, and as long as we keep up with frequent checks all will be well.
You are a great source of information and encouragement to everyone here, and your input is valued and appreciated! Thank you for caring for so many!
- April 19, 2017 at 4:27 pm
Thank you, Janner, for all that you do and your amazing spirit. You're always the calm voice of reason and you really dedicate a LOT of time towards this site and melanoma education for the early stagers. You're an amazing person – congrats on the anniversary!!
- April 19, 2017 at 6:54 pm
Congrats and thank you for this post!!
- April 20, 2017 at 12:03 am
Wow! 25 years ago…long time! Thank you for sticking around and contributing with all your wonderful advice! You've helped so many people. Here's to continued good health for you!
- May 1, 2017 at 6:02 am
Hi Janner, that is fantastic news. I am so happy for you that you have reached this milestone. You have made such an incredible contribution over the years and giving to others support on this board it is good that you have posted your own positive story. I may not visit the board much these days but it's lovely to see a familiar name every time I do. Keep up the good work but don't not forget yourself. Wishing you many years of NED. Nicky -17 years NED
Danielle TParticipantJammer my story is much like yours but I’m more newly into it.
- November 7, 2021 at 6:34 am
first melanoma in-situ in 2011, T1a in dec 2020 and another in situ in jan 2021. The odd thing is all of them were supposedly rare subtypes – two spitzoid and one nevoid.
I see my dermatologist every 3 months, I take my own pictures monthly and had professional pictures done as well.
I of course practice sun safety but I can’t achieve sun avoidance.
Any advice for me to not have another melanoma? Did you get genetic tested?
ed williamsParticipantDanielle T, Janner left the group a couple of years ago because of a negative new member who was disrespectful to her. Her knowledge is missed on the forum, but her old post’s are still very informative. Ed
- November 7, 2021 at 11:03 am
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