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melj
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melj

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      • April 8, 2016 at 11:12 am
      melj
      Participant

        Sorry, wasn't meant to be an anonymous post.

        • April 8, 2016 at 11:12 am
        melj
        Participant

          Sorry, wasn't meant to be an anonymous post.

          • April 8, 2016 at 11:12 am
          melj
          Participant

            Sorry, wasn't meant to be an anonymous post.

            • March 14, 2016 at 7:50 am
            melj
            Participant

              Mike, I live in the UK and started pembro in January at the Royal Marsden Hospital in London. It's one of.the top cancer hospitals in Europe and are involved in many trials. Many of the patients I meet and talk to are on trials. Try contacting the Marsden to check if they have any open trials for you. Very best wishes. Mel J

              • March 14, 2016 at 7:50 am
              melj
              Participant

                Mike, I live in the UK and started pembro in January at the Royal Marsden Hospital in London. It's one of.the top cancer hospitals in Europe and are involved in many trials. Many of the patients I meet and talk to are on trials. Try contacting the Marsden to check if they have any open trials for you. Very best wishes. Mel J

                • March 14, 2016 at 7:50 am
                melj
                Participant

                  Mike, I live in the UK and started pembro in January at the Royal Marsden Hospital in London. It's one of.the top cancer hospitals in Europe and are involved in many trials. Many of the patients I meet and talk to are on trials. Try contacting the Marsden to check if they have any open trials for you. Very best wishes. Mel J

                  • March 13, 2016 at 8:43 am
                  melj
                  Participant

                    Celeste, thank you so much for sharing this and all your other blogs. They are invaluable and extremely helpful to those of us struggling to find comprehensible information on our disease and treatment options. Dr Weber's summary is very encouraging, my only concern is that as we move to triple and quadruple therapies, the costs of treatment become prohibitive. Please keep writing the blogs !

                    Mel J

                    • March 13, 2016 at 8:43 am
                    melj
                    Participant

                      Celeste, thank you so much for sharing this and all your other blogs. They are invaluable and extremely helpful to those of us struggling to find comprehensible information on our disease and treatment options. Dr Weber's summary is very encouraging, my only concern is that as we move to triple and quadruple therapies, the costs of treatment become prohibitive. Please keep writing the blogs !

                      Mel J

                      • March 13, 2016 at 8:43 am
                      melj
                      Participant

                        Celeste, thank you so much for sharing this and all your other blogs. They are invaluable and extremely helpful to those of us struggling to find comprehensible information on our disease and treatment options. Dr Weber's summary is very encouraging, my only concern is that as we move to triple and quadruple therapies, the costs of treatment become prohibitive. Please keep writing the blogs !

                        Mel J

                        • March 8, 2016 at 5:58 pm
                        melj
                        Participant

                          I had the lymph nodes in my groin removed in 1996. I wore a support stocking when flying for a couple of years and tried to walk as much as possible. After a few years the lymphatic system seemed to find new routes in the leg. Even now, if I'm inactive I find the leg, particularly the ankle, can get slightly swollen. So my advice( subject to medical advice)  is to try and walk for half an hour every day. Best wishes for a speedy recovery.

                          Mel J

                          • March 8, 2016 at 5:58 pm
                          melj
                          Participant

                            I had the lymph nodes in my groin removed in 1996. I wore a support stocking when flying for a couple of years and tried to walk as much as possible. After a few years the lymphatic system seemed to find new routes in the leg. Even now, if I'm inactive I find the leg, particularly the ankle, can get slightly swollen. So my advice( subject to medical advice)  is to try and walk for half an hour every day. Best wishes for a speedy recovery.

                            Mel J

                            • March 8, 2016 at 5:58 pm
                            melj
                            Participant

                              I had the lymph nodes in my groin removed in 1996. I wore a support stocking when flying for a couple of years and tried to walk as much as possible. After a few years the lymphatic system seemed to find new routes in the leg. Even now, if I'm inactive I find the leg, particularly the ankle, can get slightly swollen. So my advice( subject to medical advice)  is to try and walk for half an hour every day. Best wishes for a speedy recovery.

                              Mel J

                              • April 8, 2016 at 5:57 pm
                              melj
                              Participant

                                Ed, many thanks for your helpful post. I follow Celeste's blog with interest and recognise some of the other names from reading about their work on Pubmed and onc live. iDO inhibitors seem to have gone quiet after being in the news a lot two yeas ago. I have suggested contacting MD Anderson to one patient but it's a huge step to take for patients in the UK. Back in 1996 I travelled to Santa Monica to participate in their cancervax trial, so I understand the support needed. Frankly most stage 4 patients in the UK are not likely to travel to the US for trials unless they have close friends or family there. Best regards. Mel J

                                • April 8, 2016 at 5:57 pm
                                melj
                                Participant

                                  Ed, many thanks for your helpful post. I follow Celeste's blog with interest and recognise some of the other names from reading about their work on Pubmed and onc live. iDO inhibitors seem to have gone quiet after being in the news a lot two yeas ago. I have suggested contacting MD Anderson to one patient but it's a huge step to take for patients in the UK. Back in 1996 I travelled to Santa Monica to participate in their cancervax trial, so I understand the support needed. Frankly most stage 4 patients in the UK are not likely to travel to the US for trials unless they have close friends or family there. Best regards. Mel J

                                  • April 8, 2016 at 5:57 pm
                                  melj
                                  Participant

                                    Ed, many thanks for your helpful post. I follow Celeste's blog with interest and recognise some of the other names from reading about their work on Pubmed and onc live. iDO inhibitors seem to have gone quiet after being in the news a lot two yeas ago. I have suggested contacting MD Anderson to one patient but it's a huge step to take for patients in the UK. Back in 1996 I travelled to Santa Monica to participate in their cancervax trial, so I understand the support needed. Frankly most stage 4 patients in the UK are not likely to travel to the US for trials unless they have close friends or family there. Best regards. Mel J

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