mrsmarilyn

Hello, Thank you for the excellent update!  We are awaiting these drugs-to treat brain mets!  Timing is critical – as always in a rush for time.

Thanks again- I will share with the family.

All the best

MrsMarilyn

(sister of Gary stage IV for 11 years)

Hello, Thank you for the excellent update!  We are awaiting these drugs-to treat brain mets!  Timing is critical – as always in a rush for time.

Thanks again- I will share with the family.

All the best

MrsMarilyn

(sister of Gary stage IV for 11 years)

Hello, Thank you for the excellent update!  We are awaiting these drugs-to treat brain mets!  Timing is critical – as always in a rush for time.

Thanks again- I will share with the family.

All the best

MrsMarilyn

(sister of Gary stage IV for 11 years)

Hello-just read your story- and my brother is in the same position as your husband.  He had multiple brain mets – not a candidate for targeted radiation, and had WBR.  Now he is on Zelboraf – 2x a day.  He was in ICU for 33 days and made it out – and is resting at home. One large tumor right in between two ventricles and was bleeding.  They didn't expect him to make it out of Mayo, Jacksonville. 

We are going to do the 30 day scan- and probably get him over to Moffitt, Tampa- and see what his oncologist says about intermittent dosing – and also await dabrafenib.    We too have had a great battle for 11 years – and then moved to his brain – and he has declined mentally and physically.  I too feel he is too weak to get into clinical trial for the travel.  Please let me know if you hear something about dabrafanib — but I too don't know if it is really a different drug or just a similar drug by a different drug company.

Does anyone know if he would be a candidate for targeted radiation after wbr?  I think he is too weak for that – and hoping the Zelboraf is holding the mel down.

It was great to hear your story – and I wish you the best. 

Wishing you lots of luck and love

Mrs Marilyn

Sister of Gary (Stage IV) FOR 11 YEARS

Hello-just read your story- and my brother is in the same position as your husband.  He had multiple brain mets – not a candidate for targeted radiation, and had WBR.  Now he is on Zelboraf – 2x a day.  He was in ICU for 33 days and made it out – and is resting at home. One large tumor right in between two ventricles and was bleeding.  They didn't expect him to make it out of Mayo, Jacksonville. 

We are going to do the 30 day scan- and probably get him over to Moffitt, Tampa- and see what his oncologist says about intermittent dosing – and also await dabrafenib.    We too have had a great battle for 11 years – and then moved to his brain – and he has declined mentally and physically.  I too feel he is too weak to get into clinical trial for the travel.  Please let me know if you hear something about dabrafanib — but I too don't know if it is really a different drug or just a similar drug by a different drug company.

Does anyone know if he would be a candidate for targeted radiation after wbr?  I think he is too weak for that – and hoping the Zelboraf is holding the mel down.

It was great to hear your story – and I wish you the best. 

Wishing you lots of luck and love

Mrs Marilyn

Sister of Gary (Stage IV) FOR 11 YEARS

Hello-just read your story- and my brother is in the same position as your husband.  He had multiple brain mets – not a candidate for targeted radiation, and had WBR.  Now he is on Zelboraf – 2x a day.  He was in ICU for 33 days and made it out – and is resting at home. One large tumor right in between two ventricles and was bleeding.  They didn't expect him to make it out of Mayo, Jacksonville. 

We are going to do the 30 day scan- and probably get him over to Moffitt, Tampa- and see what his oncologist says about intermittent dosing – and also await dabrafenib.    We too have had a great battle for 11 years – and then moved to his brain – and he has declined mentally and physically.  I too feel he is too weak to get into clinical trial for the travel.  Please let me know if you hear something about dabrafanib — but I too don't know if it is really a different drug or just a similar drug by a different drug company.

Does anyone know if he would be a candidate for targeted radiation after wbr?  I think he is too weak for that – and hoping the Zelboraf is holding the mel down.

It was great to hear your story – and I wish you the best. 

Wishing you lots of luck and love

Mrs Marilyn

Sister of Gary (Stage IV) FOR 11 YEARS