The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

luvnlyf

Forum Replies Created

Viewing 6 reply threads
  • Replies
      luvnlyf
      Participant
        I want to come give an update. The treatment appears to be working. I just got a scan after 3 infusions. The spots in my lungs and one lymph node are now gone. One of the lymph nodes that was 4cm is now 1cm and only one other lymph node that has it and it’s now half the size. They are saying at this rate I might be able to stop treatment early.

        Thank you everyone for your support!

        luvnlyf
        Participant
          I appreciate your response, I’ll take a look at that. Most of the rash has gone, I just have one area with the rash currently. It might be my imagination, but it does seem like the Sarilumab might be helping with some side effects.
          luvnlyf
          Participant
            So wonderful to hear! Looks like I will be doing one of Dr Hamid’s clinical trials. I really appreciate everyone that has taken the time to respond.
            luvnlyf
            Participant
              Dr Hamid is one of the doctors I do have an appointment with next week. I happy to hear you enjoyed working with him. I appreciate that you took the time to share your experience!
              luvnlyf
              Participant
                I appreciate your time bubble, it’s very kind of you take the time to do so. Thanks to your link I was able to locate 2 doctors In my area and that are experts and they are both willing to meet with me next week.

                My current oncologist did mention the ipi/nivo combo to me and I’m meeting with her next week too.

                Thank you again, you have given everyone such a valuable resource to reference!

                luvnlyf
                Participant
                  If you don’t mind me asking. I didn’t hear back from either of the doctors today. Do you think it’s more important to get in with the right doctor, or try to get an immunotherapy going sooner? Would it cause any issue to wait for the right doctor?
                  luvnlyf
                  Participant
                    Thank you Bubbles for your kind response. The link you created is so wonderful. It’s exactly what I was needing. I already reached out to two doctors in my area that are on your list. You are so generous to share your knowledge.
                Viewing 6 reply threads