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Manfred

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      Manfred
      Participant

        I had one 24mm mel  tumor treaded with Gamma Knife in 2011,it shrunk to 9mm over time, 9 month,but than started growing again,had brain surgery to remove it and Cyber Knife there after,still doing fine.

        Manfred
        Participant

          Hi Julie,

          I have a question about your BRAF status,are you positive and good luck with the T VEC.

          Manfred

           

          Manfred
          Participant

            Thanks, Manfred

            Manfred
            Participant

              Hi Swanee, I am also stage IV and using SCCA.Would like to exchange some thought per e-mail or phone if you are interested.Pls. let me know.

              Manfred

              Manfred
              Participant

                Congratulation Julie, and you will handle the radiation like you did the rest of your treatments.Julie I have a question for you regarding the joint pains on Keytruda. For how long after your Keytruda treatment did you have to struggle with the pain? 

                Thanks,  Manfred

                 

                Manfred
                Participant

                  I was diagnosed 4 years ago with 5 lung tumors and 1 brain tumor,had Gamma knife and 2 brain surgeries,my last scans showed things are ok. in the brain and the 5 lung tumors are still there-the are growing very slow so my onc.tells me to watch and wait-his famous words are " I don't won't to make you sick",so as of today I am going with his advise.I would wait a bit befor a lung surgery,you also can do Cyber knfe on the lung or as recommended any of the new drugs.

                  Manfred
                  Participant

                    I was diagnosed 4 years ago with 5 lung tumors and 1 brain tumor,had Gamma knife and 2 brain surgeries,my last scans showed things are ok. in the brain and the 5 lung tumors are still there-the are growing very slow so my onc.tells me to watch and wait-his famous words are " I don't won't to make you sick",so as of today I am going with his advise.I would wait a bit befor a lung surgery,you also can do Cyber knfe on the lung or as recommended any of the new drugs.

                    Manfred
                    Participant

                      I was diagnosed 4 years ago with 5 lung tumors and 1 brain tumor,had Gamma knife and 2 brain surgeries,my last scans showed things are ok. in the brain and the 5 lung tumors are still there-the are growing very slow so my onc.tells me to watch and wait-his famous words are " I don't won't to make you sick",so as of today I am going with his advise.I would wait a bit befor a lung surgery,you also can do Cyber knfe on the lung or as recommended any of the new drugs.

                      Manfred
                      Participant

                        I am your fathers age and have stage IV melanoma since 2011,no known primery.I visited  Dr.Thomson for a second opinion, other wise I am using Swedish Cancer Institute-Dr Goodman.If you contact me with a pm I will give you my # and we can talk.

                        Manfred

                         

                        Manfred
                        Participant

                          I am your fathers age and have stage IV melanoma since 2011,no known primery.I visited  Dr.Thomson for a second opinion, other wise I am using Swedish Cancer Institute-Dr Goodman.If you contact me with a pm I will give you my # and we can talk.

                          Manfred

                           

                          Manfred
                          Participant

                            I am your fathers age and have stage IV melanoma since 2011,no known primery.I visited  Dr.Thomson for a second opinion, other wise I am using Swedish Cancer Institute-Dr Goodman.If you contact me with a pm I will give you my # and we can talk.

                            Manfred

                             

                            Manfred
                            Participant

                              Jag, nice to hear from you and the weaning off of the anti seizure madication.I am doing well after my second brain surgeries but I still have my lung tumors which seem to be stable.My oncologist at every visit says and I quote " Manfred I do not want to make you sick".This is sometimes hard to take but my wife tells me that I will die of old age and not cancer.So after almost 4 years I think my immune system is strong enough to keep the cancer under control and as long as this is the case no treatment for me according to the onc. Stay healthy,enjoy live and family.

                              Manfred

                              Manfred
                              Participant

                                Jag, nice to hear from you and the weaning off of the anti seizure madication.I am doing well after my second brain surgeries but I still have my lung tumors which seem to be stable.My oncologist at every visit says and I quote " Manfred I do not want to make you sick".This is sometimes hard to take but my wife tells me that I will die of old age and not cancer.So after almost 4 years I think my immune system is strong enough to keep the cancer under control and as long as this is the case no treatment for me according to the onc. Stay healthy,enjoy live and family.

                                Manfred

                                Manfred
                                Participant

                                  Jag, nice to hear from you and the weaning off of the anti seizure madication.I am doing well after my second brain surgeries but I still have my lung tumors which seem to be stable.My oncologist at every visit says and I quote " Manfred I do not want to make you sick".This is sometimes hard to take but my wife tells me that I will die of old age and not cancer.So after almost 4 years I think my immune system is strong enough to keep the cancer under control and as long as this is the case no treatment for me according to the onc. Stay healthy,enjoy live and family.

                                  Manfred

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