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Nan in Nebraska

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      Nan in Nebraska
      Participant

        m so glad to see your husband is getting a response. How long between stopping Yervoy and starting Keytruda?

        Nan in Nebraska
        Participant

          m so glad to see your husband is getting a response. How long between stopping Yervoy and starting Keytruda?

          Nan in Nebraska
          Participant

            m so glad to see your husband is getting a response. How long between stopping Yervoy and starting Keytruda?

            Nan in Nebraska
            Participant

              Hi Racheal,

                 Congratulations on what sounds like a wonderful opportunity in going to Japan for your job.

                 If you haven't heard his name already, Dr. Takemi Sato in Philadelphia, has the most experience of anyone in the country in ocular melanoma. Since he is Japenese, and I know he goes back home often, you might reach out to him for a recommendation. Just a thought. His nurse's name is Renee and she will get back to you quickly.

               

              Renee M. Zalinsky, RN, OCN, Metastatic Uveal Melanoma Navigator/Senior Cancer Care Coordinator, Jefferson Kimmel Cancer Center Network, 1015 Chestnut St., Suite 622, Philadelphia, PA 19107, Direct 215-955-3158, Fax 215-955-1020   E-mail: [email protected]

               

              Hope this is helpful.

              Nan in Nebraska
              Participant

                Hi Racheal,

                   Congratulations on what sounds like a wonderful opportunity in going to Japan for your job.

                   If you haven't heard his name already, Dr. Takemi Sato in Philadelphia, has the most experience of anyone in the country in ocular melanoma. Since he is Japenese, and I know he goes back home often, you might reach out to him for a recommendation. Just a thought. His nurse's name is Renee and she will get back to you quickly.

                 

                Renee M. Zalinsky, RN, OCN, Metastatic Uveal Melanoma Navigator/Senior Cancer Care Coordinator, Jefferson Kimmel Cancer Center Network, 1015 Chestnut St., Suite 622, Philadelphia, PA 19107, Direct 215-955-3158, Fax 215-955-1020   E-mail: [email protected]

                 

                Hope this is helpful.

                Nan in Nebraska
                Participant

                  Hi Racheal,

                     Congratulations on what sounds like a wonderful opportunity in going to Japan for your job.

                     If you haven't heard his name already, Dr. Takemi Sato in Philadelphia, has the most experience of anyone in the country in ocular melanoma. Since he is Japenese, and I know he goes back home often, you might reach out to him for a recommendation. Just a thought. His nurse's name is Renee and she will get back to you quickly.

                   

                  Renee M. Zalinsky, RN, OCN, Metastatic Uveal Melanoma Navigator/Senior Cancer Care Coordinator, Jefferson Kimmel Cancer Center Network, 1015 Chestnut St., Suite 622, Philadelphia, PA 19107, Direct 215-955-3158, Fax 215-955-1020   E-mail: [email protected]

                   

                  Hope this is helpful.

                  Nan in Nebraska
                  Participant

                    Esther, I am so saddened to hear about Christine. She was such a fighter and inspiration to us all.

                    My condolences to her family and friends. RIP Christine.

                    Nan

                    Nan in Nebraska
                    Participant

                      Esther, I am so saddened to hear about Christine. She was such a fighter and inspiration to us all.

                      My condolences to her family and friends. RIP Christine.

                      Nan

                      Nan in Nebraska
                      Participant

                        Esther, I am so saddened to hear about Christine. She was such a fighter and inspiration to us all.

                        My condolences to her family and friends. RIP Christine.

                        Nan

                        Nan in Nebraska
                        Participant

                          Are you experiencing any side effects? If so, what are they?

                          Thanks,

                          Nan

                          Nan in Nebraska
                          Participant

                            Are you experiencing any side effects? If so, what are they?

                            Thanks,

                            Nan

                            Nan in Nebraska
                            Participant

                              Are you experiencing any side effects? If so, what are they?

                              Thanks,

                              Nan

                              Nan in Nebraska
                              Participant

                                Hi James,

                                   I've had two courses Yervoy. I have mets in my liver, abdomen, and peritoneum and also have an enlarged paratracheal node. I've been pretty much stable since early 2011. I did have an existing lesion cyberknifed (target radiation) halfway through my second course of Yervoy. I have had NOTHING NEW since Feb., 2011.

                                   How much liver involvement does she have? I'm wondering if she should/could do sirspheres (direct liver treatment) and then do Yervoy. Yervoy sometimes takes a while to show that it's working. For me, at first, it showed new lesions and enlarging existing ones, but after 3 months things settled down with a couple liver lesions and things have stayed there since.

                                   Contact Dr. Sato in Philadelphia. They will work with your oncologist if you cannot travel to see him. He is the "guru" ….he has the most experience with metastatic OM patience. His nurse, Renee, is WONDERFUL and gets back to you right away. Here is her address:

                                Renee M. Zalinsky, RN, OCN, Metastatic Uveal Melanoma Navigator/Senior Cancer Care Coordinator, Jefferson Kimmel Cancer Center Networf 1015 Chestnut St., Suite 622, Philadelphia, PA 19107, Direct Phone 215-955-3158, Fax 215-955-1020…………E-Mail: [email protected]

                                 

                                Best wishes,

                                Nan

                                 

                                 

                                 

                                 

                                 

                                 

                                Nan in Nebraska
                                Participant

                                  Hi James,

                                     I've had two courses Yervoy. I have mets in my liver, abdomen, and peritoneum and also have an enlarged paratracheal node. I've been pretty much stable since early 2011. I did have an existing lesion cyberknifed (target radiation) halfway through my second course of Yervoy. I have had NOTHING NEW since Feb., 2011.

                                     How much liver involvement does she have? I'm wondering if she should/could do sirspheres (direct liver treatment) and then do Yervoy. Yervoy sometimes takes a while to show that it's working. For me, at first, it showed new lesions and enlarging existing ones, but after 3 months things settled down with a couple liver lesions and things have stayed there since.

                                     Contact Dr. Sato in Philadelphia. They will work with your oncologist if you cannot travel to see him. He is the "guru" ….he has the most experience with metastatic OM patience. His nurse, Renee, is WONDERFUL and gets back to you right away. Here is her address:

                                  Renee M. Zalinsky, RN, OCN, Metastatic Uveal Melanoma Navigator/Senior Cancer Care Coordinator, Jefferson Kimmel Cancer Center Networf 1015 Chestnut St., Suite 622, Philadelphia, PA 19107, Direct Phone 215-955-3158, Fax 215-955-1020…………E-Mail: [email protected]

                                   

                                  Best wishes,

                                  Nan

                                   

                                   

                                   

                                   

                                   

                                   

                                  Nan in Nebraska
                                  Participant

                                    Hi James,

                                       I've had two courses Yervoy. I have mets in my liver, abdomen, and peritoneum and also have an enlarged paratracheal node. I've been pretty much stable since early 2011. I did have an existing lesion cyberknifed (target radiation) halfway through my second course of Yervoy. I have had NOTHING NEW since Feb., 2011.

                                       How much liver involvement does she have? I'm wondering if she should/could do sirspheres (direct liver treatment) and then do Yervoy. Yervoy sometimes takes a while to show that it's working. For me, at first, it showed new lesions and enlarging existing ones, but after 3 months things settled down with a couple liver lesions and things have stayed there since.

                                       Contact Dr. Sato in Philadelphia. They will work with your oncologist if you cannot travel to see him. He is the "guru" ….he has the most experience with metastatic OM patience. His nurse, Renee, is WONDERFUL and gets back to you right away. Here is her address:

                                    Renee M. Zalinsky, RN, OCN, Metastatic Uveal Melanoma Navigator/Senior Cancer Care Coordinator, Jefferson Kimmel Cancer Center Networf 1015 Chestnut St., Suite 622, Philadelphia, PA 19107, Direct Phone 215-955-3158, Fax 215-955-1020…………E-Mail: [email protected]

                                     

                                    Best wishes,

                                    Nan

                                     

                                     

                                     

                                     

                                     

                                     

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