Lauren mom to Jenna
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Lauren mom to Jenna

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      • March 16, 2011 at 8:16 pm
      Lauren mom to Jenna
      Participant

      Very happy to hear! 

       

      Lauren (mom to Jenna)

      • March 16, 2011 at 8:16 pm
      Lauren mom to Jenna
      Participant

      Very happy to hear! 

       

      Lauren (mom to Jenna)

      • March 16, 2011 at 7:17 pm
      Lauren mom to Jenna
      Participant

      Mary, very happy to hear!!  Coffee soon?

       

      Lauren

      • March 16, 2011 at 7:17 pm
      Lauren mom to Jenna
      Participant

      Mary, very happy to hear!!  Coffee soon?

       

      Lauren

      • December 12, 2010 at 11:02 pm
      Lauren mom to Jenna
      Participant

      The side effects of the BRAF/MEK combo are very mild.  Perhaps some mild diarrhea, easily controlled with imodium.  Jenna did not even experience the bad rash with the combo that she did on the MEK alone.  Biggest side effects…hope and elation, as you feel (if you have palpable tumors) your tumors shrink. 

      • December 12, 2010 at 11:02 pm
      Lauren mom to Jenna
      Participant

      The side effects of the BRAF/MEK combo are very mild.  Perhaps some mild diarrhea, easily controlled with imodium.  Jenna did not even experience the bad rash with the combo that she did on the MEK alone.  Biggest side effects…hope and elation, as you feel (if you have palpable tumors) your tumors shrink. 

      • December 12, 2010 at 4:34 pm
      Lauren mom to Jenna
      Participant

      That is great news!…a giant step forward for the melanoma community.

      • December 12, 2010 at 4:34 pm
      Lauren mom to Jenna
      Participant

      That is great news!…a giant step forward for the melanoma community.

      • October 15, 2010 at 3:38 pm
      Lauren mom to Jenna
      Participant

      YES! and it's the GSK BRAF drug.  Thanks for posting.

       

      Lauren (mom to Jenna)

      • October 15, 2010 at 3:38 pm
      Lauren mom to Jenna
      Participant

      YES! and it's the GSK BRAF drug.  Thanks for posting.

       

      Lauren (mom to Jenna)

      • October 7, 2010 at 11:26 pm
      Lauren mom to Jenna
      Participant

      Jenna and I had the pleasure of meeting Kurt at NIH a year ago.  He was an inspiration to us, and a kick to meet in person.  Now we will look forward to meeting up with him again "out of person".  Our thoughts and prayers are with his family. 

       

      Lauren (mom to Jenna)

      • October 7, 2010 at 11:26 pm
      Lauren mom to Jenna
      Participant

      Jenna and I had the pleasure of meeting Kurt at NIH a year ago.  He was an inspiration to us, and a kick to meet in person.  Now we will look forward to meeting up with him again "out of person".  Our thoughts and prayers are with his family. 

       

      Lauren (mom to Jenna)

      • October 7, 2010 at 11:20 pm
      Lauren mom to Jenna
      Participant

      Hyperbaric oxygen treatments are beneficial for  burns including radiation.  My daughter was able to do them for nerve damage due to radiation.  The treatments are time consuming, but easy…just lay in the "tank" and watch TV. 

       

      Lauren (mom to Jenna)

      • October 7, 2010 at 11:20 pm
      Lauren mom to Jenna
      Participant

      Hyperbaric oxygen treatments are beneficial for  burns including radiation.  My daughter was able to do them for nerve damage due to radiation.  The treatments are time consuming, but easy…just lay in the "tank" and watch TV. 

       

      Lauren (mom to Jenna)

      • September 21, 2010 at 4:50 pm
      Lauren mom to Jenna
      Participant

      Hi Tina,  I would recommend researching the trials that you are interested in, and then see where they are doing those trials in AZ.  My daughter was treated at Premiere Oncology in Scottsdale last Oct through May.  It was one of the only locations doing the GSK MEK inhibitor trial, so we traveled from CA to AZ.  I know that they are doing other targeted therapy trials there now.  Also T-Gen does some targeted therapies. 

      Best,

       

      Lauren (mom to Jenna)

       

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