Manubuzzi

Thank you all for your messages, they have really given me a lot of strength.  My mother knows about you all and she sends you a big kiss, her warmest wishes of strength and hope, and a hug all the way from Argentina.  Yesterday she finished the Temodar treatment, it was 5 days of 400grams/day.  Only one of those days was she fatigued and with sore muscles.  She feels better now.  In the last few days, she has been able to speak a bit better.  We don’t know if the swelling went down from the surgery on 2/24 or if the Temodar had some effect on the tumors. 

 In response to Mary:  we are starting the treatment tomorrow.  It will consist of radiation with accelerated lineal in the entire brain, a total of 20 sessions.  (What side effects can we expect, other than hair loss?)  Our Oncologist said that this treatment should be able to combat the brain tumors and then we’ll be able to continue with treatment for the immune system.  He also mentioned two alternatives: Ipilimumab or Interleukin-2 in high dosages.  This would mainly be to attack the 16mm tumor in the liver.  I am hopeful that the radiation and Temodar will do their jobs and control the illness in the brain.  If it is controlled, will IPi and IL-2 help to avoid a return of the tumors? 

Something else that was unclear to me, and maybe you all can help me understand:  In the PET scan report, it mentions that the only hyper-metabolic tumor is the tumor in the liver.  What does that mean?  What importance or implications should I attach to the grade of metabolism of the tumors?

 Thank you all again for your words and your help and advice!  We will support her as much as we can. Thank you again and good luck!

Manuel

Hola !!!

Muchas gracias por tu mensaje. Y gracias por ofrecer una mano. Tambien puedo ofrecerte una mano en lo que necesites para "sentirte mejor" como decis en tu mail.

Mi mail es [email protected]. ! Te deseo lo mejor

Un beso grande!

Hola !!!

Muchas gracias por tu mensaje. Y gracias por ofrecer una mano. Tambien puedo ofrecerte una mano en lo que necesites para "sentirte mejor" como decis en tu mail.

Mi mail es [email protected]. ! Te deseo lo mejor

Un beso grande!

Your note really hit me hard.  I am so very sorry for your loss.  I hate this illness and all the pain it brings.  It seems like it only attacks the best people with the most to lose.  I can’t even begin to show you, especially from a distance, the pain that your note fills me with.  My sincerest of condolences.  I hope that you and your family can muster the strength to pick yourselves up and face your new reality.  I am sending you all my strength all the way from Argentina. 

I do apologize for not sending this sooner, it’s just that I am without my translator (my girlfriend- we are still together, but she has a new job and less time).  And when talking about important things, like this, I do not want to make any mistakes due to the language barrier.   My mother, thank God, has gotten a lot better.  But that is another topic for another day.  I just want to give my condolences to you all and I pray that you find the strength you need to survive this.  

A big kiss and a warm hug,

Manu

Your note really hit me hard.  I am so very sorry for your loss.  I hate this illness and all the pain it brings.  It seems like it only attacks the best people with the most to lose.  I can’t even begin to show you, especially from a distance, the pain that your note fills me with.  My sincerest of condolences.  I hope that you and your family can muster the strength to pick yourselves up and face your new reality.  I am sending you all my strength all the way from Argentina. 

I do apologize for not sending this sooner, it’s just that I am without my translator (my girlfriend- we are still together, but she has a new job and less time).  And when talking about important things, like this, I do not want to make any mistakes due to the language barrier.   My mother, thank God, has gotten a lot better.  But that is another topic for another day.  I just want to give my condolences to you all and I pray that you find the strength you need to survive this.  

A big kiss and a warm hug,

Manu

Hello again to all,



First, Thank you all for all your responses.  We have passed the recent storm, and I feel I should tell everyone how my mom is doing.  She has been checked into the hospital due to weak blood, a urinary tract infection, and another more complicated infection in the wound where she had the brain surgery on 2/23.  It made her get worse in general, with fever and muscle pain.  After a few days in intensive care, with blood transfusions and a few procedures to drain the infection from her head, and a visit from a pretty famous Priest here that came to bless her, my mom is doing better!  It is amazing how well she has recuperated her speech and general alertness and understanding.  Also, it seems that she has more energy now and a renewed strength.  And the rest of us do too!  Like my mother said to the Priest, "it's not going to be so easy for God to take me to that other world."  Next week, we start another session of Temodar.  And, if it's God's will, we will be able to stop the growth of the brain tumors, and we'll start with IPI.  Carol, Thank you, from the bottom of my heart, for your kind words.



Manu

Hello again to all,



First, Thank you all for all your responses.  We have passed the recent storm, and I feel I should tell everyone how my mom is doing.  She has been checked into the hospital due to weak blood, a urinary tract infection, and another more complicated infection in the wound where she had the brain surgery on 2/23.  It made her get worse in general, with fever and muscle pain.  After a few days in intensive care, with blood transfusions and a few procedures to drain the infection from her head, and a visit from a pretty famous Priest here that came to bless her, my mom is doing better!  It is amazing how well she has recuperated her speech and general alertness and understanding.  Also, it seems that she has more energy now and a renewed strength.  And the rest of us do too!  Like my mother said to the Priest, "it's not going to be so easy for God to take me to that other world."  Next week, we start another session of Temodar.  And, if it's God's will, we will be able to stop the growth of the brain tumors, and we'll start with IPI.  Carol, Thank you, from the bottom of my heart, for your kind words.



Manu