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Lauren mom to Jenna
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Lauren mom to Jenna

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      • March 16, 2011 at 8:16 pm
      Lauren mom to Jenna
      Participant

        Very happy to hear! 

         

        Lauren (mom to Jenna)

        • March 16, 2011 at 8:16 pm
        Lauren mom to Jenna
        Participant

          Very happy to hear! 

           

          Lauren (mom to Jenna)

          • March 16, 2011 at 7:17 pm
          Lauren mom to Jenna
          Participant

            Mary, very happy to hear!!  Coffee soon?

             

            Lauren

            • March 16, 2011 at 7:17 pm
            Lauren mom to Jenna
            Participant

              Mary, very happy to hear!!  Coffee soon?

               

              Lauren

              • December 12, 2010 at 11:02 pm
              Lauren mom to Jenna
              Participant

                The side effects of the BRAF/MEK combo are very mild.  Perhaps some mild diarrhea, easily controlled with imodium.  Jenna did not even experience the bad rash with the combo that she did on the MEK alone.  Biggest side effects…hope and elation, as you feel (if you have palpable tumors) your tumors shrink. 

                • December 12, 2010 at 11:02 pm
                Lauren mom to Jenna
                Participant

                  The side effects of the BRAF/MEK combo are very mild.  Perhaps some mild diarrhea, easily controlled with imodium.  Jenna did not even experience the bad rash with the combo that she did on the MEK alone.  Biggest side effects…hope and elation, as you feel (if you have palpable tumors) your tumors shrink. 

                  • December 12, 2010 at 4:34 pm
                  Lauren mom to Jenna
                  Participant

                    That is great news!…a giant step forward for the melanoma community.

                    • December 12, 2010 at 4:34 pm
                    Lauren mom to Jenna
                    Participant

                      That is great news!…a giant step forward for the melanoma community.

                      • October 15, 2010 at 3:38 pm
                      Lauren mom to Jenna
                      Participant

                        YES! and it's the GSK BRAF drug.  Thanks for posting.

                         

                        Lauren (mom to Jenna)

                        • October 15, 2010 at 3:38 pm
                        Lauren mom to Jenna
                        Participant

                          YES! and it's the GSK BRAF drug.  Thanks for posting.

                           

                          Lauren (mom to Jenna)

                          • October 7, 2010 at 11:26 pm
                          Lauren mom to Jenna
                          Participant

                            Jenna and I had the pleasure of meeting Kurt at NIH a year ago.  He was an inspiration to us, and a kick to meet in person.  Now we will look forward to meeting up with him again "out of person".  Our thoughts and prayers are with his family. 

                             

                            Lauren (mom to Jenna)

                            • October 7, 2010 at 11:26 pm
                            Lauren mom to Jenna
                            Participant

                              Jenna and I had the pleasure of meeting Kurt at NIH a year ago.  He was an inspiration to us, and a kick to meet in person.  Now we will look forward to meeting up with him again "out of person".  Our thoughts and prayers are with his family. 

                               

                              Lauren (mom to Jenna)

                              • October 7, 2010 at 11:20 pm
                              Lauren mom to Jenna
                              Participant

                                Hyperbaric oxygen treatments are beneficial for  burns including radiation.  My daughter was able to do them for nerve damage due to radiation.  The treatments are time consuming, but easy…just lay in the "tank" and watch TV. 

                                 

                                Lauren (mom to Jenna)

                                • October 7, 2010 at 11:20 pm
                                Lauren mom to Jenna
                                Participant

                                  Hyperbaric oxygen treatments are beneficial for  burns including radiation.  My daughter was able to do them for nerve damage due to radiation.  The treatments are time consuming, but easy…just lay in the "tank" and watch TV. 

                                   

                                  Lauren (mom to Jenna)

                                  • September 21, 2010 at 4:50 pm
                                  Lauren mom to Jenna
                                  Participant

                                    Hi Tina,  I would recommend researching the trials that you are interested in, and then see where they are doing those trials in AZ.  My daughter was treated at Premiere Oncology in Scottsdale last Oct through May.  It was one of the only locations doing the GSK MEK inhibitor trial, so we traveled from CA to AZ.  I know that they are doing other targeted therapy trials there now.  Also T-Gen does some targeted therapies. 

                                    Best,

                                     

                                    Lauren (mom to Jenna)

                                     

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