Forum Replies Created
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- January 1, 2017 at 6:17 am
Judy,
I just read some of your story and feel your pain as I was in your shoes a few short months ago. If you are a praying type please ask God to give you and your precious and amazing husband the comfort, strength, and peace you require right now.
My husband had many of the same symptoms you describe, he had stage IV leptomeningeal melanoma. Please let hospice take over and just love your husband and hold him and tell him he's all you've ever needed and more! I lost my Bryan on Oct 14, he was just 49 years old. I want you to know there are people praying for you, I truly understand what it feels like.
You can do this.
Lee Ann
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- January 1, 2017 at 6:17 am
Judy,
I just read some of your story and feel your pain as I was in your shoes a few short months ago. If you are a praying type please ask God to give you and your precious and amazing husband the comfort, strength, and peace you require right now.
My husband had many of the same symptoms you describe, he had stage IV leptomeningeal melanoma. Please let hospice take over and just love your husband and hold him and tell him he's all you've ever needed and more! I lost my Bryan on Oct 14, he was just 49 years old. I want you to know there are people praying for you, I truly understand what it feels like.
You can do this.
Lee Ann
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- January 1, 2017 at 6:17 am
Judy,
I just read some of your story and feel your pain as I was in your shoes a few short months ago. If you are a praying type please ask God to give you and your precious and amazing husband the comfort, strength, and peace you require right now.
My husband had many of the same symptoms you describe, he had stage IV leptomeningeal melanoma. Please let hospice take over and just love your husband and hold him and tell him he's all you've ever needed and more! I lost my Bryan on Oct 14, he was just 49 years old. I want you to know there are people praying for you, I truly understand what it feels like.
You can do this.
Lee Ann
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- December 30, 2016 at 4:51 pm
My husband had WBR last summer. It was not very effective in controlling his melanoma, which had become leptomeningeal. What worked for his brain lesions was a combination of Tafinlar and Mekinist. WBR will change your father's personality most likely. By that I mean it will dull the person that he is today. My husband was not the same, was kind of just "there" if that makes sense. We would talk, laugh and such, but his essence was missing.
I do think the Cyberknife (pointed laser) is the best, even for multiple lesions. The side effects are strong, however. Extreme fatigue is the main one. My husband had great results from that.
Godspeed to you and your father.
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- December 30, 2016 at 4:51 pm
My husband had WBR last summer. It was not very effective in controlling his melanoma, which had become leptomeningeal. What worked for his brain lesions was a combination of Tafinlar and Mekinist. WBR will change your father's personality most likely. By that I mean it will dull the person that he is today. My husband was not the same, was kind of just "there" if that makes sense. We would talk, laugh and such, but his essence was missing.
I do think the Cyberknife (pointed laser) is the best, even for multiple lesions. The side effects are strong, however. Extreme fatigue is the main one. My husband had great results from that.
Godspeed to you and your father.
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- December 30, 2016 at 4:51 pm
My husband had WBR last summer. It was not very effective in controlling his melanoma, which had become leptomeningeal. What worked for his brain lesions was a combination of Tafinlar and Mekinist. WBR will change your father's personality most likely. By that I mean it will dull the person that he is today. My husband was not the same, was kind of just "there" if that makes sense. We would talk, laugh and such, but his essence was missing.
I do think the Cyberknife (pointed laser) is the best, even for multiple lesions. The side effects are strong, however. Extreme fatigue is the main one. My husband had great results from that.
Godspeed to you and your father.