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margaretrogers57

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      margaretrogers57
      Participant

      So very sorry to hear this news, Esther.  You both have been such a help and inspiration to Butch and I since we learned he had mets.  RIP, christine.  margaret

      margaretrogers57
      Participant

      So very sorry to hear this news, Esther.  You both have been such a help and inspiration to Butch and I since we learned he had mets.  RIP, christine.  margaret

      margaretrogers57
      Participant

      So very sorry to hear this news, Esther.  You both have been such a help and inspiration to Butch and I since we learned he had mets.  RIP, christine.  margaret

      margaretrogers57
      Participant

      haven't talked to the study doc, but the trial is specifically testing it in 5 cancers and one is ocular melanoma with liver mets.  It is actually a 1B trial..They have already established the mtd..Will let you know more as we know more…They contacted us today and sent us the consent form to go over.  We won't be seeing the oncologist that we have seen at Emory, must see study investigator (oncologist).  It is at emory and several other locations around the us.  wish us luck..margaret

      margaretrogers57
      Participant

      haven't talked to the study doc, but the trial is specifically testing it in 5 cancers and one is ocular melanoma with liver mets.  It is actually a 1B trial..They have already established the mtd..Will let you know more as we know more…They contacted us today and sent us the consent form to go over.  We won't be seeing the oncologist that we have seen at Emory, must see study investigator (oncologist).  It is at emory and several other locations around the us.  wish us luck..margaret

      margaretrogers57
      Participant

      haven't talked to the study doc, but the trial is specifically testing it in 5 cancers and one is ocular melanoma with liver mets.  It is actually a 1B trial..They have already established the mtd..Will let you know more as we know more…They contacted us today and sent us the consent form to go over.  We won't be seeing the oncologist that we have seen at Emory, must see study investigator (oncologist).  It is at emory and several other locations around the us.  wish us luck..margaret

      margaretrogers57
      Participant

      He doesn't feel any worse.  Dr. weber want to see what the numbers look like next wed.  Margaret

      margaretrogers57
      Participant

      He doesn't feel any worse.  Dr. weber want to see what the numbers look like next wed.  Margaret

      margaretrogers57
      Participant

      He doesn't feel any worse.  Dr. weber want to see what the numbers look like next wed.  Margaret

      margaretrogers57
      Participant

      The anti-pd-1 trial is going good.  Butch's only side effects is slight fatique and slight flu-like symptoms for a few days after infusion.  He's had 2 now..The trip to Tampa (about 600 miles) every 2 weeks is the roughest thing so far..Will try to keep you guys informed.  Hugs, Margaret Rogers

      margaretrogers57
      Participant

      The anti-pd-1 trial is going good.  Butch's only side effects is slight fatique and slight flu-like symptoms for a few days after infusion.  He's had 2 now..The trip to Tampa (about 600 miles) every 2 weeks is the roughest thing so far..Will try to keep you guys informed.  Hugs, Margaret Rogers

      margaretrogers57
      Participant

      The anti-pd-1 trial is going good.  Butch's only side effects is slight fatique and slight flu-like symptoms for a few days after infusion.  He's had 2 now..The trip to Tampa (about 600 miles) every 2 weeks is the roughest thing so far..Will try to keep you guys informed.  Hugs, Margaret Rogers

      margaretrogers57
      Participant

      We're glad to be in trial too.  We get 3 mg. dose.  Sure hope that's enough.  We have to be in fl. every 2 wks.  grueling, but that's what we have to do right now.  it's about an 8-9 hr. drive. ugh..Will definitely keep you in our prayers, friend…Butch is still feeling good right now.  Love ya, Margaret

      margaretrogers57
      Participant

      We're glad to be in trial too.  We get 3 mg. dose.  Sure hope that's enough.  We have to be in fl. every 2 wks.  grueling, but that's what we have to do right now.  it's about an 8-9 hr. drive. ugh..Will definitely keep you in our prayers, friend…Butch is still feeling good right now.  Love ya, Margaret

      margaretrogers57
      Participant

      We're glad to be in trial too.  We get 3 mg. dose.  Sure hope that's enough.  We have to be in fl. every 2 wks.  grueling, but that's what we have to do right now.  it's about an 8-9 hr. drive. ugh..Will definitely keep you in our prayers, friend…Butch is still feeling good right now.  Love ya, Margaret

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